I have noticed that there are several of you out there taking LDN. I too am taking LDN and was experiencing great results for the first 18 months of taking it until now; I am having an attack, though it is much milder than those in the past. My question is whether I should up the dosage. I have always taken 3 mgs and am wondering if I should move up to 4.5mg? My doctors don't know anything about LDN and it was hard enough to get a prescription out of them. I feel like if I tell them that I want to raise the dosage they'll think that it's just not working and stop giving me the prescription altogether. I'm not ready to give up on it, there have been too many positive results. Any advice?
I am also wondering if anyone else has changed their diet to exclude dairy and wheat? I have and am sometimes skeptical of the efficacy of this move.
I really appreciate any advice and imput.
Thanks,
Jenn
I happened across this forum when I was searching multiple sclerosis and wheat allergy. I thought you all might like to know my experience with LDN and eliminating wheat. First, I have been taking 3.0 mg of LDN for four years with quite remarkable results. I was just at the point of being permanently in a wheelchair without walking at all. I had lost the ability to type or feel my toes. Shortly after starting LDN I regained movement and feeling in my toes and could go back to playing the organ and typing, but the most welcome results were being able to go more than two hours between bathroom stops, no longer having while temperature fluctuations at night, having a great reduction in fatigue particularly in hot weather. Over the years since I started LDN, I lost movement again in my toes-- but not feeling-- and could no longer type. Everything else stayed good. One downside to LDN is increased spasticity in my legs each morning. I have tried increasing to 4.5; however, the specificity is not good so I go back to three.
A year ago this month, I began a low-carb diet to lose weight. I have lost about 30 pounds very slowly. Last summer I decided to cut out wheat totally. After four months with little to no wheat, I suddenly realized that I was going 6 to 8 hours at night without having to wake my husband to help me get to the bathroom. This is amazing! I credit both LDN and my diet. And then, a couple of months ago, I realized I could wiggle my little toe. Eventually I could move all my toes somewhat. Now I can occasionally move my feet back and forth by myself. This may not sound like much, but a year and a half ago I had become accepting of the fact that I was entering a final stage or the beginning of a final stage. Now I am hopeful that it is not too late, that maybe this improved diet of real food including saturated fat, meat, dairy, vegetables and fruit will help me get better. I am considering cutting out dairy, which would include the heavy cream in my coffee and a little bit of cheese.
Since it has taking a year to see results and to lose weight, I have learned to be patient and stick with the program.