I've grown quite cynical about the medical input - too often it seems to me to be a ruse for a doctoral student or a college to gain a soft grant - the money furthers their careers but doesn't help MS sufferers. The existence of protocols such as standard neuro tests, MRIs as well as referrals to social support groups (which are good) masks the fact that the patient is on a long journey - one which enables the neourologist to tick the boxes and cover themselves from lawsuits - but which cannot be a perfect fit for each person.  I've had PPMS for 20 years and these days, apart from checking in every five years or so for an MRI and re-evaluation of medication, the best strategy I know is to live in the spaces around MS - before they too are compromised. Very much a "seize the day" attitude with only moderate expectations for medical studies. I've seen dozens come to nothing in 20 years. I'm still hopeful but it's also important not to waste time and chances while you still have them.