Monday, May 28, 2012

Friday, May 08, 2009 angela asks

Q: i have been diagnosed with ms yet i have had no medication as yet what do i do?

I have been diagnosed with ms yet the neurologist has not put me on medication.  Is this normal, I have been through all the tests, lumber puncture tested positive.  What happens next.

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5/ 9/09 12:39am

many will have opinions; here's mine  1. Pray.  prayer will help you be unafraid  2. Read,read, read and read more  With more info you can make informed decisons for yourself  There are  many web sites including this one with information.  I like

http://intelligentguidetoms.wordpress.com/  3.  Consult with your Doctor.  You need to read so you can make nformed decisons  Don't  blindly follow.  Don't be in a hurry to take meds.  Many people don't take them and are doing just fine.  Hate to say but there is no medicine to make this go away 4. Diet.  Check out Swank's Multiple Sclerosis Diet and The MS Recovery Diet.  These two basics willgive yopu some idea about food and MS.

Remember life may change but it's not over.  Stay loose Stay strong; Be determined to live a full life

5. Exercise.  If you're not on a program, start one asap.  Daily (at least 2-3 times a week.  I walk in the pool

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6/29/11 2:45pm

I agree with you. Prayer is the most powerful tool!!! I stoped taking injections. I felt that it was a waste of my time. I have a normal life, no relapses for 3 years and I feel great. Praise the lord!!

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5/ 9/09 1:40am

Hi Angela ~ If your neurologist has dx'd you with MS, they call him and tell him you want to be on medication, NOW.  Have you checked on line to see the different types that there are? Search a comparison of MS injectables and there should be several that will tell you the difference.  Esentially, they are same and the difference would be your preference on needle size, if you want intramuscular or sub-cutaneous...just under the skin...these have autojects to deliver the med so you don't have to directly use the syringe.  I hope this gets you started.  I personally started on Rebif.  It has an autojet, is taken three times a week...Mon., Wed., Fri. and is easy to remember.  It does have to be refrig.  After 3 years, I began having bad site reactions and had to quit it.  I then went to Betaseron.  I love it.  No refrigeration, it has an autojet, and is taken every other day.  It seems to be whatever suits your life style.  Good Luck.  I am very curious about what is going on with your neuro not putting you on medication right away.  That is totally contrary to all neuro practice.  I question your neuro's reliability and you might want to too.  I think I'd get my medication and start shopping if you know what I mean.  Willow 

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5/ 9/09 10:08pm

Sharpen your emotional tools. Educate yourself about MS and along with your Dr. decide which drug, if any, you want to go on. Stay cool, life will go on and you can still find happiness.

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The only thing that I can suggest is to look for a neurologist and ask him or her as to what type of ms you have and the type of medication you should be on.

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If you have been tested as positive as having ms & your neurologist hasn't put you on medication yet, then I would advise you to seek out another neurologist. Learn all you can about ms & the type you have. There are several types just type ms types into your search bar.

 

Corrina

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5/16/09 11:29pm

wow! My neurologist was talking to me about the different types of treatment when he just thought it was ms. if u are positive for ms its very important that u start treatments asap bc the longer u put off treatments the more damage it could be doing to your body. there are many treatments out there. please read upon these treatments and talk to your dr about them. also some companies have financial aid program for those who qualify bc the treatment are expensive. but please do some reasearch and talk to your dr. and if he dont start you on any treatments soon please find yourself another neurologist.

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By angela— Last Modified: 06/29/11, First Published: 05/08/09