Tuesday, June 11, 2013

Thursday, June 06, 2013 jason asks

Q: Will I die from secondary progressive ms

Is ms terminal?
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Answers (3)
Lisa Emrich, Health Guide
6/10/13 12:02pm

Jason,

 

Welcome to MS Health Central.  MS is not considered a fatal disease.  The very rare and unusual exception is the Marburg variation of MS (also called fulminant multiple sclerosis) which is extremely aggressive and can cause death.  Marburg is sometimes consider a disease separate from MS.

 

Having secondary progressive MS is not terminal.  However persons who have lived with MS for a long time, and who have accumulated significant disability and dysfunction, may experience complications of MS which contribute to mortality eventually.  This too is quite rare.

 

Does this help to answer your concern?

 

 

 

 

 

 

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6/10/13 3:07pm

MS is not considered a fatal disease. Lifespan for people with MS is in range the same as the rest of the population. The very rare and unusual exception is the Marburg variation of MS (also called fulminant multiple sclerosis, malignant MS and acute MS which is a compassionate disease by the US government outside MS typical standard clinical) which is extremely aggressive and can cause death. This removes the death stats from the base disease. Marburg is sometimes consider a disease separate from MS. Many doctors specializing in MS do not like the RRMS to SRMS......classifications and use Relapsing and Progressive classifications and many in other countries use this. In that sense Marburg and other variants are Progressive MS and it can be fatal so then MS is fatal. Marburg affects 3 to 5 people new per week per year which equates to less than 500 globally. That's not many. It's a whole lot when you are one of them. Like me.

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6/10/13 3:11pm

Get to a top University MS Clinic and dedicated MS Neuroligist ASAP with agressive treatment and the risk of death is low but there can be substantial risks in treatments for Marburg Patients.  ABC drugs will not work on this form.  In the old days this was a 2 month to 2 years and you were a vegatable in an institution or dead.  I was diagnosed nearly 5 years ago and can mostly walk and function on good days but I do take drugs that can caus death if not monitored correctly. Choices and new drugs in the pipeline.

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By jason— Last Modified: 06/10/13, First Published: 06/06/13