Hi to fellow Primary Progressive MS persons, I am not the patient but my significant "domestic partner" Tom is.  We just got back from Mayo, prev. at Johns Hopkins, trying to get a diagnosis for 3 years.  Mayo  is confident it is PPMS.  It is nice to get some sort of diagnosis but sad there seems to be no drug to help.  Tom is getting steadily worse..affecting primarily his left side (leg and hand) and he is starting to the "the feeling" on his right side.  He now has trouble mowing the lawn and walking any great distance.  He has long given up vball and running.  He is nearly 51 and was a very good athlete.  I would very much like to communicate with other sufferers of this disease.  I do not know what it is like to have the disease but I know it is very hard to watch somone you love have it.  Any support websites etc., would be very helpful. Thanks so much and God bless, Terri