Thursday, May 06, 2010 wayne asks

Q: what medication is there for secondary progressive multiple sclerosis.

What medication is there for secondary-progressive ms, i am currently only taking baclofen for spasticity and does not seem to do much , i am trying to get back to work as i am in need of an income, is low dose naltrexone an alternative.

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5/ 7/10 9:28pm

I have been on LDN since last October(09).  I decided to begin LDN after 10 years on Avonex.  I had a major flare in which I lost some function.  I was WAY dissapointed...so I started LDN after quite a bit of reaearch. So far I like it.  I have more energy and stamina.  I regained some sensation in my fingers too.  Most folks on LDN know that LDN alone will probably not be enough.  You must also do the diet, take vitamins and exercise.  It's kinda depressing but their are few to no meds designed for SP.  Most research is aimed at RR.  But who really knows.  Maybe those "initials" don't really mean the doom and gloom they attach to them.  Check out www.ldn.org

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4/22/11 2:56pm

I took mitoxantrone, brand name Novantrone in 2005 and although I could not complete the course of TX because my WBC got too low, it really helped!  As of 2 years ago there were no new observable MRI lesons since 05.  I think Tysabri is beign used, although I think it woudlo be off label.  I'm trying to find out if there is validity to the gluten, fat, dairy and sugar free diet. I think it is worth a try but sounds really onerous. 

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6/16/11 9:32pm

Hello I hope this note finds you relatively well and in good spirit. I also hope you will give the diet and exercise regimen a try.  I stopped eating red meat many years ago...I felt better so I kept trying different approaches to food, vitamin supplements and exercise.  While I have recently started Tysabri, I am definitely  continue trying the more natural approaches to managing.  Sometimes its good sometimes its not.  I just wanted to say that I DID/DO notice when I eat the right stuff, take my vitamins. and exercise regularly.  I still have it (MS) and  sometimes IT has me...(honestly).

 

I'm not gluten free but I am aware of my intake.  If I overdo my tongue swells and I get a cough.  Just be aware of sutle changes as you add or delete food from your diet.  Changes will not be great but small....these are clues to what's right or not for you.

 

 

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By wayne— Last Modified: 06/16/11, First Published: 05/06/10