Hi Koni,

I wish that I knew someone personally who had a similar situation to yours.  I would go round them up and have them come talk to you.  However, I don't.  Sorry.

Although it is sometimes difficult to figure out whether to completely trust the word of the doctor or to trust the research which we empowered patients do on the internet, ultimately the balance is somewhere in the middle.  Working with your doctor in an open way is best.

Have you let your doctor know your reservations?  Have you asked detailed questions related to the use of LDN?  If he is willing to prescribe it (many doctors will not), I presume that he is experienced with the use of the drug.  Or at least I would hope.

I'm sorry that I'm not providing any concrete help.  But I'll try to see if I can locate someone in a similar situation.  It might take awhile though.  Hang in there.