Wednesday, May 30, 2012

Saturday, January 17, 2009 kimzinnie asks

Q: how is a person wth MS supposed to exercise if a change in temp makes her dizzy and uncoordinated?

I have SPMS and fibromyalgia (fun stuff) and if I exercise I get disoriented and lose balance and look like an uncoordinated idiot- if I do a water aerobics/walking class, I lose leg stregth and sometimes do not have control (and I cannot swim). I tried to do step classes again and that was dangerous-- I cannot do what I used to. And when I walk a lot, disorientation starts and my right thigh feel like a rubber band is being stretched to its limit. Having fibro and MS is a double edged sword since temp is an issue - do any of you have ideas? I want to exercise and move and the only thing I can do is a recumbent bike it seems. OOPS forgot about how tired I get-- I work all day then crash...

 

Thanks for your help,

Kim

 

p.s. not on any meds anymore 

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Answers (2)
Merely Me, Health Guide
1/19/09 9:40am

Hey Kimzinnie!

 

This is an excellent question and one that I intend to fully explore in a post sometime.  I hear you!  I used to exercise or be active most days of the week.  I like to walk, hike, bike ride, and exercise.  One day when my MS was at its worst I was doing some step exercises at home and my one leg got so stiff and my balance was off and I dang near hurt myself falling off the thing.  Of course I was furious about this as well as disappointed.

 

And too...you make a good point that exercise can make you feel hot and then this starts the MS symptoms to start up.

 

First of all you gotta stay cool when you do what you do.  I have a fan nearby for all times.  When I exercise at home that thing is blasting.  Also you need to stay hydrated.  Have cold water nearby or else a cup of ice.  Take breaks as needed and try not to get overheated.  I know...easier said than done.

 

As far as exercise itself there are many different options.  You have to find one that works for you.  I would start by calling the National MS Society to get information from your local chapter about any exercise classes they may sponsor.  Here is that number:  1-800-344-4867

 

I know that mine has a specialized swimming class and my local chapter gave me a scholarship to join a gym.  They offer so much.  It is an excellent way to start.

 

Other things to try....when I went to an MS conference they had a little tai chi lady instructor come in to demonstrate this form of exercise.  She was phemonenal.  I like tai chi because it is slow stretching movements...which is going to help with spasticity.  Tai chi is something that everyone can do a little bit of...even if you are in a wheelchair.  There were participants there who were disabled and didn't have a great range of movement but they simply did what they could.  Tai chi also incorporates a philosophy which may help you psychologically.  I am about to sign up for a class myself soon.

 

Yoga is another choice.  There is a book out...I need to find the exact title....but it is all about adapting yoga for people who have MS.  They even have photos of all the moves incorporated through the book. 

 

I think any exercise which helps you to stretch...is going to be beneficial.

 

Lifting light weights is another thing you can try to build up your strength and endurance.  They don't have to be a lot of weight.  I have little tiny weights which are three pounds each.  I am sure they have them even smaller.

 

At the gym I love the eliptical.  I go at a slow and easy pace and if I get overheated I get off and take a break. 

 

I could go on and on...this is a topic near and dear to my heart.  But I will stop here for now.

 

I hope this helps some.  I would also strongly recommend asking your doctor what types of exercise is helpful and safe for you. 

 

Thank you for your question!

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7/ 7/11 8:39am

It sounds like you have tried a lot of things. One thing you may not have tried is DEEP WATER aerobics. You do not have to know how to swim. Your hair barely gets wet! In a class with a lifeguard present, you wear a floatation belt mid body, and go to the deep end. The pool should be about 80 or 81 degrees, otherwise you will get too hot. Many pools are overheated for kiddy lessons, arthritis and so on. But some YMCA's or clubs will have a pool with colder water for lap swimmers and deep water aerobics or a form of water Tai Chi, called Ai Chi. (Ai Chi is done in deep water with belt, but is often done in warmer water as it is not aerobid and is very slow moving, great for stretching and range of motion.)

 

Balance is not an issue in Deep water aerobics classes, as you are not touching the bottom, and the floatation belt keeps you upright. However, you do need to have enough strength to keep yourself upright as possible, with your tailbone pointing down to the floor of the pool. Deep water workouts have a lot of core work, as that is what is helping you stay upright. Find a class at a YMCA or similar place, as it is hard to know what to do once you're in the deep water with your belt, unless an instructor is there. 

 

The class will have water walking, jogging, a move called cross country skiing, which is a long striding motion with pretty straight arms and legs...and other stuff where you use your hands, with or without dumbbell type floats or webbed gloves. This helps strengthen uppper body. There are even ab exercises you can do in the class. 

 

People who have not done deep water aerobics, look at classes and think that no one is doing much, because there is not much to see....it's all underwater! The water supports the body, but it also creates a lot of resistance to push against and this is why it is a good workout with no impact on your joints, while allowing a greater range of motion than the same thing on land.

 

You can make the movements smaller for less resistance, open your fingers instead of having a scooping hand, and can go at a slower pace than the count the instructor might be on. 

 

But it is quite strenuous, and I would recommend going slowly and carefully the first few times, tell instructor you are new, have MS (if they know what that is, but not all will know anything about it), have balance problems, overheating problems, etc. Bring water and keep it on the side of the pool. 

 

While exercise is good for everyone and is often touted for people with MS, I realize that finding MS adaptations for effective, safe and fun exercise is very limited. Don't let people tell you that exercise is the answer to all your MS problems. But it can help, if you find something you can do and enjoy doing. 

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By kimzinnie— Last Modified: 07/07/11, First Published: 01/17/09