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Monday, November, 23, 2009
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Avonex side effects how long does it last?

Eva1967
Eva1967
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Eva1967 is Having strange spasms on my head and some numbness on my face. I need to learn how to cope with stress better. i'll get it right one of these days.

07/06/09

I just started Avonex yesterday at 9am, since I'm home alone on Mondays. Wow the side effects as I understood were flu-like.

I was not able to move my body and when I moved I had to use my wheelchair, I use my walker on most days. I had a temp of 102.4 and my muscle spasms were out of control all day and night.  Then the chills and night sweats set in. Today I'm exhausted I'm assuming from the spasms. I felt almost paralized it was truly something I did not expect. Do these side effects eventually go away.

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tellnhelen
tellnhelen
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Mature African-American woman

Recently had acuite exacerbation..I've had other episodes but none...

Monday, July 06, 2009

These days I feel like an Avonex commercial....I'm sorry you endured a terrible day.  I have been on Avonex for 10 years.  I only take my injection just before bed along with two Advils.  Essentially I sleep through  whatever achy stuff may come.  In my first year or so, the next day would be a little slow but very tolerable.  Eventually the side effects were very small....they have not disappeared

 

re: Avonex side effects how long does it last?
Eva1967
Wednesday, July 08, 2009 at 06:26 PM

Thank you, I will do the same. I was not aware of the Motrin but I will never forget it now. Cool 

Thank you, Eva1967

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Denna74
Denna74
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Denna74 is Feeling better and trying to be more active!
Diagnosed April 28,2009

I am a mother of 5 children; 4 boys and 1 girl with ages ranging from...

Tuesday, July 07, 2009

I have been on Avonex for 7 weeks, I have had one injection that I was able to sleep through the side effects.  Other than that I have severe chills and body aches.  My muscles feel like I need to stretch them constantly.  The first dose I will say was much worse but the following doses (except for the one) have not been much better.  I have read many postings about this drug and it seems that it works well for some and not others.   I have seen postings that state they have been on it for several years and the effects have not improved.  I think it is a matter of figuring out a routine that works for you and your body.  I am trying to figure out what I did the one night I slept through and replicate it!  From what I see, drink lots of water, take tylenol, advil, or aleve 1-2 hours before the injection and inject and go to bed immediately or inject 1-2 hours before bed.  That is my summary from the postings I have read thus far.  Good luck, hang in there!

re: Avonex side effects how long does it last?
Eva1967
Wednesday, July 08, 2009 at 06:24 PM

Thank you, that is exactly what my MS buddies told me. I will try again this Saturday just after dinner. I think I will have a better

reaction this time around. I was not aware of taking the Motrin 1hour prior. Wish me luck.

Thank you, Eva

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re: Avonex side effects how long does it last?
Eva1967
Thursday, September 03, 2009 at 11:32 AM

Thank you, I think I'm getting use to it, but I lose about 21 hours so I just do it when I can rest the next day. It does interupt my sleep even with the motrin and large amouts of water. I have those awful spasms, but if it helps me I will keep on truckin.

Eva

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Nancy Ackerley
Nancy Ackerley
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Nancy Ackerley is How are you doing?

I really like to think of my self out going and fun. But it seems...

Thursday, July 09, 2009

Eva, i have been getting Avonex injections for about 14 years now. i had those side affects for about a year.but they weren't that bad with me.Maybe you should talk to your doctor.Or call Avonex they have people there to talk to.  Good luck,I hope you fill better soon.  big hugs nancySmile

re: Avonex side effects how long does it last?
Eva1967
Thursday, September 03, 2009 at 11:35 AM

Thank you, I've have not been online too much, I had a recent flare up and the summer in Vegas just killed me. I think I'm okay with it and wil continue to use it, I do lose the 21 hours, but if it helps me. I gonna hang in there.

xoxo

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re: Avonex side effects how long does it last?
Eva1967
Thursday, September 03, 2009 at 11:35 AM

Thank you, I've have not been online too much, I had a recent flare up and the summer in Vegas just killed me. I think I'm okay with it and wil continue to use it, I do lose the 21 hours, but if it helps me. I gonna hang in there.

xoxo

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