Thanks so much for your reply. When I first went to the Dr. regarding my symptoms I was very "casual" in mentioning the tingling in my left leg. It was not painful, just annoying. It was a spot on my calf about the size of my fist. The spot "burned" and I would keep checking to see if it was inflamed and red; it wasn't. Because I hadn't seen a dr. for many years, problably 10 or 11, and because I was I was 53 at the time, she decided I needed to have a physical. During the routine physical and subsequent urine and blood tests, she discovered I had low B12 and attributed the tingling leg to my low b12. They also discovered I had a tumor in my adrenal gland. I live in a very small town and have to be sent out of town (3 hours away) to the nearest city. This city only has one MRI machine and the demand is high. From the time the tumor was diagnosed, to the time of my operation to remove the adrenal gland, was 9 months. During this time, I also had an episode of blurred vision in my left eye, both legs felt heavy, and shock like sensation starting from my head going down to my feet. This lasted for about two weeks. When I mentioned this to my dr. she said it was probably caused from the tumor in my adrenal gland, and to wait until the tumor was gone, and see how I felt after that. So I kept quiet. I waited for a year after my right adrenal gland was removed to see the dr. again hoping my symptoms would disappear; and most of them did. So I thought that was the problem. 2009 in October, I had a very bad month. Both legs started acting up again, felt dizzy, had strange sensations starting from my waist and moving down my legs...over and over again...like shivery feelings, waves moving through my legs. But it was the vision thing that finally moved me to see the dr. For one week my vision was blurry in the left eye. She thought i may have had a stroke, so sent me for the first mri of the brain. Clean. They were not looking for MS. I want to add, i have no symptoms in my upper body. She then mentioned MS. Because of my age, she said it was unlikey I would have RR MS, I would have had symptoms before this, but perhaps Primary Progressive. I also have frequent bladder infections and no sex drive, but according to her, I don't fit into any category because she says my symptoms are "too diffuse" I think she agreed to request the cervical MRI to appease me. She also mentioned fibro. By the time I was fitted in for the cervical MRI, most of my symptoms had disappeared except for the spot on my leg. There are only two neurologists in the city I go to...they are also extremely busy. When I went to the neurologist for my "consult" and he did some testing in his office. No deficits. He then told me that because both brain and cervical (without contrast) mri's were clean, I don't have MS...goodbye and have a nice day. End of appointment. From everything I have read, I do not have Fibro...my symptoms are not consistent. Because of the tumor, I have had many tests and blood tests that would have showed many other reasons why these things are happening to my body; thyroid etc. I am not looking for MS...I am looking for an answer to why these strange things happen to my body...they come and go. Most things disappear for several months, and then, they come back and last for about a week or so....funny floating lights in my left eye when I move my head...the spot on my leg is no longer hot, but cold, and feels "wet." I do not go to the dr for many of my symptoms, and become tongue tied when I do...
I am fairly confident that the MRI was not done for thoracic or lumbar...but I could be wrong. And because the neurologist was so "dismissive" while I was there, did not go into any history or ask any questions. So, what do I do now?
Is it possible to be in the beginning stages of MS and the lesions just haven't showed up yet?
Is it possible to have RR at my age?
Would it have made a difference if the MRI had been done, with contrast, when the symptoms were at their worst?
I don't like needles...and if the MRI's came back clean, why would they bother doing a LP?
I am frustrated, but will remain hopeful that sooner or later, they will find the answer.
Take care everybody, and thanks to all that respond.
Deb