Hi Lisa,   I posted a few links for people looking for info on Advanced MS and end of life or end stage MS.   Once you get to the page, which is a main page for "Advanced MS", please see "Resources"  (in green box on right of screen)--- there are 2 guidebooks you can download with PDF : "Caring for Loved Ones with Advanced MS", and "Financial planning  for a life with MS".   Also on this same page are lists of info under "related pages" and "related documents".  There is all sorts of info there that people may need.      I am reposting the link, so people can find it easier. This link below will take you to all of the above info.    cut and paste into your browser if you can't click directly on this link.   http://www.nationalmssociety.org/about-multiple-sclerosis/living-with-advanced-ms/index.aspx