I'm one year into remitting/relasping diagnosis. I've been on Copaxone since diagnosis. I've always felt that the Copaxone makes me feel crappy -- tired, achey, heavy, off-balance, eventhough I've accepted feeling tired, achey, heavy and off-balance as my new "normal"; now I'm not so sure. Two weeks ago, while traveling I missed three days of injections (inadvertantly left my works at home). By day 4, I was feeling better . . . not tired, not achey - just generally feeling better. Became defiant and did not take injection. Same thing on days 5 and 6. At day 16 without injections and I feel "normal" like before diagnosis - I ran down stairs this morning and was not afraid!
I will see Neurologist on the 16th for annual follow-up and will discuss with him. I'm convinced now that the Copaxone is what was making me not feel well. Should I change treatments or stay off? Am I playing with my health? Please share your thoughts. Thanks!
Hi, wanted to give you an update and share some interesting news . . . saw the neurologist for annual on the 16th. No new lesions or inflamation . . . discussed feeling like crap ALL THE TIME and changing treatment. Received call on the 17th that Blood work revealed that I was dangerously anemic (from uterine fibroids). Hemoglobin was 7. On the 18th received a massive injection of Iron and blood was typed for transfusion. I was admitted into the hospital yesterday and given two units of blood. I am on iron therapy now. I am amazed at how well I feel now! I was asked: Aren't you tired? How's your balance? Are you dizzy? I'm always tired, I'm always dizzy, my balance is always off! I attributed it all to the Monster. I figured, if this is my "new" normal, then I have to deal with it. I was getting depressed and concerned that I was going to lose. I am sooooooo much better now! I actually feel good!