Monday, October 20, 2014

Saturday, December 13, 2008 jefj, Community Member, asks

Q: DOES m.S. cause leg pain?

DOES m.S.  cause leg pain?

AND if so does any body experience pain in both legs?

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Answers (31)
Lisa Emrich, Health Guide
12/14/08 9:01pm

Hi jefj,

 

The simple answer to your question is YES, MS can cause leg pain.  However, many things can also cause leg pain.  Those of us with MS are not immune from developing other health problems.

 

MS has caused me to experience pain in both legs, but not necessarily the same type of pain in both legs at the same time.

 

Can you describe more about what kind of pain you are experiencing?  It would make finding answers for you a bit easier cause anything will be a shot in the dark.

 

But, yes, I have experience "pain" in my legs.  Thank you for your question and welcome.

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nan, Community Member
10/19/09 12:27am

right upper thigh pain. feels heavy,especially after being on it or walking on it for a while.

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jam072485, Community Member
11/23/10 8:48pm

Hi, I just found out today That Ihave MS. iI am experiancing severe pain in both legs, and havehad this pain for some time. What is the best treatment for this symptom of ms? thank you. jennifer

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regina, Community Member
11/28/10 7:55pm

I have MS as well and experience horrible leg pain. My neuro will give me  Solumedrol IV. Ask your neuro about it. Also Neurontin is the only med that helps me with my nerve pain. See if your dr. will give you an rx for that. Feel better and remember you are not alone. :)

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Joyce Augustin, Community Member
3/12/11 4:10pm

Thanks Regina this makes me feel better knowing that I'm no alone you're very kind.

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Valjean Dixon, Community Member
5/ 3/11 12:47pm

have terrible leg pains, and in my feet numbness and pain,and its getting worse, just wondering if there is anything I can do to lessen the pain, I do take neurontin,I try walking for exersice, but after a few minutes,cant stant the pain and I have to sit but it still do no ease.

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living wih MS, Community Member
4/16/12 1:04am

dont know the proper spelling but bacofen.

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Padme', Community Member
7/18/12 8:25pm

i was wondering how is it working for you? im on 80mg and im still having leg cramps and leg pain.. i think alot of my pain is from the cramps. i have ms 8 yrs now..padme'

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living wih MS, Community Member
4/16/12 1:06am

Are u with a Pain Dr they help sometimes more than our neuro.

 

            Char

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living wih MS, Community Member
4/16/12 1:08am

Hi.  Pain Dr Bacofen not spelled right workes great!!!!!!!!!!!!!!!!

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living wih MS, Community Member
4/16/12 1:02am

Go follow up with a Pain Dr.

 

              Char

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Joyce Augustin, Community Member
3/12/11 4:08pm

I have never had pains in both legs, but my doctors are not sure because the pattern of the MRI shows that it looks like MS but the spinal tab has some problem and I do not know what it is. I live in Aruba and the docs here believe in the Dutch system and that takes very long as they are very precise in diagnosing MS. However I walk with a walking stick I am a female and 58 years of age 59 this year. I get very tired quickly can't do much house work I keep my self busy as I am an accountant and I give classes of ESL to the Latinos in Aruba just to keep my brains functioning. My mom died of a heart attack and she had Aldzheimer. I am a diabetic, hypertension, had a near heart attack, luckily I was on time but have a stent in one of my mayor heart artery. I've got a cyst in the medula of my spine which was operated upon, but sad enough it returned and the docs don't want to operat again as they say the walls of this cyst are so thick that the nerves are stuck to it and if they operate I can end up not walking and in wheel chair. My whole body hurts, sometimes I get fever and my appetite is terrible don't feel like eating have to eat as I'm a diabetic. I fell because my knees gave away and had pain or pressure on my chest didn't want to go to the hospital however. Can you help me with all of this. The docs here believe in the results of the spinal tab in order to have a better diagnose. I still have not received the results of the spinal tab which is about one month and a half ago I did it. Presentyly I've got 4 days feeling weak and I'm taking Tramadol 100mg for the pain and Celebrex 200mg both once a day only these days. I am quite afraid to end up in a wheer chair, what can you tell me do yu think I have MS or is de DM causing pains in my body. But my knees have never given away with me and they hurt. Please let me know what you think.

