Stopping or Changing Treatment
I'm one year into remitting/relasping diagnosis. I've been on Copaxone since diagnosis. I've always felt that the Copaxone makes me feel crappy -- tired, achey, heavy, off-balance, eventhough I've accepted feeling tired, achey, heavy and off-balance as my new "normal"; now I'm not so sure. Two weeks ago, while traveling I missed three days of injections (inadvertantly left my works at home). By day 4, I was feeling better . . . not tired, not achey - just generally feeling better. Became defiant and did not take injection. Same thing on days 5 and 6. At day 16 without injections and I feel "normal" like before diagnosis - I ran down stairs this morning and was not afraid!
I will see Neurologist on the 16th for annual follow-up and will discuss with him. I'm convinced now that the Copaxone is what was making me not feel well. Should I change treatments or stay off? Am I playing with my health? Please share your thoughts. Thanks!
I have a feeling that after sometime all thes drugs like copaxone,rebif and avonex will be found to be no better than placebo.
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Hi JennW,
It's impossible to say whether you should go back on Copaxone or change. That's something to discuss with your neurologist. Not every drug is going to agree with every patient. Perhaps Copaxone is simply not working for you.
I do wish you luck during the appointment. I hope that you'll let us know how it goes.
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Hi, wanted to give you an update and share some interesting news . . . saw the neurologist for annual on the 16th. No new lesions or inflamation . . . discussed feeling like crap ALL THE TIME and changing treatment. Received call on the 17th that Blood work revealed that I was dangerously anemic (from uterine fibroids). Hemoglobin was 7. On the 18th received a massive injection of Iron and blood was typed for transfusion. I was admitted into the hospital yesterday and given two units of blood. I am on iron therapy now. I am amazed at how well I feel now! I was asked: Aren't you tired? How's your balance? Are you dizzy? I'm always tired, I'm always dizzy, my balance is always off! I attributed it all to the Monster. I figured, if this is my "new" normal, then I have to deal with it. I was getting depressed and concerned that I was going to lose. I am sooooooo much better now! I actually feel good!