Saturday, November 01, 2014

Wednesday, August 05, 2009 pistol, Community Member, asks

Q: what is the fatigue like,describe?

The fatigue I have is cripling,feels like i am dying,it can come on as fast as  turning on a light switch and go away that fast to.It may not show up for six weeks and it may stay for a few days or 10 minutes,I am bed ridden when it hits me,does this sound like the same type fatigue you are describing for M S patients?

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Answers (3)
momdukes, Community Member
8/ 5/09 12:29pm

This is jis just my description of MS fatique others ma have another description.  For me it is like nothing I have ever experienced in my life.  It is the worst part of MS for me.  When it hits I feel like I have just run a marathon and no one told me, or I have just finished picking cotton in the sun and then the fields just disappeared!  I am so tired I could just fall down whever I am at the moment and just stay there, leave me be I will be all right, just let me get my bearings.  It is the most awful feeling in the world.  that is how I describe the ms fatique.  sherry/smomdukesKiss

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pistol, Community Member
8/ 5/09 1:12pm

Thank you ,does your fatigue  come on quickly and go away quickly ,like turning on and off a switch? Does anything seem to bring it on or is it random?Thanks for your help Wes

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momdukes, Community Member
8/ 5/09 1:23pm

No my Fatique is an everyday event.  I takr Provigil to help with it, it works all right, but the longer you take it the less it works, that is just the nature of the beast.  I am good in the morning in the afternoons it is a wrap.  This is everyday.  I can walk pretty good with the help of one of my stylish canes but in the afternoons I am wheelchair bound.Undecided Fatique has taken over.  This is everyday!  Not random, but everyday.  I hope this helps you out Wes.  sherry/smomdukesKiss

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Suz, Community Member
8/ 6/09 12:51pm

Hi - i have been diagnosed with a clinically isolated event at this point.  But when i read this i almost fell over - not from my imbalance issues this time though!!  For a few months I've been trying to put a description on what the fatigue is like.  I've been saying to my husband it's like a light switch - it's there - sometimes for a while sometime sfor just a bit -  and then it's gone.  I mostly feel a general "tired" feeling all the time but sometimes it's to the point where if I just can LAY DOWN (not sleep mostly) but just lay down - i can regruop and get back up with a bit of renewed energy.  Then other times it's like I wake up and  say to him the light switch just went on and I feel almost "normal".  At the beginning I had the same experience -like i felt like I was going to die. Not being drama queen - it's just i really didn't think i would wake up in the morning.  After i got the one time of IV steroids it kind of rebooted my system and i haven't hit that low low again.  That brings to mind a question:  Did anyone else experience really low Blood pressure during a flare?  mine was low 80's over 50's.

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Lisa Emrich, Health Guide
8/ 6/09 2:47pm

Suz and Wes,

 

The fatigue certainly can be overwhelming and unpredictable.  The "I have to go lay down RIGHT NOW" feeling is very familiar to me as well.  Teaches you to listen to your body, though.

 

Suz,

I don't know the answer to your question about low blood pressure.  I have heard anecdoctal stories of other MSer who experience high blood pressure and it was thought to be connected to their MS.

 

Our brain and central nervous system control the entire body, so it makes sense that they 'could' be connected.  But, please, your doctor is the person to ask for an official opinion.

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momdukes, Community Member
8/ 6/09 3:47pm

She is right your Blood pressure is nothing to play with they do not call it the "silent killer" for nothing.  I can only speak for me my blood pressure is good, 114 over 68 most of the time but Ihave lost about 45 pounds also, must needed, I am only about 5 feet tall.  The fatique is the worst part of MS for me.  It brings me to my knees literaly.  No way around it, so I just have to suck it upUndecided  sherry/smomdukesKiss

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Suz, Community Member
8/ 7/09 7:34am

hi - My BP only sunk that low during the inital flare - and once aftr when checked in docs office - all in the first 3 months. it's just remained a ? in my head like so much else.   i told the first nuerologist (not ms specialist) you have to please do something cuz i feel like i'm not going to make it.  couldn't hold my head up or walk.  that's when she set up the iv steroids -   i have a home model BP monotor and BP has been pretty good since then - cholsterol etc. too - blood work always good except for A&D levels that were really low.  supplement those daily now.  i really think that has helped my energy a bit?  i haven't tried not taking them to see how i feel - but am getting those checked again when i go back in a few weeks. 

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TNT, Community Member
9/21/09 12:08pm

 I am not yet diagnosed,but I am on a quest to get some answers.  The way you describe the fatigue is perfect. When it hits I am at the point of collapse. I have in fact fell down,but most cases sat down. I notice it the most when in the heat,showering ,or even walking a few steps. It has happened when I was doing nothing at all. It comes over you & you must lay your head down even if it is just for a few minutes. It is scary & I have described it as feeling like I am going to die also. If you are not diagnosed yet, I hope you get answers soon. 

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By pistol, Community Member— Last Modified: 12/24/10, First Published: 08/05/09