Hi Donna I am the Father of a Daughter that was diagnosed with MS primary progessive around 2004 and  I also feel there is not much being done to help the MS Patients unless you have money and lots of it. Example when my daughter was first diagnosed in the poor peoples hospital clinic at the hospital they offered all kinds of treatments and she should stay in the hospital for a months for more treatments but when asked what insurance she was out of the hospital in 5 minutes. I have browsed the internet always looking for more news and srtill haven, found any thing good luck to all of you.                                                                       Father and Daughter