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I saw your post and I too was diagnosed with RRMS in 96. I worked until I was forced to retire in 12-11 after already being down for a year. I have been a prisoner in my home for almost 2 years caught between being able to walk or having a walker. Apparently my MS progressed to PPMS. Did the first ACTH injections right after I had my attack 2years ago and I came back better than ever. Though ok we did it again. Went back to work for a couple of months part-time and told them I'm ready to come back full-time. The very next day I was in the ER in so much pain in my neck and spine I was passing out. No one knew what was going on so they gav me dilaudid and that new nerve pain medicine and sent me home where I spent the next couple of weeks on the couch passed out on those drugs and I haven't been able to walk since. No Dr. Can tell me what happened. They just look at me when I explain the neck episode and say hum....So frustrated because there is no treatment and I feel caught in the middle of really needing a power chair but not willing to accept it. I guess it's my pride that's making me a prisoner. I feel like it I sit down in that chair it's over but at the same time I can't leave mt house if not. God I pray for miracles for us all. I think if your rich or influential you can get help now. Take Mitt Romney's wife for example. I see her on stage in heels walking around normal and Jen talking about how hard it is. It makes me laugh. She doesn't know what hard is. She won't tell what her treatment s. I've emailed her. All she says is I mix Eastern and Western. If it were just Accupuncture I think she would say that. So what is her treatment. She probably has PK treatments in that Auyervadic center in MA. that cost $5,000 every month. There are only 2 in the united states. The other is in Iowa but its not medical it's just a sa. The one in her state is for sick people. Who has that kind of money? Sorry for rambling just frustrated. Whenever I was always able to get back to work I always recovered with a little disability left but now I can't recover. Somebody needs to help us with this PPMS. Everyone gets there e entually. Thanks for listening. Frustration.... What is your situation like with your health? I have a 1 1/2 yr old Grandon and another on the way and I can't pick him up or walk with him or play with him and he doesn't understand. It hurts when I see my ex's wife pick him up and sling in around or my som in laws mom picking him up and playing and taking him to Toys R Us and I can't even put him in a car seat and drive. This is awful. We need some help. I believe just like someone else posted the cure is on a shelf somewhere. How long has it been since anything has been cured? Not since being sick became. Gold mine for Dr.'s, Insurance, and Drug Companies. We're so much more advanced than when we found the cure for Polio. We're not idiots. They have the cure but until we pay Dr,'s like mechanics we'll never get well. You pay a mechanic when he fixes your car. We shouldn't pay a Dr.till h fixes us. That's the way it's done in China. That's why it's so over populated and by the way no MS. What has our Country come to when it allows all this sickness and suffering.
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