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  • shakealeg June 02, 2010
    shakealeg
    June 01, 2010

    Hi LuAnn,

    The pharmacist told me that in the tests, patients who saw improvement in walking had been on ampyra from  2 to 14 weeks. That is a wide range! As you know, you have good days and bad days with MS-so it could take awhile to see results you are confident in. Are you taking ampyra, and how are you feeling? I started taking ampyra on May 5, after consulting with my neurologist. I wish you the best! Medication is always such a big decision.

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    • tereasa McCrady
      June 26, 2010
      tereasa McCrady
      June 26, 2010

      I don't know how long it takes to see improvement but I began Ampyra one week ago today and I don't see any difference yet. I think beginning in the heat of summer is going to be hard to tell because getting hot immediately zaps my mobility anyway. I am keeping my fingers crossed and hoping to see good results. Let me know  how you are doing.

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    • shakealeg
      June 27, 2010
      shakealeg
      June 27, 2010

      The Ampyra is definitely working-my mobility is better and so is the fatigue. I wish the same for you! It took awhile to see the difference. but now it is consistent and I have more energy - unless I am very tired or try to do too much. My husband has noticed the difference as well. I have secondary progressive MS, and I really didn't think I would see improvement in a symptom. It just shows me how important it is to stay positive and open to new ideas.

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    • tereasa McCrady
      June 28, 2010
      tereasa McCrady
      June 28, 2010

      Well thanks for answering, I think it is hard to judge the Ampyra when the heat is so bad. Getting hot makes my legs weak, so I could know more if it was winter. I feel fine, I think I am walking better and picking my feet up more. I have a tendency to drag my feet along. I have been doing water exercises and I think that helps also. I don't get the part about Ampyra giving you more energy. Do you see that difference. I have Provigil but I seldom take it. We are going on a cruise to celebrate our 40th anniversay in 26 days so I really pray that I am walking better. What are your symptons with MS ? Good taking to you. Tereasa

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    • shakealeg
      June 29, 2010
      shakealeg
      June 29, 2010

      Have a wonderful time on your cruise, and congratulations!

      I think I have more energy because walking is not such an effort. I do not mean to paint too rosy a picture-it's just that any small improvement is big to me.

      MS mostly affects my walking, and my energy. I use a cane all of the time, but out of the house I use a rollator. I can't drive because I just can't control my right foot well enough. It has been so hot here too-I live in Virginia.

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    • tereasa McCrady
      June 30, 2010
      tereasa McCrady
      June 30, 2010

      I think I see a defference also but it could be positive thinking. I go to water exercise classes and I think that was already making a big difference for me. I live in Southern Maryland, where are you in ? I  have 25 to get my walking up to speed for the cruise. I think the heat will get to me there also. I really hope that Ampyra works for you and your walking wimproves.

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    • shakealeg
      June 30, 2010
      shakealeg
      June 30, 2010

      You are close by! We are in Fairfax. We are off tomorrow to Ocean City, MD for the fourth. I am not a beach sitter anymore - too hard to walk on the sand, and too hot! - but I love to sit out on the balcony and read and watch the ocean. We have 3 grown kids, all married, and 2 little granddaughters, 6 & 7 years.

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    • Paula
      July 13, 2010
      Paula
      July 13, 2010

      first time for me to respond to someone who has secondary progressive.  I just started my ampyra on Thursday, July 8.  I'm trying to stay positive that this will help with my mobilty.  I was dx in 1998, and by 2001 i was wheelchair bound, so

      any improvement would be wonderful.  We are always looking for a quick fix, so I'll be patient and see how I feel in a few weeks.  If anyone is in my situation and has been on ampyra for over a month, please let me know if/any improvements happened.  Good luck amd God Bless,  pk

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