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Is a sensitivity to loud noises related to MS?

Julie
Julie
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Married with two teenagers. Working full time. Diagnosed in 2003.

10/13/08
Julie
Topics:MS SymptomsAuditory Issues

My legs go weak and I almost feel like I will collapse when a car honks its horn, and I just can't tolerate loud environments. I wasn't like this 10 years ago.

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Answers (12)
Merely Me
Merely Me
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I am a mother, a writer, and now an MS patient

I just got diagnosed with MS in October of 2007 although my very...

Monday, October 13, 2008

You know something Julie?  I am so glad you are talking about this because right now I am experiencing the same exact thing.  I do believe my MS symptoms are sound activiated.  I think with the MS...we have this hair trigger that sets off our delicate nervous system.

 

I was testing one of my smoke alarms which did not go off when my son burned microwave popcorn.  I got the alarm to sound and when it did...it set off this chain reaction for me of having convulsions on my right side and then all of a sudden I was having my foot drop symptom.  I am convinced that loud sounds do, in fact, trigger MS symptoms...at least they do for me.  Flashing lights and repetetive patterns found on some video games also set me off.  I will do some more research on this because this sort of thing seems much akin to folk who have epilepsy and how certain environmental stimuli can invoke a seizure. 

 

Here is a message board where people talk about this phenomena of loud sounds activating MS symptoms. 

 

I will do some more investigating and will come back if I find any answers as to why this can happen.  Thank you for asking this question as I am most interested as well.

Lisa Emrich
Lisa Emrich
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Musician, Patient Advocate, and Founder - Carnival of MS Bloggers

Lisa Emrich is a professional musician. She happens to live with...

Tuesday, October 14, 2008

Julie, I have very little tolerance for loud noises, or even just certain quality of noises.  There are times which the very sound of the TV feels like an oppressive beast which is bearing down upon me.  For me, it the cognitive issues which surface in a loud environment. 

 

No fun - that's for sure.  In fact, I wrote something just yesterday which touches on this very issue.  I just wanted to let you know that you're not alone in this symptom.  I simply HATE loud sounds now as they seem to turn my brain into brush.

Kathy
Thursday, October 16, 2008

Whow everytime I come in I hear new things that I thought I had if I hear loud noises like a dog bark or just plain anything it fells like how can I put it it fells like when someone runs there nails on a chalkboard it effects every never in my body and give me chills there is nights my husband sores to loud and I have to get up and sleep in the living room. Butch keeps saying I am crazy I will let him read this. cause I guess I am not crazy after all. Thanks

Merely Me
Merely Me
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I am a mother, a writer, and now an MS patient

I just got diagnosed with MS in October of 2007 although my very...

Tuesday, December 02, 2008

Hey Julie

 

Just wanted to follow up to see how you were doing.  And also relay more of my experience with this. 

 

I had the experience over the past weekend of having a severe reaction to a loud sound (that of my son's friends running in place in his room while playing a wii game).  To anyone else this sound would not have bothered them in the least.  But for me it induced a feeling of panic and then I began having MS symptoms big time.  My whole right side began to convulse. 

 

Later I told my friend about this who has children who have epilepsy and to her it made total sense as the sound was repetitive.  This is the big mystery so far with my MS.  It seems that both visual and auditory stimuli can provoke neurological responses in me.  And the more repetititve the sound or visual...the worse it is. 

 

I am in between neurologists right now but as soon as I see one I am definitely going to be asking what is up with this.  I would like to know how to prevent these responses from happening if I could.

 

Hope you are doing well.  Let us know how you are doing.

Jan Robinson
Jan Robinson
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Jan Robinson is I am 53 and I live with MS( The MonSter)

I am 53 and I live with MS.I am Married we have a daughter at home, 3...

Tuesday, December 02, 2008

I too can not deal with sudden / loud noise, I almost jump out of my skin and it feels like it hurts. Jan

Glory2God
Tuesday, December 16, 2008

Depending on the location of leisons, hearing different noises can trigger an MS response. See following article:

http://archneur.ama-assn.org/cgi/content/full/56/6/731

 

More articles in pubmed.

 

My symptoms began with ear problems.  The neuro/ENT did not recognize it as MS. But the MRI leisons offered correlation.I have a super sensitive right ear. When I have a cold I am miserable afterwards b/c of my ear. I recently had a middle ear infection and I honestly just wanted to die. My right ear was completely plugged up and I felt a right side paralysis of my face (this correlates with middle ear infection). Sometimes it begins as a non-MS symptom but then it triggers an MS symptom. The neuro kept telling me to go the ENT the ENT kept saying it was a neuro thing. Very frustating. It seems when you have MS no other doctor wants to become involved and if you also have a hands-off neurologist, then where are you?

