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Wednesday, December, 02, 2009
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More Advice than a ? about getting hot and MS

Candy lee
01/03/09
Candy lee
Topics:MS and HeatTinglingNumbnessHolidays

I hope everyone had a happy holiday and grand New Year. Lisa you have to be more careful when you cannot tell the difference between hot and cold. I did that one time and had some burns on my arms from getting in the shower when it was way to hot.

 

My situation is one that I imagine others may have. Every Christmas we got to Bill's parents in Ohio. (we live in North Carolina) His parents are getting older, and his dad's health is really bad. They keep the house set on about 80 degrees. I love to go and also dread to go because of the heat. I actually take a small fan with me and I carry it around the house. It may seem rude, but I can't help it. I sweat the entire time that I am their. I get red in the face and loose all energy.

 

I end up sitting down and not helping in the kitchen like I shoud. It makes me feel bad because his mom has become a 85% caretaker for his father. I feel as though his mom and dad don't understand about my MS. His dad actually made the comment that he was going to help in the kitchen, because she needs help. Bill is busy doing things around the house and taking care of both of our dog's. For about 5-6 past years I have gone and helped, not careing about hoe hot I get. For the past several years I have really taken care of myself.

 

I still have some problems when I get home because I was in the hot for so long. SO for anyone who has the same problem that I have had, PLEASE explain your situation to the family, hopefully they will understand and you will not have to pay for it when you return home.

 

Candy

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Lisa Emrich
Lisa Emrich
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Musician, Patient Advocate, and Founder - Carnival of MS Bloggers

Lisa Emrich is a professional musician. She happens to live with...

Saturday, January 03, 2009

Candy,

 

Thank you so much for words of wisdom.  I have learned to be much more careful with temperatures and sharp objects.  It would be nice to no longer have the numbness which I do in my hands, but I'd be surprised if it left completely.

 

I also understand about the temperatures in other people's houses.  My Sweetie's Mom like to keep her house extra cold, and when I visit over there, my arthritis and spasticity act up. 

 

I can't imagine spending time in a house which is 80 degrees.  That sounds like torture.  I'd be tempted to start opening windows to let some cool air inside.  With it being that hot, and for those of us with heat sensitivity, it would be very difficult to help out at all.  I become a useless, wet noodle in sustained heat like that.

 

So sorry that your in-laws keep their home so hot, even when you are visiting.  That makes it hard for you to jump in with full energy.  Telling our families what we need to help us fully participate is good advice.

 

Thank you, Lisa

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