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I was before working from home - then I took a fulltime job , during my absence we have someone fulltime, plus three times a week a nurse coming over for rehab. She is a hell of a good manager with one phone she gets things organised, even her favourite hairdresser is around anytime. This , she can still really do - but being unable to do what she used to do in the yester years - is probably even more painful than the physical pain itself. The economic aspect is not really the big issue. I really have plenty of respect to all those who are fighting and struggling against this MS, to live the life at best. "She never gave up that maybe one day just as this terrible disease came, it might just go away." Even over the phone she never gave the smallest sign that she is suffering - what a great spirit! She is always in the best of mood to cheer others. What is most incredible - maybe few notice that; are those KIDS (not only mine) who are always ready to help - mum or dad. They never refuse. Many kids will missed their film or ther activities, telling their friends they have to be home, some are not able to go on holiday 'cause they have or prefer to be with their parent - and they can really cheer up those who are suffering. I have a feeling that those kids are the real champs.
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