Nystagmus & Registered partially sighted
Can anyone help me here? I have Just been diagnosed and registed partially sighted! I have no field vision with eye shake/jumps and vertigo," feeling sick and faint" tinitus and earring proplems I was also born with a bad Astigmatism. Do you have Nystamus? or know anything to help me.
Love Jan x
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Q: I have been diagnosed with Nystagmus & Registered as partially sighted
Answers (2)
3/26/10 12:05am
Jan,
I've developed nystagmus (fairly mild, but still) and it started with me feeling disoriented and a little woozy when I'd look from piano music the the piano keyboard while teaching my students. I couldn't stay focused on anything either.
Also, trying to complete the visual fields testing is torture!!
When this was really noticed at the neuro's office, I was experiencing some other issues as well and we did the steroids (and did them again a month later). Some things still set off my eye and it's really annoying, but thankfully I still have vision.
Just wanted to let you know that I can sympathize a bit. :(
11/19/11 7:58pm
I've had MS for 10 years and was just diagnosed with acquired Nystagmus (eye movement). They move all the time! I went to a specialist -Neurological Optimologist. In my case they just said Baclofen (already taking it for spasticity). I would definitely make an appointment. They may have other options for your situation. Take care of yourself!
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By Jan Robinson— Last Modified: 11/19/11, First Published: 03/22/10
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thank you so much