I have RRMS can the muscle spasms and numbness effect the back of my head? I've had a strange feeling on the back and top of my head along with numbness on the right side of face,mouth and tongue. Since the pain was on the same side it turned out to be a migraine, similar to a spinal tap headache. The pain was resolved with Midrin, but the spasm or tight like feeling and numbness is ongoing. Is this a common thing with MS?
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Q: Migraine, spasms & numbness on back of head MS related?
Answers (1)
7/ 3/09 4:20pm
Hi Eva,
I have found over my 21-year MS ride, that this disease can take on so many different forms. Having to decipher which symptoms are from another condition in addition to MS, makes it much more challenging. Checking in with your neurologist is always your best bet when trying to make these determinations. That said, my layperson’s perspective is that the strange feelings, spasms and numbness are all MS like symptoms. I’ve experienced each one in the context of my MS and would venture to say that the variations you describe are common. I’m on Baclofen to specifically address that tightness you described- and it has been enormously helpful in relieving that discomfort.
I hope things go well in your learning effort.
If you have any questions please feel free to direct them my way.
All the Best,
Amy
7/ 3/09 10:27pm
Eva,
I completely understand where you are coming from. The crazy thing is that after 21years with this unpredictable, constantly changing disease I still have questions and have a constant need to learn. In spite of that, I do feel like over time I have gotten to know my "version" of MS. There are many aspects that are the "old familiar" experiences. But it certainly keeps me on my toes. And keeping your spirits up is half the battle, so you are ahead of the game. I blog about my experience and invite you to take a look. www.mslol.wordpress.com It might be helpful to learn about my story... and how I use writing to cope! And if you have any questions, feel free to give me a virtual shout~
Good luck with the Avonex, and stay as cool as possible out there. (I hope the old adage 'at least its a dry heat' means something! :)
Best,
Amy
7/ 8/09 6:01pm
Thank you, Amy
. I will check out your blog.
It's true it's dry heat, but it's too darn hot for me still.
All the Best-
Eva
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By Eva1967— Last Modified: 12/27/10, First Published: 07/03/09
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Thank you Amy, I guess I have alot to learn it's just that I'm having such odd symptoms lately. I was having MS type problems after having my son 11/05, but I got the diagnosis on 11/07. It just seems so fast how crappy I'm feeling. I'm in great sprits and have accepted my condition. I just get scared with all the odd and what seems new to me. I'm on baclofen 2 x a day &
I'm starting Avonex on Sunday, hopefully it will reduce the flare ups. I used Copaxone for a year, but I had too many flare ups.
My doctor is aware I'm under alot of stress and the Las Vegas heat is not helpful.
Again, thank you, Eva