Where in the US can MSers be tested for CCSVI?
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7/ 4/10 12:22am
Hi Token,
There is so much information out there now about CCSVI. Some better than others, and honestly I haven't been able to keep up with it all. But I do recommend that you visit the This Is MS forum which has a section devoted to discussing CCSVI. The members there are on top of all the latest news, including who is and isn't doing testing outside of clinical trials.
3/20/11 9:12pm
Marie Rhodes is an RN with MS, also the 2nd person treated in the US for CCSVI. She has written a book on CCSVI, published by McFarland Health Topics. This book follows this journey of discovery and highlights related MS research that supports the theory. Referencing over 250 research papers published in the field of MS, it tells the MS story from a venous perspective. http://ccsvibook.com/
For interested patients it also includes a detailed section on how these venous issues could be treated highlighting concerns that patients should discuss with their personal physician. There are also 12 patient stories including several who were treated at Stanford in 2009 as well as the story of one of the patients treated by Dr Zamboni in 2006.
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By Token— Last Modified: 03/21/11, First Published: 07/03/10
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Thank you so much for answering my inquiry. I have since been tested thru Hubbard Found. in San Diego. I also have had 2 CCSVI treatments. I think this is the way for me to go because NO Side Effects. I have tried all the MS meds over my 30 years with MS. Thanks again.