Monday, June 23, 2008 Beverly A. Duvall asks

Q: I just had a tremor so bad it felt more like some kind of seizure. Is this to be expected?

I am a 48 year old female who is living with the last stages of remitting/relapsing MS. I have had MS since I was 24 years old.

I had a severe tremor "seizure" the other day. I want to know what caused it and is this something I will be struggling with for now on?

It really scared me; I was feeling different, very wierd and took a clonazapam just to be safe. Not only was I tremoring severely with my legs, arms, and head but I was incoherent and didn't know what was going on. It was as if, I had been anestethized and could hear mumbling around me but could do nothing about it. Once home, I laid in been and slept for 40 hours.

My daughter works were I do and she was called by one of my co-workers to come get me and take me home.

Thanks,

Beverly A. Duvall

BAD106@live.com

I still feel weak and my head is still disconnected. I have an appointment with my MS doctor tomorrow.

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Answers (3)

Lisa Emrich, Health Guide

8/26/08 2:25am

Hi Beverly,

I just came across your question. It sounds like you've been undergoing some scary stuff. And although you've already seen your neurologist by now, I thought I'd share this with you.

A friend of mine who was diagnosed with MS less than a year ago was asking me about seizures and MS. She was experiencing something similar to what you describe. Her neurologist treated her as with a relapse and prescribed something to address her symptoms.

I'd personally be very interested to learn what you found out, especially since I know very little about the seizure-like symptoms that sometimes come with MS. So come back and give us an update when you can.

Thanks,

Lisa

Merely Me, Health Guide

9/ 3/08 5:39pm

Hey Beverly and Lisa

I am that friend who experienced maybe something similar to what you are going through. I would feel a surge in my head, followed by tremors in my right arm and especially my right leg. My limbs would contract and release rather violently. A friend of mine who has three children with epilepsy, was very concerned for me.

I went to get an EEG and my scan came back clean. I was told by my friend that this doesn't rule out seizures but the doctors are telling me that this was an MS episode and not a seizure. When I researched the literature, it was very unclear as to whether people having MS can experience myoclonic seizures or not. Some research I had read, pointed to a clear association between MS and a greater chance of having these types of specific motoric seizures.

When I went to see a neurology nurse she told me that she had seen folk who were experiencing what looked like seizures to her but, it turned out to be caused by MS.

I am just relating my experiences. I would love to know the answer too.

Please do come back and tell us what your doctors had to say. I am most interested.

PD daughter

2/27/11 10:21pm

My dad has Parkinson's and is experiencing a seizure-like tremor very similar to what you are describing. Like you, we are not completely sure if this is part of his disease process and whether he can expect to experience this from now on. He had an EEG done over a 3 day period and it was clear that there was heavy brain activity during these episodes which happen several times a day and last anywhere from 15-30 minutes per episode. These episodes are in addition to his "normal" resting tremor that seems to be more consistent with Parkinson's. I've been wondering if it may be a side-effect of one of the many drugs he's on, but now that I've seen your post, I wonder if he may have MS in addition to Parkinson's. Does anyone know if Parkinson's and MS share similar disease process and/or medications?? Weird that two diseases would present with this same strange seizure-like tremor????

Q: I just had a tremor so bad it felt more like some kind of seizure. Is this to be expected?

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