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Denise Johnson, Community Member
5/11/11 12:03am

I think you need to have a MRI (Magnetic Resonance Imaging) test done.  My doctor diagnosed me with this test alone.  The follow up work included the spinal tap, which turned out negative for MS (but I've read that many of these tests do turn out negative).  So basically MS is diagnosed by the use of the MRI (a complex type of x-ray) and by listening the symptoms the patient describes.

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Slake Pliskin., Community Member
12/18/12 2:48am

respectfully, what youve said here is patently wrong...there IS NO TEST for MS that they cant  just "run"..theres simply no such thing...it doesnt work that way. i question your intentions of posting this as as i said, it is more than off base and its not good that such misinformation is being spread.

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Slake Pliskin., Community Member
12/18/12 2:49am

respectfully, what youve said here is patently wrong...there IS NO TEST for MS that they can  just "run"..theres simply no such thing...it doesnt work that way. i question your intentions of posting this as as i said, it is more than off base and its not good that such misinformation is being spread.

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Slake Pliskin., Community Member
12/18/12 2:51am

respectfully, what youve said here is patently wrong...there IS NO TEST for MS that they can  just "run"..theres simply no such thing...it doesnt work that way. i question your intentions of posting this as as i said, it is more than off base and its not good that such misinformation is being spread.

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Bonnie, Community Member
12/29/12 3:47pm

Sorry and respectfully, in response to Your comment...Yes there IS an MRI test for MS that can help diagnose the disease. My brain lessions were consistant with  places in the brain that said MS; even on the MRI print out. In some cases it may not show the lessions right away. But my MS doctor studied my MRI, listened to  my symtoms and told me that I have had MS for about 10+ years.

THat's all I'm going to say about the MRI test. Yes, there IS a test for it! :) THank God!! Otherwise I would Still be living in oblivion and without the necessary meds that have helped me so much these past 2 1/2 years.

Take care...please don't give out false information that You apparently know nothing about. Thank you.

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Bonnie, Community Member
12/29/12 3:48pm

Sorry and respectfully, in response to Your comment...Yes there IS an MRI test for MS that can help diagnose the disease. My brain lessions were consistant with  places in the brain that said MS; even on the MRI print out. In some cases it may not show the lessions right away. But my MS doctor studied my MRI, listened to  my symtoms and told me that I have had MS for about 10+ years.

THat's all I'm going to say about the MRI test. Yes, there IS a test for it! :) THank God!! Otherwise I would Still be living in oblivion and without the necessary meds that have helped me so much these past 2 1/2 years.

Take care...please don't give out false information that You apparently know nothing about. Thank you.

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Jill, Community Member
6/11/12 8:32am

Good morning. I just wanted to respond to you leg pain question. I also have leg pain, upper leg & lower leg though usually not at the same time. I alos have a sensation in my knees that makes them feel like just the knees areas are on fire. I honestly feel that the leg pain is part of the MS and is a wasting of the muscle & bone density. I find that if the humidity is low then I am much better (like in the fall & winter when we have the wood stove going) you live in an area wher the humidity is present most of the time and this is probably exaggerating and enhancing your pain. When humidity is high (72% and up) your nerve endings move closer to the surface and it aggrivates them, causing more pain. If you have a way of cooling off your legs, such as swimming or even dangling them in a pool to settle the nerve endings back from the skin's surface, then by all means do it. We have a pool for summer and it definately helps. I do not take celebrex as I found it made my legs even more sensitive, even just to the touch. Even taking a bath with a few peppermint oil drops added will help with body pain, it kind of acts like an all over liniment. I am now on Rebif injections 3x's a week (interferon beta 1b) and it has  done wonders for me. I had originally started out with Copaxone injections and did notice some relief but after 18 months the side effects became too much for me. I try to stay active, we eat healthy and try not to eat meat with additives (we raise organic beef), I get outside as much as possible because every bit of Vitamin D helps and I have great support from family and friends. It is too bad that your Dr. cannot get some relief for you, perhaps you couls suggest Rebif or Copaxone to him.  

Please don't dispare, there are others in the same condition as you. Chin up & active is key to getting a grasp of MS!

