Wednesday, August 19, 2009 MWMS, Community Member, asks

Q: Regular steroid injections to check the progression

Is there a regimen of regular high dose steroid injections like once a week or once a month to check the progression of the disease?

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Answers (2)
Lisa Emrich, Health Guide
8/20/09 9:01pm

Hi Reddy,

 

Other than the use of steroids for acute relapses, usually for 3-5 days, there is a treatment protocol called "pulse steroids."  With pulse steroids, the MS patient receives 1-day monthly steroid treatments to keep the MS in check.  Usually this is used when a patient has more active MS and/or has had more frequent relapses.

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tellnhelen, Community Member
8/20/09 9:47pm

Hi Reddy

 

For a few years of my MS I took a week of steriods once a year.  It worked well for me.  About 5 years in my doc swtched me to 3 to 5 days each month otherwise known as Pulse steriods that Lisa mentioned.  That menthod did not work as well for me.  Yes my energy/stamina and strength improved but I found myself "craving" the next treatment every 3 weeks.  I have also heard that some people can't make a move on a daily basis without their steroids (scary).  I haven't even mentioned the weight gain that comes with steroids (food never tasted so good).  So consider carefully.   I have since only used steriods when absolutely needed. Good Luck

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Caroline Hart, Community Member
9/29/11 5:03pm
Besisdes the weight gain, what benefits did you get from them? I just moved and met with my new Neurologist, he has suggested them to me. Reply
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By MWMS, Community Member— Last Modified: 10/01/11, First Published: 08/19/09