Help I'm in limbo!
I am going into the hospital tomorrow for more tests; hopefully, I get a confirmation. I've been misD'd several times. Minhearse, depression, stress, "patronizing pats and just slow down honey." "That just comes with age." I know lots of 40 year old women who don't go from a high power position at work to a babbling idiot who can't finish a sentence over a little stress. I can check off so many symptoms that until doing my own research had no idea were related to MS. So, I never brought it up to my doctor. Why would I tell my Internist that I am sexually disfunctional (when I thought my husband was just insenstative-and told my GYN). Why would I tell my Internist that I am had to get reading glasses at age 35 after having better than perfect vision all my life? Why would I think it was related to the Vertigo and light sensativity? After that went away and the dizzy spells started; why would I think the tip of my nose being numb was important? Or that I am having trouble urinating and with severe constipation?
I am terrified of another dead end more than of a MS diagnosis. I'm in limbo and have no one to talk to; my husband thinks I'm lazy-even though I hold down a FT job and take care of our children and home. I've gone from being in the game to on the bench. I'm so tired all of the time-even while on meds that are supposed to wake you up. I'm not lazy or crazy; but am so lost. I get tired, even trying to find my words that are lost in my brain. The ones I used to know---thank you for allowing me to (try to speak). I'm in the midst of the fog and someone is using my body as a transformer for their electricity-i'm all a buzz! 
It hasn't eased up since this event started...if it isn't MS...what could it be? How do you face head on-when you don't know what it is? When do people stop looking at you 'that way'?
Hello Holly and welcome!
I know...this is such a hard place to be...knowing that something is wrong but you don't know what.
What tests will they be doing? Will you have an MRI?
It might be good to begin writing all of your symptoms down...how long they last...how severe they are, etc. and have this list ready for when you see your doctors.
One of the first steps they may do is to get some blood work done for you. Have you had this done yet? Some things they may look for are diabetes, a vitamin B deficiency, or even Lyme disease.
If you want to take a look at some of the symptoms of MS, we have a web page to do just that. You may find information about MS symptoms right here.
But seriously...you can drive yourself nuts with worry right now. And it will be imperative to get all the facts and data before you think the worst. This will take time to figure it out.
So sorry you are going through this. If you have any more questions please let us know.
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Hello Holly
It sure sounds to me like you have MS. I went through the same stuff in the beginning. Doctors in New Bern, NC at Craven Regional Medical Center wrote me off as crazy and tried to put me into a mental facility. Have you seen a neurologist? If you are dealing with just a general practice clinic, you may never get the answers you need. MRI with contrast is a great way to diagnose MS. I hope your tests give you the definitve answer.
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I could've written your story. I am in the same situation as you right now. I live in NC and have just seen a neurologist for the first time. Over the years I have been diagnosed with PCOS, IBS, and hypothyroidism. And of course, hypochondriatic(ism). ha ha
My dad's sister has MS and I am worried that I might have it as well. How do you go to a doctor and say I think I have mS?? They all think you are crazy. My biggest problems right now are also fatigue, urinary incontinence, muscle twitches, tremors, being cold all the time and muscle weakness. New symptoms this week include blurred vision and my back being completely numb. I don't know what to think. Sometimes I do think I am crazy.
Just had some blood tests and my TSH is really high so of course, we are going to work on that first. MRI of the brain was negative, but he wants to do the neck and spine also. I guess it is a waiting game right now. But I am like you, I have 3 kids a full-time job, a part-time job, and at this point I don't really care if it is MS or not, I just want to know what is wrong with me. I'll be 40 in May.
I'd love it if you wrote back. I am feeling pretty alone in this myself. I haven't even told my husband yet...he just worries too much.
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Hi everyone,
I, too, am in limbo. The first neuro said was so quick to say "nothing" and practically ran me out of his office because it was lunchtime. However, my regular doctor is very proactive and has scheduled me for a second opinion next week. I was supposed to see a "second" opinion doctor in May, but it was moved up to end of March. Anyway, my husband, although I love him, thinks I am faking the symptoms and thinks I am a hypocondriac (sp). Therefore, I do not talk to him at all about my doctors' appointments, my symptoms, etc. I guess if I am to be diagnosed by a neuro, then my husband will have to join me and hear it for himself. My MRI shows multiple white matter hyperintensities, I have numbness in my right face and right arm and hand. I am dizzy all the time, extremely tired all the time, and I am beginning to have problems picking up objects with my right hand (I am right handed). Also, my speech seems to be off, that is, I can't seem to get the words out correctly or even remember what an object is such as a pencil. This is not too bad, but I never experienced this before.
Anyway, I guess I am just wanting to vent and I appreciate all of you reading and "listening" to me.
Linda
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