I'm glad to have come across this article (Cognitive Problems in Multiple Sclerosis Part II). It mentions what appears to be secret amongst the MS community. Maybe people just dont want to face it in public! For me its a different storey. For a whle now I have had increased self awareness but also seemingly descreased awareness of of whats going on around me or just reducing external objects to - just "things". My ex thought I displayed symptoms of Aspergers/mild autism before diagnosis. Fluidity of daily life was reduced to just core, focussed framework of tasks. When facing divorce, in tehe face of great uncertainty and distress, I could only concentrate on keeping the core framework of tasks a priority. Communicating my ideas of reaction were not there. My strategy of thinking was for the very long term stability rather than short term day-to-day survival. it almost seems as though I wanted fight not fly! It might seem normal reading this but I do seem to be missing something that I cant define and do seem to be observing myself very in depth! I would like to see more people present their thinking problems more openly so that poeple in the wider community can understand. I am a changed person in some ways but the essence of myself still remains intact. I hope this text spawns some more public debate regarding the "hidden" symptoms. I would be interested wether views of readers think I'm describing a pyscological problem or the effects of physical damageof the bain. Can MS cause Asperger/autism like symptoms?
You may want to write a note to one of our experts here at MS Central. She has a tremendous depth of experience with the Autism Spectrum. She does by the name "Merely Me" is click here for her profile. She may have some insight into this topic that the rest of us do not.
Hi New View,
Sounds like you are experiencing some amazing things. Not sure there are any good explanations but I thank you for sharing your experience.
I have blank out; where i just blank out for a split second and forget where I am. If someone wakes me up in the middle of the night, I have no clue who they are. Its like everything is a blurr. I am sitting at my desk doing work; all of sudden i for get what i am doing. I can be driving; but i dont always remember passing certain landmarks. Sometimes i just feel out of place.
HI MY NAME IS DANIEL,NOT ONLY DO I BLANK OUT BUT ONE MAIN PROBLEM I HAVE BEEN HAVING LATELY IS SOMEONE TALKING TO ME AND I DO NOT SEEM TO CATCH WHAT THEY JUST SAID OR EVEN SEARCHING FOR FOR JUST ABOUT ANYTHING AND BRIEFLY FORGETTING WHAT AM LOOKING FOR. I WAS GOING DOWN A ROAD I HAD BEEN DRIVING FOR YEARS AND FOR A FEW MOMENTS I FORGOT WHERE I WAS OR WHERE I WAS GOING. I DO NOT YET KNOW EVERYTHING THERE IS TO KNOW ABOUT MS MAYBE IT IS JUST WHERE THE LESIONS ARE LOCATED IN THE BRAIN I HAVE OVER SIXTY.I HOPE THIS MAKES YOU FEEL LIKE YOU ARE NOT ALONE IN THIS BUT I ALSO HAVE ANOTHER PROBLEM I CAN NOT SEEM TO STOP STUDYING.
Yes I think it can, at least in the case of me! that's why I searched about this subject! I was a very sociable person before, but 7 years ago was diagnosed by MS, and every year I lose some of my abilities to make and keep relationships, to feel people and express my feelings, I don't learn addresses anymore...I don't notice what's happening arround me,....I am a PhD researcher, and really worried to damage my future with these symptoms!
Yes I can relate to what you are saying. Well I suppose what I was trying to touch upon was "cognitive difficulty". I think I just underestimated what this term really meant outside the context of common public facing "MS" literature available on the internet. I've realised, intuitively, that this term really is more far reaching than I first thought. As I have come to learn more and more about it and how MS manifests itself in me, I find it more important that I keep to routines and schedules because that's what I trust. Even when I might be in the "Twilight zone", my routine enables me to maintain some confidence. Boy - I just wish I didn't have to think about it all the time cos I have so much else to think about too!
Just to be distracting : What are you researching?
You are wellcome:) I research on polymers (chemical engineering).
Next year is my defence, if such problems in hearing, speaking, underestanding become worst till that time, then probaly the referees would fail me
I am undergoing Bowen Therapy (my 4th month) and my shyness and not being able to go out of the house is gone. However, as this therapy works
on the traumas connected to the brain and the parasympathic nervous system, the trauma release symptoms are extremely difficult as the body needs to have neuro pathways to detox. I have not been diagnosed for M.S.
just Fibro/Chronic Fatigue. My spine is so jacked up and stiff and I have all of the symptoms of M.S. I don't feel like talking to my doctor about this because it wouldn't change my treatment. Drugs are too constipating and I am on an anti-seizure med only. Other meds worsen my condition. Thanks
bowen therapy! that sounds interesting, I searched about it, and it is written that Bowen therapy can powerfully influence the body's neuro-muscular physiology in many and complex ways. So it should be good for MS too! thanks for the info!
wow. i have been feeling the same way for a couple of years now. i joke that i have no filter anymore, but it's true. i have to seriously consider the things that i say when i'm in public, because if i just speak i say inappropriate things. inappropriate for me, at least. i used to be such a social person, and now i avoid contact with people i know. i have become hypersensitive to light and noise. my skin has become so sensitive to touch that i just shudder sometimes when i'm touched by a person or certain textures. I'm going to research Bowen therapy and read the article you mentioned.
Has anyone here tried a GFCF diet? That was recommended when my son was being tested for ASD.
Melody you sound like me in this part. I found a video that kind of showed my husband what my world looks like lately. It was made by an autistic man. It showed you his perspective on the world when he goes out. It was right on the mark. Out of curiosity, more lesions in the periventricular white matter might be doing this to us. They are natural lesions in people with age and further conditions such as alzheimers.