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Hi, I have secondary progressive MS and found this by looking up Dr. Sadiq in NYC who is my Dr. I LOVE him and his staff. I was dx 12 years ago, and have been to many neuro.'s....2 are also "top" guys. This is the 1st time I feel like I am actually being treated for MS. Sadiq is all about communication and using a treatment that fits the person, not just wantonly trying things. I've done all the injectables, Tysabri, IVIG.... I had problems with them all and was labeled as a "difficult patient". I followed Tysabri since the research and even bought stock in Elan, so I wanted it to work too more than they. This attitude from the Dr. just exacerbated the issues I already have of being a "hypochondriac" in my family....this from my father the Dr. too. I have said that my symptoms started when I was a teenager and no one believed me. Even after several severe flare ups, no one believed me. After my initial 2 hour visit w/ Sadiq, during the 2nd 2 hour follow up visit Sadiq had gone over all the my information, history, MRI's, etc. and agreed that my MS began after a bout of mono at 15. He gave me his cell # and told me that when I think it's silly to call him, that's when I should call. I now have a "team" at his center. I have a Physical Therapist that is nothing short of amazing, a cognitive neurologist, a counselor, a naturopath, and an incredible, compassionate staff. When I was given a rx to have a second urinalysis done locally (i'm in nj) and was too sick to get there right away, the office called me because they had called the lab and they didn't have results for me. They don't let me slip through the cracks and are kind about it. Having cognitive/memory impairment, this is a real asset for me.    One thing that has come up is diet. I am working with the naturopath on that. One thing Sadiq told me is that everyone who has MS is vit. D deficient. I was deficient in D and B12 (even though I inject b12 every month). Now I take 1000 mgs of D and inject b12 weekly and then we will retest. I had my first intrathecal methotrexate treatment and so far no noticeable changes. Sadiq just wants to try to lower my immune cells in my cns which were way over 30,000.....a high normal, I believe, is 10,000.   The cognitive neurologist referred me to a research program for cognitive impairment at Kessler Institute and will be able to use the testing info for my treatment, which avoids having to endure another long testing process, while at the same time contributing to the exploration of finding a way to remediate the cognitive impairments in MS. I also get see functioning mri's of my brain which I just think is cool. I'm a geek for that kind of stuff.   The physical therapy doc has referred me to a vestibular specialist also at kessler, and believes that he can help improve my balance issues. Luckily the two things I love are great therapies for MS......yoga and hippotherapy (pt on a horse).    Hope maybe something in this little bit of my story is helpful to someone.   I will close with one of my favorite quotes...." Strength is not physical endurance, it is indomitable will." Ghandi   Best,   Maria 
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