donna   this was an old posting so please excuse my late comments. my name is jim and i'm 60 with pp diagnosed in about 2000. i'm happy to report i'm still ticking so i guess that's a positive milepost i've passed for a kid like you. i still work,drive and manage to get around. it's a struggle for sure though and you must be prepared to battle. for me the problem has been primarily the right leg which just doesn't like to come along with the rest of me. as you've probably learned from your own experience pp is a tough one with no drugs yet found to stop the progression. there are lots of drugs to help cope with symptoms that your dr. can help with such as baclofen for spasticity and lyrica for pain. i'm going to suggest you exercise and stretch as these two are key to maintaining strength and movement. shoot me an email any time. i hope you keep fighting on.   jim phipps