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Monday, November, 30, 2009
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Hi Donna. I read your question and had to respond.  I too was diagnosed with MS in August of last year. We need to make sure we have cheesecake or something to celebrate that anniversary. All joking aside, I have multiple lesions and have switched neurologists because I was feeling the same way that you are--not getting anywhere. I have been told that I am functioning well for the number of lesions and where they are located. I am on all the same meds as you are (it is great to meet you) I get frustrated wondering if there is anything else I can do to feel better.   It sounds like you are doing all of the right things with your vitamins and staying active. Have they put you on any MS therapy? I read somewhere about the IV drug Tysabri being used for primary progressive MS. That is what I am on--3 infusions so far. I was told that I probably have RR, but I still am not sure what they use to determine the label they give us. I will be 40 in August, and somedays it is hard to think of working full-time for too many more years. I just take it one day at a time.   Don't feel bad about calling your docs to get more answers. You are your best advocate---that is what I am finding out through all this. You deserve answers and cannot sit idle in this disease. I was so thankful when I switched neuros and kind of proud that I made a step to be my own advocate. I still have not much faith in my general doc, but I will take MS info to her to read. When my legs feel like concrete, I diagnose myself with an infection and I am usually right! Then I tell them what to prescribe. I might actually send them a bill! Have a great day and keep your chin up.   Shelly
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