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Esther, Community Member
7/22/12 2:21pm
I feel for all of you that suffer from leg pain. I have ms for 5 years and I really try to stay happy active and functioning, but it really hurts I'm on rebif 3x week, but I'm in such pain and hard to walk Unfortunately I do not have my parents nor siblings as a support system. My husband tries his best But I'm hurting inside and out Reply
janet fereday, Community Member
12/20/11 8:56am

i have had two hip replacements but still get pain. i get severe knee pain in both knees front and back. also get pain in both calfs and both feet. could you please tell me if this pain could be to do with ms. if its not what else could it be thank you

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Lisa Emrich, Health Guide
12/20/11 10:27am

Hi Janet,

 

Have you discussed this pain with your orthopedic doctor? With leg pain, MS is not the first thing you think of.  Do you have a diagnosis of MS and wonder if your current pain could be related?  Or do you have the pain, found this question, and wonder if it could be MS?

 

Please talk to your doctor about what you are experiencing.  Pain can be rather disabling and is certainly not fun.  So how do your new hips feel?  Are they doing well?

 

Lisa

 

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marisol molina, Community Member
1/14/12 2:36pm

Right now Iam taking omeprozole for stomach reflx. But iam having lots ofpain like arthritis on my knees. my ankles. BUt icant take Ibuprophen. I try taking tylenol. but every time Itry to swallow a 500mg. pill I fill like if Iam  going to od. I start shaking and ifeel a heat in my body. Iam 49yrs old, can you suggest any pill that can help my pain.     thank you.

 

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gallahan42, Community Member
1/23/12 7:58am

I am also experiencing leg pain, severe.  I have a Baclofen pump which does not help (I think it has come disconnected).  Besides experiencing pain, my feet are always cold and big toes are constantly get infected with toe nails becoming very dry and britte.  The doctors say that I am getting enough blood flow to the legs, but why are my feet so cold and why do my toes get infected and very red.  They (the doctors) attribute this to MS.

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Jill, Community Member
6/11/12 8:40am

I find Lyrica helps with pain & didn't see that you mentioned having tried it. Also amitryptiline, endocet help if you can find the right combination for you. I will put a few drops of peppermint oil in a luke warm bath and find that really helps. Try to get at least 10 min of sun per day as Vitamin D is key when it comes to MS, and the sun is free for the using :)

 

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Stacey brown, Community Member
2/20/12 5:20pm

Foot in mouthmy doctor stop my rebif and will be starting another shot soon, in the ean time both of my legs hurt like muscle ache are growinging pains. and my lower back. when i ride to my class and get out of my car i can hardy walk , My legs hurt so bad. Do you think its because not taking my rebif?

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Mike Lapetina, Community Member
3/16/12 12:37pm

I  get leg pain in both legs at the same time allmost everday along with Hip pain I  had Hip surgery 4  years ago for a fracture hip  I  am going to  be  tested for Addeson Disease   

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maria thomas, Community Member
4/13/12 9:46pm

i can alk about all day in the house but as soon as i go outside i have bad pain ? 

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Sandra, Community Member
4/24/12 10:21pm

I have severe leg pain in both legs.  The pain in the upper part is like I have ran far miles leaving them to sore to walk.  Then there is sharp shooting pain throughout the legs. It like the pain is bouncing off the knees.   Two num toes on both feet.  I can not walk very far without being in alot of pain.  No energy, can't sleep.  Did you go anyu of this with your MS? Thanks

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John, Community Member
6/ 7/12 8:26am

i have not yet been diagnosed with ms but my internal medicine doctor is investigating that possibility and i do have pain in both of my legs and i have for last 3 months. one doctor says it is all in my head

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Ava1957, Community Member
9/30/12 8:18am

The only way to explain it is "electrical shocks" from my feet to my thighs. I also experience painful twisting cramps, especially behind the knees. I was diagnosed with MS in June of this year, and placed on Copaxone. Is there a site I can go to for support?

Thanks Ava

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Merely Me, Health Guide
12/15/08 7:44am

Hey Jefj

 

I will second this.  Yes MS can definitely is capable of causing pain to most parts of the body including legs. 

 

In an article about pain and MS author Gina Shaw states that:  "In a national survey of more than 7,000 MS patients, 70% of them had experienced some kind of pain, and at least 50% were experiencing some kind of pain at the time of the survey."

 

So you are not alone.

 

You can have pain due to spasticity which can cause painful contractions in muscles.  You can have pain due to stiffness in the legs.

And you can have pain due to the fact that if your gait changes even slightly, you may be putting more pressure on certain muscle groups by walking differently.

 

I have had pain in both legs when I have had a miserable day dealing with leg spasms.  It happens especially when I am lieing in bed wanting to go to sleep. 

 

I would definitely tell your doctor or neurologist that you are experiencing pain and maybe they can give you something to treat this.  Other than meds some people use massage or physical therapy to help.

