Terri, I feel your pain! My husband (50 years) also have PPMS.  It is very hard to watch my hubby steadily decline and go through the physical and mental frustration of this desease.  My husband was very atheletic and now is not able to run and walks with a cane.  He is still trying to work and we are working hard at maintaining a life that is somewhat normal.  I try to be supportive but respectful of his wishes to continue his life as normal as possible.  I find I am his cheearleader and reminder of "time to take your pills."  Our neuroligist told him to keep as active as possible and we find that if he rides an exercise bike for 10-15 minutes everyday, it Wakes Up his Nerves and he feels it is easier to walk (for awhile).  You may email me anytime if you need a shoulder or just someone to vent to.  I KNOW what you are going through and am happy to listen.  My prayers.  Denise