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Monday, November, 23, 2009
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Why does MS make me constantly want to keep moving my limbs/trunk?

catlover1968
catlover1968
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MS'r, wife of Type 1 juvenile diabetic, "mother" to 7 indoor cats

I've had MS over 1/2 my life...I do my best to deal with it. My...

11/05/09

 I have a very hard time sittting still. Even if  I'm fatigued, sleepy, whatever, I have this constant urge to move around.

 I've started sleeping on the couch so that I wouldn't cause my Husband to lose sleep.

 Does anyone else go through this?

                               

                   

                                 Meg   

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Answers (3)
Lisa Emrich
Lisa Emrich
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Musician, Patient Advocate, and Founder - Carnival of MS Bloggers

Lisa Emrich is a professional musician. She happens to live with...

Saturday, November 07, 2009

Hi Meg,

 

I love your photo!!  I also love cats.  :)

 

It is possible to have restless leg syndrome along side MS.  There are meds which are very effective in lessening the need to move so much.  Bring it up with your neurologist the next time you're in.  Hopefully you can find some relief.

Denna74
Denna74
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Denna74 is Feeling better and trying to be more active!
Diagnosed April 28,2009

I am a mother of 5 children; 4 boys and 1 girl with ages ranging from...

Monday, November 09, 2009

I too have the urge to move.  I have never had it prior to being diagnosed.  My symptoms don't sound as major as yours but I feel like someone with attention deficit disorder.  I want to constantly tap my heel when I am sitting or move some how.  I am not sure if you are on any disease modifying drugs.  I am on Avonex and haven't looked to see if that may be a side affect.

Linda
Linda
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Linda is just living life.

Tuesday, November 10, 2009

Hi all, I am not a doctor, but I have years and years of experience with Restless Leg Syndrome (RLS).  I've had it since I was a teen and the older I get the worse it gets.  It's now in my arms and neck.  I take Mirapex (.05 x 3/day) and it really helps.  I suffered for years until a PA talked to me and diagnosed it as RLS.  Thank God for him.  So, ask you Neuro about Mirapex.  I also hear that MS and RLS may be linked.  Good luck.  Linda.

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