Reply to an Answer

In response to:
Hi Donna, I just feel like talking.I was diagnosed in the early 90s with PPMS.it has been a long hard road. I was in my early 30s with a tingling in my knee that use to drive me insane. I was very active, the outdoors type of a guy. After a zillion test I was finally diagnosed. I didn't even know what multiples sclerosis was. Boy, did I learn fast. no matter how hard I tried to stay active, it just didn't happen. Now I sit in an electric wheelchair, my legs are bent and won't straighten out, my hands are curled up into a fist, I cannot turn myself in bed at night and my problems go on and on. These problems I learned to deal with, but the problems I'm having a hard time with are the emotional problems. I have four boys. I had always dreamed about going to the park with them and playing ball, riding bikes, building snow forts and snowmen, roughhousing etc. etc. etc. instead, I had to sit here and watch them grow up without doing what I dreamed of. I couldn't even teach them how to ride a bike. not only did I miss out on them, but they also missed out on me. Now I have a grandson, he is so cute, he will light up the darkest room. I want to pick him up and nuzzle him so bad. I see other family members do it, and I see the way he laughs and giggles, and I get so mad, not at them, but at the fact that I cannot do that. it has been a long hard road. The physical part is terrible but something I learned to deal with. The emotional part is something I am having a hard time with. All the things in life that I've missed out on. I can't even roll over in bed and snuggle with my wife on a chilly night. I need help with everything I do. I would like to talk more, but it is dinner time and time for me to be fed. Like I said in the beginning I just wanted to talk. Thanks for listening
Subject:
Comment:

SIGN IN | REGISTER NOW

Create an account with HealthCentral. (Why?)

WHY REGISTER?

  • Connect with a supportive community
  • Get answers from Experts and health professionals
  • Save and Share your favorite articles and blogs
By submitting, I agree to Remedy Health Media's terms and conditions.