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Hi, I was diagnosed with primary progressive christmas eve of 2007 at 12:30 lunchtime and then my husband and I were wished a happy christmas, the appointment lasted for 15 minutes. Since then I feel that Doctors dont listen all they seem to do is say theres nothing out there for ppms. I become very low in mood and frustrated as there was no support offered to my husband either. I have gone from being very active to always feeling drained, using 2 sticks if not the chair and I have only ever had 3 appoints in that time with the neurologist. Im not prepared to just sit back I dont want to learn to live with ms, it has to learn to live with me. But I am running out of ideas, I have asked for physio but have been told im to far gone. My husband and I went to so called support group, never again, it was more like a waiting room for god. I am only 34. If you find something useful, please share.
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