 

I drink a very tiny amount of valium (1/8 of 1mg pill), and the hearing "sensitivities" subside and I am not bothered by all the sounds around me. I don't have it everyday, thankful to God for that.

 

Hope this helps. I know must people do not want to know where their leisons are. I however am quite the opposite by personality.

 

 

owlguy223
Saturday, January 03, 2009

I thought I was imagining this for the longest time. I didn't see how loud noises could be causing an issue.

re: Is a sensitivity to loud noises related to MS?
Jeannette Elsner
Thursday, August 06, 2009 at 10:27 AM

I am highly semsitive to loud,sudden,sounds.Loud,vocal,sounds,are particularly unsettling for me.I feel best in an environment of a "soft"or quieter vocal quality and expression.

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sadie
Saturday, January 17, 2009

oooh, I suspect I might have similar. I have never thought to mention it to my doctors and once when I mentioned it in passing to a friend and then saw the look on her face realised it was not in the realm of the 'norm'.

Mine occurs not necessarily with loud noises but more a certain pitch or vibration. The two triggers I particularly notice are - one due to a bedside lamp that 'pings' about five minutes after it has been turned off as it cools down and also the noise of the fridge(!). My skin crawls like the vibrations of the noise 'ping' all down my body and something akin to when you get a shock say from someone unexpectedly coming up behind you, but much more severe.

 

Medically, I had been told that ms-ers have hyper reflexes - y'know when the dr uses that little hammer thing to test your reflexes - so am thinking it is part of the same thing??

Maris B. Mohr
Tuesday, January 27, 2009

I've just read all the answers to this question and must agree with everyone.

 

I was dx with MS and FMS on the same day. I know that in fibro many people have a super sensitivity to noise. Over the years that we have been living in a small town in the Negev Desert both our population and the noise pollution that we have have grown.

 

Examples: 1) A small discoteque about 40 meters from our house and directly facing us was opened about 15 years ago. They were open on Tuesday and Friday nights and blasted techno-music, house, dance with the base turned way up. It made every nerve in my body jump and vibrate. It annoyed my husband, but not physically.

 

2) People around here like to blast horrible, banging music out of their cars while driving around town at night. It wakes me up and causes the same reaction as above. I actually react with stress, tension and near hysteria. Once it happens I can't get back to sleep.

 

I also can't stand certain tv shows and movies that have a lot of noise even if it's just promos with annoying music. I end up putting my tv on mute until they finish.

 

I've been suffering from this for at least 25 years, way before my dx Frown. I've tried listening to meditation CDs, ear plugs, going downstairs where it doesn't seem as loud, but nothing has helped.

 

I'm so glad this question was asked. I used to think I was just over-sensitive and weird.

 

Feel good.

 

Peace & Serenity,

Maris

beau31958
beau31958
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DX with MS in Dec 2007 - on Copaxone - doing pretty good!

I have always been a very busy and energetic person with many...

Tuesday, January 27, 2009

Oh good, it is just not me......I thought maybe I was imagining all of this. It does not happen all the time, but then there are the times when noise just makes my head feel all foggy and things.  Just the past weekend, I had my daughters over, with their husbands and one grandchild, etc...and everyone was talking, and trying to talk over each other while chatting after dinner...I find that I started to have a hard time keeping up with all the chatter, I found that I was becoming impatient, and that my head just began to feel funny. So I excused myself and went into the family room and chilled, and began to feel much better.

Ha! Maybe its just the kids!!!!!  But I even notice sometimes the clatter of dishes being put away can send me around the hedge as well...and sharp or loud noises will do it.

 

Oh great, I'm going out for dinner tonight, and one of the gals that we are going with has a real shrill to her voice, and she becomes quite loud - oh oh!!!!

Gary

Paula
Wednesday, April 01, 2009

Oh thank you all!  I'm not crazy!  I thought I was going to kill someone at work today.  I'm trying to concentrate and all I hear is one lady cracking her gum, a guy banging on the keys of his keyboard or whistling randomly.  I pick up on every noise around me and it is driving me nuts!  I tried headphones, but even that drives me crazy and I can still hear things around me!

just2tired
just2tired
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married, 2 kids, 2 stepkids, 9 grandkids, 3 Siamese cats

Medically retired in 2003 with MS, Fibromyalgia, Chronic Fatigue...

Thursday, May 21, 2009

Absolutely, I firmly believe that MS has made me noise unfriendly!  I cannot even go to the movies anymore without paying a severe price in increased pain and fatigue.  And when I do go (for my husband usually) I have to wear earplugs!  And God forbid that the theater has the heat turned on!

 

2tired

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