Tuesday, September 30, 2014

Thursday, October 06, 2011 Hollyk, Community Member, asks

Q: Has anyone ever heard of 3 generations of MS? Grandmother, mother and daughter?

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Answers (7)
Lisa Emrich, Health Guide
10/19/11 12:45pm

Hi Holly,

 

It's good to see you back!  I've come across a number of folks who have two generations of MS in their family.  Mostly woman talking about their mothers who have/had MS.  I don't think that I've come across a family with 3 generations yet.  Could certainly happen, but I can't point you in the direction of anybody specific.  Sorry.

 

How are you doing with your diagnosis?  Any news or updates?

 

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angie, Community Member
11/18/11 9:25pm

My grandmother had MS she was diagnosed later in life but had it for several years before she was diagnosed. My mother was diagnosed in her mid 20s. I have  had symptoms on and off for about 10 years. I got sick again and have been sick since May. They have been trying to rule it out. I have had multiple MRIs that came back clean. I recently had the eye test done and have lesions on my optic nerve and my vision has really changed. The right eye stays dialated. My family dr feels that I have it too. So now I have to a movement specialist apptment because i have tremors. I do have a dr from st. louis who is an ms specialist but nothing would show up on my testing until the optic nerve was tested. I did have an asd closure on my heart 9 years ago. the heart issue was blamed for every symptom until now. so I have been told I have MS but they want me to see another specialist to make sure. So that could be your 3rd generation of MS.

 

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Hollyk, Community Member
11/19/11 9:11am

I'm sorry for what you've had to go through; I know how hard it is going to dr after dr just to hear-"there is nothing wrong that we can find"-yet your symptoms still remain-my demyelination was diagonse through an optic neurologist-I developed horner's syndrome- which is the one eye dialating when it shouldn't problem-my daughter is having problems now-my mother and i both have it-so, I was beinging to wonder if it were even possible. My daughter is only 18-but she was given the gaurdecel shots and MS is a biproduct of that vaccine for some girls...thank you for answering my question

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Vicki, Health Guide
11/19/11 12:38pm

Hi Hollyk,

I have not heard specifically of three generations with MS, although there are many other family configurations. I have heard of siblings most often, and two generations quite often.

 

I was told there are no heredity factors, but that was long ago. Now researchers believe there is a hereditary factor.

 

I wish you luck with your diagnosis. Enough time is enough. Good luck. Please let us know how things are going.

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443ang, Community Member
5/15/12 6:56pm

 Yes I am it in a different way. My brother,sister and I both have MS.

 

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dawn, Community Member
5/16/12 10:06am

unfortunely yes my grandmother was diagnosed in her 30s my mother was diagnosed later than that and i was diagnosed with it at 30 we also have a male cousin that has it and my grandmothers sister was diagnosed with it as well living it and heard of it its hard but yes i was told by a ms doctor we should write a book because of how many family members have it 

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Danna, Community Member
8/19/12 3:24pm

Our family has AT LEAST three generations of MS.  My great Uncle had died of it. My mother and her two sisters have it and my sister and brother both have it.  I am still very much at risk for it but haven't had any symptoms.

 

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momthatsy, Community Member
2/22/14 12:26am

Yes, my mother, my self and my daughter.

 

 Mom was diagnosed in 1972 at the age of 30, after symptoms since high school.

 

I was diagnosed in 2009 at the age of 45, I believe I had my first episode in 1987 and it went Undiagnosed because a military doctor pulled rank on another.  It is noted in my medical record by the lesser ranking officer and ignored by his superior.  Nothing happened from then until 2009 that was major, lots of little things. Major relapse in 2009 left me in wheelchair for over a year.

 

 

My daughter was diagnosed in 2013 at the age of 29, has had symptoms for about 5 years. She is still coming to terms with it,she has 3 small children at home.

 


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By Hollyk, Community Member— Last Modified: 02/22/14, First Published: 10/06/11