 

Do take into account what Lisa has said though as well...just because you have MS doesn't mean every pain can be attributed to it.  Make sure you do tell your doctor about the pain so that he or she can get to the bottom of what is causing it.

 

I do thank you for your question and I hope your leg pain goes away.

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jeffro, Community Member
10/11/09 10:27am

so i am not crazy, or alone.  thank you! what could make less common sense than "It happens especially when I am lying in bed wanting to go to sleep."?  BUT that is exactly what i go through as well. i can be standing and doing the nighttime housework with little or no noticable discomfort, and then as soon as i get into the bed the leg gets very angry. 

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Lisa, Community Member
1/26/11 12:37pm

Hi, I have MS as well and about 8:30 I feel the tightness in my legs. If I get up and walk around I have relief - as soon as I lay down it starts again. Last night was an all nighter.... my dog is probably sleeping all day - while I am at work!

 

I find tylenol arthritis pain relief does help it during the walking around parts of the day... but at night I take a sleeping aide or I do not sleep.

 

Lisa

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living wih MS, Community Member
4/16/12 9:36am

Hi,I give you thumbs up for still being able to work but same old here so I try and

little and I mean little elevate legs and don't know where you live but find some

peperment lotion I swear I put half the bottle on OH well going again to Pain Dr.

hoping to find another pain med because he took me off one of them so maybe

I can start having relief again OH ask about sp is wrong but bacofen mus relx

GOOD luck just say tylenol girl use advil don't u see the comcericals did I sp that

right oh well.  Char

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Esther, Community Member
7/22/12 2:59pm
I thought it was only me Reply
BJ, Community Member
3/22/12 7:53pm

hey jefj

 I also have pain but worse is muscle cramps.they are worse when I try to lay down. The worse is when I awake and then I get the worse pain and cramps. Its like you are having surgery without any medication. yes I have Ms and other problems.

I am having mri in few weeks from  my head to my tail bone. I have 2 bulging disc in lower back which cause the saciaca nerve to flare with pain and swellling.

from the waist down hard to walk without 2 canes or walker .worse if I rech up or down to low.. I will start a massage treatment this week. They are working on  my meds but so far for 20 + years no help to stop muscle spasms with pain. On good side from the waist up I am good so Ty God AND HANG IN THEIR NEW THINGS HAPPEN everyday. love to all BJ

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marsha, Community Member
4/ 7/12 5:48pm

To all: I have had m.s. for 25 years. I take a drug called zanaflex that greatly eases the leg spasms. valium at night will also help. Use the drugs, they really help.mm

p.s. if you smoke pot, that too helps ease the stiffness.

good luck.

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petal, Community Member
4/ 5/12 5:22pm

hi,just come across this page,so glad I'm not only 1 that suffers these symptoms,am finding @ moment, that if sitting for more than a few minutes,legs stiffen up.Had ,18months ago,6 months of twitching right leg,worse @ night.consultant said M/S not cause pain,the symptoms sure as hell do!

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JohnCE, Community Member
12/25/08 11:20pm

Beyond a doubt, yes MS can sause leg pain. Many of people that looses tone in their lower extremeties experiences swelling, or lose of muscle mass along with the spaciticy of their legs. The lunbar section of the spine L1-L5 nerves are spread out like spaghetti in nature and sends up impulses up the spinal cord to the brain. Spaciticy can cause alot of pain if not controlled. Every case of MS is different, but their are simularities to the one that causes leg pain, cramps...

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Lanette, Community Member
1/23/10 9:10am

is the area warm as well? When my leg cramps or hurts it feels very warm too.

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JohnCE, Community Member
12/25/08 11:28pm

P.S.

 

Follow up with your doctors to make sure that this pain does not origionate from the MS. Their are other conditions that could cause it. As with the frist two post, they are right on target on your leg pain. Make sure your doctors knows ALL the picture/symptoms of your pains.....if MS related, stretching are very helpful...

