• maggieames maggieames
    June 29, 2009
    When to stop Tysabri...
    maggieames maggieames
    June 29, 2009

    Is there any way to know when you should stop the tysabri treatments prior to PML? I certainly do not want to be diagnosed with PML and I'm sure I'm not the only one. I've had 27 IV infusions...the latest death (I think) had 35. Is there a time to stop the treatments??

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  • Lisa Emrich
    Health Guide
    June 30, 2009
    Lisa Emrich
    Health Guide
    June 30, 2009

    Hi Maggie,

     

    This is truly an issue on many Tysabri users' minds.  I don't know the answer and I'm not even sure if the specialists know the answer.  Talk to your neurologist.  Discuss the pros and cons.  Discuss what symptoms to really look out for if PML is suspected.

     

    I've read (through the internet grapevine) that there are patients who are taking "Tysabri vacations" but I do not know anything specific about that.  By the way, how are you doing on Tysabri?  Is it working well for you?  If so, that is great!!

     


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