As I have just been diagnosed I am finding the slowing up a bit of downer,nothing major when I try to anything remotely physical its like running up a sand dunne ,the when you stop you slowly slide back down.I suppose short walks and then a seat look's about it for the time being
- Resources
Q: I have ppms should I just lie down when I feel tierd ,when I do I seem to sleep for a long time even
Answers (2)
5/17/09 4:35pm
Norrie,
You may want to discuss fatigue with your neurologist. So often I get the "I must lay my head down RIGHT NOW!!! and sleep all afternoon" symptom. My instinct tells me that it is good to you to stay as physically active as you can comfortably. That doesn't mean wearing yourself out, but taking regular breaks during a short walk. It's the accumulative effect which is important. Perhaps getting some specific help and advice from a physical therapist would be a good idea. Ask your doctor for a prescription.
5/21/09 6:23pm
Hi norrie,
The slowing down thing really is a bummer. I was diagnosed long ago but find I still do not allow enough time for things. My estimating ability must be on pre-MS time. As far as fatigue, Lisa hit it on the head. Your doctor can provide medication or vitamin B12 that may help.
If it's sleepiness, you have joined those of us who have excessive daytime sleepiness or somnolence. A short daily nap may help -- maybe a couple of hours or as short as 20 minutes. That can be inconvenience. Sometimes I can just close my eyes for about 5 minutes and I feel refreshed.
Sometimes people use a wheelchair part time to reduce the tiredness.
II like your "running up a sand dune" description. It makes it very clear.
Good luck.
Important:
We hope you find this general health information helpful. Please note however, that this Q&A is meant to support not replace the professional medical advice you receive from your doctor. No information in the Answers above is intended to diagnose or treat any condition. The views expressed in the Answers above belong to the individuals who posted them and do not necessarily reflect the views of Remedy Health Media. Remedy Health Media does not review or edit content posted by our community members, but reserves the right to remove any material it deems inappropriate.
By norrie mcniven— Last Modified: 12/26/10, First Published: 05/15/09
Featuring Content From:
By using this service, you accept our Terms of Use. Please read them. The consumer health information on is for informational purposes only and is not a substitute for medical advice or treatment for any medical conditions. You should promptly seek professional medical care if you have any concern about your health, and you should always consult your physician before starting a fitness regimen. Copyright © 2012 Remedy Health Media, LLC. All Rights Reserved.
