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I am also always searching the internet for research and info. I was diagnosed with "probable MS" 20 years ago when I collapsed when I got out of bed. 30 minutes later I could stand. I immediately was referred to UT clinic in Houston where I was assigned to a doctor just starting out. Her name is Michelene McCarthy. She told me that I had two choices: either sit and wait for the wheelchair or get out there and do everything that I wanted and live to the fullest. I chose the latter. I got my Masters, was quickly hired by a college and within 3 years was dept. chair. I learned three languages, traveled far and wide and also teach. Now, this was done with a lot of sleep, a lot of rest and an OK for what I could do. I take Lyrica for muscle pain, Elavil and Tramadol for pain as needed. The Elavil seems to stop the tingling and puts me to sleep. I have taken 10 mg for years. Last meeting with my neuro, I explained that I have had this bout of spasms, pain etc for 10 monthes. Did he think I needed to go the Beta Seron route? Well, he told me that this is for Relapsing Remitting and I am not. And from that I concluded...This last and worst of all bout happened after I had my very first HERPES attack and it was in the cornea of my eye. It had no residual effects but maybe my taking Valtrex at times helps out? I do not know...any ideas out there? Some treatments listed in this group DO work because I found them trial and error. For example, Vitamin D. I see a difference with 3000 mg per day. It is the new standard dosage. Also vitamin B12. I eat only unprocessed food whenever possible and when I stopped drinking diet Coke...well, 24 hours later there was a change. I'll never drink or use aspartamine again. Read on the net about that and MS. Again, I found this out by trial and error. I do mild exercise like Yoga, Balance Ball and swimming. I try to take every day as it comes. If I could ever find Dr. McCarthy [I think she is in Florida] I would thank her for pushing me to a better life than I thought that I could ever have with this crappy disease. I'll keep reading these posts. They are very very helpful. Linda
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