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Jessica Lynn Richards, Community Member
7/23/09 12:21pm

Yes,  it definetley can.  I was diagnosed with MS in December of '08.  I am 31 years old and they think that I have had this since I was 18 years old.  The doctors missed everything.  I even had kidney failure due to strep throat when I was 19 years old and had my tonsils out when I was 18.  From the kidney failure I had to have a paracardial window.  I suffer from severe pain all day in my legs due to my MS.  Just like Montel Williams.  It is absolutley horrible.  The pain radiates up and down my legs.  It feels like I am being stabbed.  I also get these feelings in my face.Frown

 

Jessica Lynn Richards

Holley, Ny

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lupita, Community Member
11/29/09 3:35am

Jessica even you been though storms longsuffering remember that GOD! IS OVER ALL!!!!!!!!!! nomater what any doctors says i'll be praying for you GOD BLESS YOU  lupita san diego californiaKiss

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Mark, Community Member
7/29/10 8:22pm

hello, just wanted to know do you have just pain or is it problems with walking too

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Jack Hammer, Community Member
9/ 9/10 4:52am

Mark,  I have had leg pain since before the doctor figured out that I had MS. He pin-pointed it when my right hand completely quit minding me and my eyes started were going two different directions. They are better now. As far as my legs and the feet the pain starts in my toes and works up to my knees. It's a burning hot feeling like I slowly inched my way into the middle of a campfire with no shoes on. The lightning pain starts up in my legs about a minute after the burning starts. Sometimes it's one leg or the other but usually both. During that time for sure and times before the burning starts I can't feel my toes and I can't tell where my feet are to stay balanced. I'm 36. By now I should know how to walk but I can't make my feet understand that. I have many bad days. More than I can count. I just look forward to the days that it isn't as bad and I can get out and about again.

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RITA, Community Member
10/27/10 11:20am

i have ms and lwg pain it coesnt matter wether im lying walking are sitting the pain ia always there been to all kinds of doctors but still no answers.

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leg pain, Community Member
1/23/12 10:12am

 i have pain and i barely cant walk. I have try going to see an occupuncture. but they stuck a needle in my lumber . and the pain calm down for that whole day but I felt worst the next day . I got a little scare so I havent been back to the occupuncture. do you think I should continue. marisol

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regina, Community Member
11/28/10 8:00pm

I get stabbing pain in my legs as well. The only 2 things that help me are Neurontin and a Solumedrol IV. Have you tried either one? They are lifesavers for me. Oral prednisone also helps too.

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stacey, Community Member
7/23/09 12:59pm

Yes it does for me!!  I have had a lot of pain in both my legs from the top to the bottom, even sometimes on the bottoms of my feet!!

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Salli, Community Member
11/ 5/09 9:57pm

Hi,

 

Yes MS can cause leg pain and I have it in both upper thighs all the time.  For years I only had lightning pains, but now I just have constant pain in my legs.  I am completely ambulatory and recently contacted my neurologist as I can no longer tolerate it.  I still go for walks every day but that does not seem to help.  I am hoping the medications will.  I think you should check with your neurologist.  There are medications that can help.

 

Regards

Salli

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Julie, Community Member
12/ 1/09 2:53am

Hi,

 

I too have leg pain in both legs.  Some days no pain at all and next the next day my legs hurt so bad that I cannot sleep; like tonight.

 

Good luck,

Julie

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christina liebel, Community Member
11/25/10 2:16am

hi my name is christina i have ms and lupos i feel u when u say your legs keep u up cause of pain would like to talk more with u thanks

 

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Helen, Community Member
12/ 8/09 6:14pm

I am now 65.

I have really painful leg pain.  It used to be in my right leg, but is currently in my left leg from my ankle up to my thigh,

It seemed to start about 15 years ago. I would wake up early in the morning and want to stay in bed until I needed to get up, but the aches were so bad, I had to get out of bed and start moving around.

I did had an intense episode of MS which was a numbness from my toes up to my waist, also 15 years ago.  This lasted about 10 days then seemed to disappear.  I had an MRI Scan which indicated MS, but for many years I have had hardly any other symptoms, except for the ache in my right leg which was mostly affected when I drove for more than half an hour, which means I don't often drive further than about 30 mles (I live in the UK)

So recently went to see a neurologist for a diagnosis and help.

She couldn;t decide whether it was related to my diabetes or the MS.

I can't have another MRI Scan as 12 years ago I had a Pacemaker fitted.

I also have diabetes II, which in many areas mirrors MS - so was none the wiser.

I am convinced that all my aches, especially leg pains, are due to MS, but have yet to find a painkiller that kills the pain.  I know it is spasticity. Anyone with any ideas?

