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I just had a tremor so bad it felt more like some kind of seizure. Is this to be expected?

Beverly A. Duvall
Beverly A. Duvall
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48 years old; single mom for 13 years; still working full time to

I am still working and getting scared more day by day. I am in a...

06/23/08
Beverly A. Duvall
Topics:SeizuresTremors

I am a 48 year old female who is living with the last stages of remitting/relapsing MS. I have had MS since I was 24 years old.

 

I had a severe tremor "seizure" the other day.  I want to know what caused it and is this something I will be struggling with for now on? 

 

It really scared me;   I was feeling different, very wierd and took a clonazapam just to be safe.  Not only was I tremoring severely with my legs, arms, and head but I was incoherent and didn't know what was going on.  It was as if, I had been anestethized and could hear mumbling around me but could do nothing about it.  Once home, I laid in been and slept for 40 hours.

 

My daughter works were I do and she was called by one of my co-workers to come get me and take me home.

 

Thanks,

 

Beverly A. Duvall

BAD106@live.com

I still feel weak and my head is still disconnected.  I have an appointment with my MS doctor tomorrow.

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Answers (2)
Lisa Emrich
Lisa Emrich
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Musician, Patient Advocate, and Founder - Carnival of MS Bloggers

Lisa Emrich is a professional musician. She happens to live with...

Tuesday, August 26, 2008

Hi Beverly,

 

I just came across your question.  It sounds like you've been undergoing some scary stuff.  And although you've already seen your neurologist by now, I thought I'd share this with you.

 

A friend of mine who was diagnosed with MS less than a year ago was asking me about seizures and MS.  She was experiencing something similar to what you describe.  Her neurologist treated her as with a relapse and prescribed something to address her symptoms.

 

I'd personally be very interested to learn what you found out, especially since I know very little about the seizure-like symptoms that sometimes come with MS.  So come back and give us an update when you can.

 

Thanks,

Lisa

 

Merely Me
Merely Me
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I am a mother, a writer, and now an MS patient

I just got diagnosed with MS in October of 2007 although my very...

Wednesday, September 03, 2008

Hey Beverly and Lisa

 

I am that friend who experienced maybe something similar to what you are going through.  I would feel a surge in my head, followed by tremors in my right arm and especially my right leg.  My limbs would contract and release rather violently.  A friend of mine who has three children with epilepsy, was very concerned for me.

 

I went to get an EEG and my scan came back clean.  I was told by my friend that this doesn't rule out seizures but the doctors are telling me that this was an MS episode and not a seizure.  When I researched the literature, it was very unclear as to whether people having MS can experience myoclonic seizures or not.  Some research I had read, pointed to a clear association between MS and  a greater chance of having these types of specific motoric seizures. 

 

When I went to see a neurology nurse she told me that she had seen folk who were experiencing what looked like seizures to her but, it turned out to be caused by MS.

 

I am just relating my experiences.  I would love to know the answer too. 

 

Please do come back and tell us what your doctors had to say.  I am most interested.

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