Monday, May 28, 2012

Saturday, June 19, 2010 Candice asks

Q: what do I do next

Hi all I am a newbie here and look forward to joining in. My question is what course of action should I take now here is my story, I will try to keep it short:My problems started many years ago 1992 at the age of 41. I was living in Georgia at the time and it was a hot Georgia morning. I was working out on my nordic track and really clocking in good time. I must of been going for about a half hour when I became really weak. I quit and went inside to air conditioning. For the next several days I steadly got worse. My left leg hurt so bad I could barely walk. In fact by brother tried to cheer me up and bought me a cane (his idea of a joke) Smile Little did I realize how much I would depend on that cane. My condition continued to get worse. When my family and I went back to our home in Florida things did not improve, so I made an appointment at a pain clinic. I got the gammit of tests lasting several weeks. I had two spinel taps (he ran them twice in two weeks time because they appeared suspicious to him) I had nerve conduction tests which he was unable to complete because the pain on the inside of my leg just above the ankle was unbareable. He did a sed rate twice in two weeks because the first one was 79 he thought it might be a lab error (same excuse for repeating the spinal tap) the second one was 49. I had a shot of medrol after the first to relieve the inflamation. Several more tests one was a bladder test I can't remember the name of it and yes two times for that one also! Man the first one was bad entough! I was found have a nerogenic bladder! Oh fun, now I get to do self caths. After all of that I was sent home with a diagnosis of possible MS. My symptoms went away and returned again time after time after time! Next new symptoms were dizznes, walking crooked unable to walk straight. (No I wasn't drunk all though to an on looker it must have appeared that wayEmbarassed Now I have been getting some new symtoms like sever weakness in my left leg with foot  flopping when I walk. (I fell down the stairs when my leg went out and sustained a broken thumb, two broken ribs, and a broken arm) I sometimes have real problems getting my words out right and forget how to say what I am trying to comunicate. Real frustrating. I have been having sunbursts in my periferal vision and blurred vision. I live in Las Vegas,NV now so off to a new nerologist. I had an MRI of the brain, the MRI showed something in the white matter. I can't remeber what the term was. More tests something with electroids hooked to my head, some glasses over my eyes with lights flashing. I did fill him in on my past history.  After all of that his comment was you are a sick girl!!!Thats it! still now diffinative diagnosis. I would love to hear its nothing but I know better. What Next?? Please any comments would be greatly appreciated.Smile Thank you for your precious time. 

 

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Answers (2)
6/19/10 1:04pm

Hi Candice, have you been told that you have MS yet, sounds a lot like me.  I woke up one day draggin my left leg, seeing double because my eyes crossed I was totally crossed eyed ( rather funny looking Surprised) I can laugh at myself! tired at the drop of a hat, it was MS.  My doc told me like oh yea you got MS, my response was oh ok now what do I do, I am not a person to get bent out of shape, that never solves the problem, so I opt for a what do I do now!  No there is no cure but a positive attitude does help make living with it better, and taking care of ones self, and educating yourself about the diease makes it eaiser to deal with.  It is not a death sentence but it is a life style change, so such is life.  Those of us who have MS are a wonderful bunch of people who live productive lives.  Welcome to our wonderful world!

 

sherry/smomdukesKiss

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8/10/10 3:05pm

 hello candice i am daniel and the only one that can say if you have relapse remitting m.s. is a doc but the diagnoses takes a while so may i suggest is find out as many symptoms about all the types of m.s. and decide that way but either way it goes their are meds to at least slow this disease down. i had a bad experience with an m.s. doc i had to physically chase him down and have him show me on my m.r.i but docs stay detached emotionally from thier patients so if you need to talk to someone find someone who has this problem too. or at least contact the m.s.society and find contacts in your area we are out here just search. bye for now thelambsink@netzero.net

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By Candice— Last Modified: 12/26/10, First Published: 06/19/10