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Lori, Community Member
4/12/10 3:40pm

Helen, you should try Baclofen; it helps with the spasticity.  My physical therapist told me to try yoga for stretching to help ease the pain.  I'm hoping it works--you may want to give it a try also.  Good luck

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Pebbles, Community Member
8/ 6/10 5:29pm

Baclofen does work but through time i am on a coctail of meds which include baclofen, neurontin, klonapin and tramadol( when needed). The klonapin and baclofin help the spasms and the twitches I get(large twitches) and neurontin is good for nerve pain.

Does anyone get the type of pain that makes you want to squeeze your legs or arm? Also has anyone lost muscle mass. I have atropy even in my right rectus(abdominal)muscle seen on MRI. I didn't know with my MS Ii would lose muscle. I have been having problems for the 3 weeks. I hope it doesn't last long!!! I hate the heat.

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Determined, Community Member
10/30/10 10:59am

I feel like there are vices connected to my legs squeezing all the time! Yes, I have muscle loss! It has helped ease my mind a little reading all these comments. I was not aware that my leg problems were MS related. I was diganosed (Formally) in September 2010. I have been going thru the possible MS the Neurologist called it "Difinitve MS" for years. I am 45, and have been going thru this since I was 18! It took that long to get the diagnosis. Today the Neurologist and Rheumatologist do not agree, one thinks I have MS and Lupus, the other thinks it is only MS. It can be very discouraging! I have a question. Does anyone else have peripheral edema? I have had edema in both legs, abd., and face for years. I had a Nephrologist tell me my failing kidneys were due to the fluid pills I was on for the edema. 1 and 1/2 years after being off the diuretics, I am still experiencing edema, now having kidney problems again! Any advise??

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Barb Carr, Community Member
7/23/11 2:05pm

Also feel need to squeeze arms when getting that "creepy-crawling" feeling.

 

Leg pain in right leg,  - more than a month of beginning with
pinched nerve from foot to top of leg, to severe pain thru leg, heavy feeling

in calf of leg, just "hurt" from toe to top of leg constant 24-7.  

At times for maybe a few minutes, pain subsides.      Have no idea what triggers it.

Have tried all drugs mentioned, and parkinson's medicines but usually get

side effects and more problems.   Exedrin Tension (asperin free) seems to help me get thru the day.

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Marie, Community Member
4/18/10 6:15pm

yes it does!  I know that because I've had MS for 36 years and just recently I have had the most awful pain in my legs, I'm seriously looking for a Dr. who is a Nuero sugeron here in Montreal Quebec who can help me have the Operation which can cut the nerves in my lower back to have some peice of mind!!!

Looking for somebody to help me-Please?

Marie

 

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BJ, Community Member
3/22/12 8:06pm

I have thought about getting nerves cut also for ms and back problems .has anyone had this done?? is it helped or hurt you . I wonder what it would be like after  to have nerves cut. Is their no other answer >>I feel hopeless and I am at my end. I have ms 

 

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NJ Mser, Community Member
5/14/10 11:23am

Absolutely but I'm glad you asked this question, because the pain in my legs is the worst today that it's ever been.  I've had it for quite some time (diagnosed in '03).  Sometimes it seems to start in the knee and radiates downward so calf, shins, top and bottom of feet, ankles are all affected.  Sometimes it seems to start in the feet and work it's way up, into my lower back.  I was walking every day, as well as stretching (have also tried yoga), but the relief is short-lived regardless.  I too have most problems (until today) when trying to sleep and sometimes elevate my legs on a pillow.  But I doubt this is what's known as the spasicity of MS because it doesn't feel like spasms.  The only way I can describe it is the deepest, throbbing but constant, pain (maybe like a rubber band through your legs that is far too tight?) or that it must feel like pain that someone with bone cancer feels.  I never know if I should do heat or cold to relieve symptoms.  Good luck with yours.

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Ken W., Community Member
6/ 1/10 11:54am

I have had M.S. for 35 years but have only had leg pain for the last few weeks. I am really unsure what this will mean for the future but I have a feeling it won't be good. Does this come and go or have you experienced it each day?

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Polly, Community Member
6/15/10 12:08pm

Hi Ken;

I have had MS for 30 plus years and have just started having a shooting pain that runs from above my ankle to my thigh. It comes quickly and goes just as fast. I can't put weight on the leg when it happens--but, it's over very quickly. Please don't feel this is a precursor to a worsening of the disease !!! So many odd symptons come and go. I am a Peer Support Counselor for MS patients, and, it is such a strange disease, that you never really know what's coming !! Keep stretching and moving as much as possible. I still am doing well, the occassional bad day--but--I feel very strongly that this disease of ours will be cured in the near future !! Positive Attitude is a real Plus !! Take Care !!

