Hi teristilley,
Welcome to HealthCentral. I'm glad to read that you are getting a 3rd opinion. It is obvious that SOMETHING is going on and has been for years. You have some evidence (demyelination) which might indicate MS (but can also be caused by migraines).
Consulting with a different neurologist sounds like an excellent idea. Be sure to prepare for your appointment.
Write down the history of your symptoms and previous tests. Write down the result of the tests and any treatments tried. Take copies of test results if you have them.
Take somebody with you to the appointment to be an extra set of ears. Ask lots of questions.
One important question: "If it isn't MS, what do you think it might be?"
When you state that your Neuro says they don't think so that strikes me as odd. Have you had any testing done such as a spinal tap? It seems they should have done some testing to rule it out so easily! I too recommend seeking out a new neurologist. Do you happen to have any in your area that focus on MS? Best of luck to you, take care.
Important:
We hope you find this general health information helpful. Please note however, that this Q&A is meant to support not replace the professional medical advice you receive from your doctor. No information in the Answers above is intended to diagnose or treat any condition. The views expressed in the Answers above belong to the individuals who posted them and do not necessarily reflect the views of Remedy Health Media. Remedy Health Media does not review or edit content posted by our community members, but reserves the right to remove any material it deems inappropriate.