Patti C i am glad to hear it has been that long since an attack,well a major one any way. we are on guard as far as this disease and there really is no answer. the only thing we can do is enjoy the absence of an excesberation and know what needs to be done if an onset occurs. jst because we do not feel an attack doe not mean it has not progressed so do not stay away from your docs for too long. type later......thelambsink@netzero.net

Pokey48

9/ 2/10 12:28pm

Enjoy it and live your life to the fullest.  Don't worry about tomorrow.  Keep taking care of youurself and be happy. 

Congratulations on your 2 years free of relapses!.

There is really no way to know when and if a new relapse will show up. I, for example, have been free of a relapse for 12 years now.

I have had, once or twice, during those twelve years symptom exacerbations that required a course of prednisone for a few days but they were not a relapse so, if you keep taking good care of yourself, eating and staying healthy, the sky is the limit.

I invite you to visit my MSers site at http://www-ms-multiple-sclerosis-symptoms.com were I provide some information that might be of interest and help you. Be well,

carl

10/18/11 2:16pm

hello, my name is carl.. i am going through my first epsipode(three weeks in) my MS seams very mild.. i am african american 5'11 and 175.. i maintain the swan diet for MS... my question is do you have any vision problems or nerve pain and fatigue? what are the absolute NO's as far as food? and most importanly, vitamins.. should i take calcium and vitamin d, b12 to help prevent osteoperosis and will it helpd my life experience? my doctor jus allowed me to take vitamins! some doctor...lol..

 congrats for your sucess and hope many years to come for you..god bless

Vicki, Health Guide

10/18/11 3:32pm

Hi Carl,

I think you are on the right track with the vitamins you have chosen - calcium, vitamins D and B12. You might benefit from fish oil as well.

 

Now, as far as absolute 'NO' foods, I don't think there are any really. Many people follow the Swank diet as you are. There are MS diets that say no glutens, no diry, no red meat; /But then there are other diets that include those items. I think if you follow a good healthy diet, you will be fine.

 

Many MSers have vision problems and nerve pains. As far as fatigue - well, I think around 80% experience fatigue. Keep your doctor informed.

 

Good luck to you, Carl.

Hi....I've just recently been looking for anything/anybody to relate to on my condition. I was "officially" diagnosed in Feb 2004 after an episode of optic neuritis (2003) started it ALL (doctors poking me;-).  Nonetheless, I've been on Copaxone ever since and don't pay much attention to MS as MY PROBLEM.  I don’t read, research or even understand it as a whole. Kind of an out-of-site out-of-mind thing;-)

So, after my yearly this year(last month) I've been looking at the question...WHY haven't I EVER had anything happen to me since 2003(optic nutritious)?  Am I just THAT lucky? Or, MORE hopefully, have I been misdiagnosed? I don’t know what to think?  It comes to me because, true to the sense, I wanted to LIVE and pursue a pilot’s license. But alas I cannot because of the scarlet letter I now wearL

Nonetheless....I’m perplexed and wonder if I should challenge their diagnosis?  I think I feel that way because when this all started, all they ever said to me was “it’s likely MS” and I had to have an second attack within the year to be “officially” diagnosed.  As you know..when you’re told that you notice EVERYTHING!!  So, a year later I admitted to having numbness in my hands etc....but I dunno...I always have that, but that’s because I lean on them all the time and they fall asleep kind of?  Ya know? I’m fairly fit and my biceps can numb my arm if I have my arms closed up for a period of time...but I don’t really think I’ve really had that “second” relapse to be “officially” diagnosed?  BUT, I’ve been poking Copaxone in me for 7 years now, and every yearly renewal...my answers are the same.  Nothing to report, bladder is fine....nothing strange happened.... and I get my refills for another year:-(

Anywho...I just found this site after googling and thought it was interesting.

Cheerio!!

C  

warrior pilot

1/14/12 1:17am

I am (was) an Army instructor pilot.  I was so used to not telling docs things so as not to become "grounded" and one day I jerked my arm in flight and my legs were already twitching at night.  I didn't see that you had an MRI for your diagnosis!?  My diagnosis came from a brain MRI.  They saw 9 lesions or "dawsons fingers" and followed that up with a spinal tap and blood work.  I've seen several neurologists and should have a PHD from researching the internet.  But all in all, a doctor in Birmingham, AL said it to me like this:  With positive brain lesions, a suspect spinal tap with blood work, I am 95% sure I have MS.  My second brain MRI made me 98% sure I have MS.  The only way to be 100% sure I have MS is to have a brain biopsy.  That aint happening.  There is a lot more to my story but I'm still learning.  I was diagnosed in Oct 11.  I have had pretty severe symptoms for the entire time since then.  

I take Lyraca for the pain and muscle cramps-seems to work.  I take  10/500 Hydrocodone for the severe pains.  I take vit D, fish oil pills and simvastatin for cholesterol.  I take Clonazapam for spasms which doesn't seem to be working at all (my doctor calls them myclonic jerks).  I spasms from ankles to shoulders daily if that is what you call them.  my legs, arms, shoulders all jerk.  I try to be positive and find out more every day on the internet.  

 

If I told you anything, be positive, live life fully, try to trust your doctors and be open to all the websites.  No one seems to know exactly what works for everyone or how long you can expect any quality of life.  Don't blow the life savings but live and be happy.  Try not to stress-it definately makes a difference.