Polly

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Ken W., Community Member
6/22/10 12:36pm

Hi Polly,  Thanks for your response on this leg pain but it continues yet today and I wonder if there is any medication to give relief. I'm stretching and am  moving continually but it is when I sit or lay when I have the worst pain.  Any Thoughts? Ken 

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Polly, Community Member
6/22/10 2:37pm

Hi Ken !!! Sorry for mixing up your name !! Take Care !!

Polly

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MA, Community Member
7/ 7/10 9:03pm

Hi

 I have Very Bad pain in my legs, ankles, & my feet. I am on 

-Copaxone       20mg syringe    (1) injection (daily) 6 pm   

  glatiramer acetate injection)

         (M S)                (immune system drug)

Ampyra

 (Dalfampridine) 10 mg (1 tab) 2x (daily) 6 am & 6 pm

                               (MS)   (Walking)

Baclofen          20mg   (2 tab) 2x (daily) 6 am & 6 pm  

    (MS)               (MUSCLE RELAXER, SPASMS)

Tizanidine       2mg   (2 tab) 2x (daily) 6 am & 6 pm 

    (MS)                (MUSCLE RELAXER, SPASMS)  

Lyrica              150mg (1 tab) 2x (daily) 6 am & 6 pm   

     (MS)                      (Nerve endings)

Oxycodone 30mg (1 tab) 6 x (daily) (PAIN) Every 4 hrs

Duragesic (Fentany transdermal system)

   75 mcg/hr CC Patch (1) patch (every 2 days) 8 pm     

         (PAIN)

Duragesic     (Fentany transdermal system)

   50 mcg/hr CC Patch (1) patch (every 2 days) 8 pm    

         (PAIN)

Imtrex 100mg   (1) tab for migraines no more than 9 in 30 days PRN or Nasal spray                                      

NASONEX 50MCG (120 SPRAYS) 17G nasal spray PRN

Lidoderm    5% Patch for pain (3) daily PRN (12 hrs on 12 hrs off) (PAIN)

Prilosec          20mg        (1 tab) 1 x (daily) 8 am    (STOMACH)

Alendrnate 70 mg (1) tab (8oz water) 1 x weekly Take before all meds in morning& do not lie down (for ½ hr)

(Osteoporosis)

Stool Softer 3 (2x daily)

Now my doctor wants me to have a Balcofen Pump put in my back to send the morphine and bacofen to my spine. It works for many people in our group.

My Dr gave me a script for a tens unit. It seems to take most of the edge of the pain off.  

I also go to a tanning bed. The heat does not bother me with all the fans & air that is on. The UV rays also seem to give me some relief.

I also go swimming. That gives me the most relief when I am in the pool.

I hope this has helped you out.

The first time I read Montale Williams book Higher and Higher , I cried. I had felt the same way and I could not explain what they were until I read what he wrote.

Maryann 

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Polly, Community Member
6/22/10 2:34pm

Dear Jeff;

So sorry to hear the leg pain is so bad. I'd definitely call your neurologist--or the doctor that manages your MS symptoms. There are a number of meds that can help, but, he/she will want to evaluate what's causing the pain. I take klonipin at night for leg cramps and restless legs--it's really helped !!

 

Stay in touch. Let me know how you are doing !!

 

Polly

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Tammy, Community Member
7/11/10 11:53am

Regarding leg pain, when I get up in the morning my calves muscles/tendons are so tight it's painfull to walk. Does anyone else experiance this? I'm taling Neurotin, Flexerill, Topamax & Vicodin, but because of work I can only take the Vicodin during the day the rest I take at bedtime. What do you guys take?

Tammy

 

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Pebbles, Community Member
8/ 6/10 6:18pm

Baclofen does work but through time i am on a cocktail of meds which include baclofen, neurontin, klonapin and tramadol( when needed). The klonapin and baclofin help the spasms and the twitches I get(large twitches) and neurontin is good for nerve pain.

Does anyone get the type of pain that makes you want to squeeze your legs or arm? Also has anyone lost muscle mass. I have atropy even in my right rectus(abdominal)muscle seen on MRI. I didn't know with my MS If I would lose muscle. My latest problems have been for the 3 weeks now. I hope it doesn't last long!!! I hate the heat.

Also anyone with migraines?

