I just had a tremor so bad it felt more like some kind of seizure. Is this to be expected?
I am a 48 year old female who is living with the last stages of remitting/relapsing MS. I have had MS since I was 24 years old.
I had a severe tremor "seizure" the other day. I want to know what caused it and is this something I will be struggling with for now on?
It really scared me; I was feeling different, very wierd and took a clonazapam just to be safe. Not only was I tremoring severely with my legs, arms, and head but I was incoherent and didn't know what was going on. It was as if, I had been anestethized and could hear mumbling around me but could do nothing about it. Once home, I laid in been and slept for 40 hours.
My daughter works were I do and she was called by one of my co-workers to come get me and take me home.
Thanks,
Beverly A. Duvall
I still feel weak and my head is still disconnected. I have an appointment with my MS doctor tomorrow.
Hi Beverly,
I just came across your question. It sounds like you've been undergoing some scary stuff. And although you've already seen your neurologist by now, I thought I'd share this with you.
A friend of mine who was diagnosed with MS less than a year ago was asking me about seizures and MS. She was experiencing something similar to what you describe. Her neurologist treated her as with a relapse and prescribed something to address her symptoms.
I'd personally be very interested to learn what you found out, especially since I know very little about the seizure-like symptoms that sometimes come with MS. So come back and give us an update when you can.
Thanks,
Lisa
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Hey Beverly and Lisa
I am that friend who experienced maybe something similar to what you are going through. I would feel a surge in my head, followed by tremors in my right arm and especially my right leg. My limbs would contract and release rather violently. A friend of mine who has three children with epilepsy, was very concerned for me.
I went to get an EEG and my scan came back clean. I was told by my friend that this doesn't rule out seizures but the doctors are telling me that this was an MS episode and not a seizure. When I researched the literature, it was very unclear as to whether people having MS can experience myoclonic seizures or not. Some research I had read, pointed to a clear association between MS and a greater chance of having these types of specific motoric seizures.
When I went to see a neurology nurse she told me that she had seen folk who were experiencing what looked like seizures to her but, it turned out to be caused by MS.
I am just relating my experiences. I would love to know the answer too.
Please do come back and tell us what your doctors had to say. I am most interested.
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