I wish you all strength and compassion for yourselves, your loved ones and caregivers on this most difficult journey.   I think you will find answers to more of your questions at these links.    http://www.nationalmssociety.org/about-multiple-sclerosis/living-with-advanced-ms/index.aspx   On this page, please find the document listed below the main article and video, called "Advanced MS: a guide for families" .   Print it off and refer to it often as things change.     for those in the UK, there is a similar link: http://www.mssociety.org.uk/downloads/MS_Essentials_16_Support_for_people_severely_affected_by_MS_-_web.8df5f599.pdf   Read both, as each one has important info.   to read more about Palliative care (things to make the person feel better, but do not count as a treatment or cure) :   http://www.mssociety.org.uk/about_ms/care_and_support/support_for_people_severely_affected_by_ms/palliative_care.html