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Determined, Community Member
10/30/10 10:39am

That was my question that brought me to this site! I hurt SO bad in both legs! It feels as if someone has wrapped me from the waist down in a vice that sqeezes my hips and both legs to the point I feel I could scream at times. I was wondering if anyone else experiences this and if so, what can I do for some relief?!

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missest13, Community Member
11/ 6/10 9:13pm

I have has MS for 11 yrs. now. I had never experienced pain before until this June 2010.  It hurts so bad I cant even begin to explain.  Like an idiot I went for hip x-rays, physical therapy on abductor muscle and SI joint.  Dumb me never even put pain with the MS because I had never experienced this from my MS.  After getting shots of morphine weekly and new MRI's showed new lesions on my spinal cord.  Went to research center and was told lesions on spinal cord cause the most symptoms and usually the horrific pain!  I went in and did IV steroids for 3 days end of August.  Felt better in a week.  Prayed it was just maybe a pulled muscle.  Well BAM 2 days ago started hurting again.  When i called nurse she said the steroid only last six weeks. It has been six weeks exactly.  I told her OMG i do not want to be going getting steroids every six weeks.  Going back to research center to see what options are available to stop pain or is the IV steroid the best I can do.  I pray for all of you in this pain.  It is unbearable and wish it would stop.  I guess also like any other symptoms once damage is there guess not going away now.Frown

 

god bless

missest

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christina liebel, Community Member
11/24/10 8:21pm

im christina liebel and would like to talk to you a little more about your experiences, I was dx with MS and Lupus on 2003 and rigth now my legs are my biggest issue. Hoping we can share more

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missest13, Community Member
12/ 1/10 12:55am

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Sorry just now getting back with you, I don’t know how to use this site and did not know we can email without others reading. 

 

I have done 4 MRI's now my regular neurologist says new lesion on spinal cord cannot be causing extreme right leg pain.  While specialist says, it can.  Both contradicting one another.

 

I went for another appointment last week back to my orthopedic dr. and now this Friday doing pelvic MRI. Then he is referring me to rheumatologist.  He said sounding like fibromyalgia.  I am like great!!! 

 

I was diagnosed in same time as you.  Have you been on medications this whole time?

 

Talk to you soon

 

 

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billw_willy, Community Member
11/ 7/10 1:47am

MS types vary in symptoms (Sx) and do so at different times of day, week,  month and years, depends on weather conditions (I like it cold) and due to exercise if any are able to be done or worst, no exercise. I stretch my hamstrings in bed before I get out of bed, do modified knee bends and toe/heal lifts holding on to the counter tops while "watching the microwave" as I'm sure most of us do often--watch the microwave. I will do a few push-ups and leg lifts but it is getting difficult to get up from the floor, but hell, if I fall, I might as well do some floor exercises while I'm down there. I have had the most bizarre Sx's over 40 years and if I tried to list them all, someone, most everyone would surely think I'm a nut case.  I suspect neurologists hear the same thing from us so much they act like they are bored and aren't listening to us and it is no wonder my neurologists don't want the long list of Sx's and incidents of seizures, falls, bloody bruises and cuts. I wouldn't want to be a neurologist as the two at Mayo Clinic told me the other MD's in Med school said if you want patients that don't like you, then you should specialize in neurology where you only have bad and terrible news for your patients and their families.

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angee, Community Member
11/18/10 5:00am

hi Jefj,

i have ms and have what feels like 'growing pains' in both legs ... it is constant, day and night, sometimes alot worse than others, 

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Linda DeStefan, Community Member
11/26/10 2:40pm

I have severe pain in both legs. Spasticity of the hands and legs. I have a sinus infection right now and all my symptons have worsened. My gait is worse. I keep falling I'm fatiqued and everything has gotten worse. I have pain in my lower back. I have mutiple sclerosis and have no energy. I take percocet for the pain which works for only short periods now. Any advice?

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Linda DeStefan, Community Member
11/26/10 2:50pm

I have severe pain in both legs. Spasticity of the hands and legs. I have a sinus infection right now and all my symptons have worsened. My gait is worse. I keep falling I'm fatiqued and everything has gotten worse. I have pain in my lower back. I have mutiple sclerosis and have no energy. I take percocet for the pain which works for only short periods now. Any advice?

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ziggie, Community Member
12/27/10 9:55pm

I can answer that as well about "Does M.S. cause leg pain"? Yes and I have leg spasticity and pain,along with lower back pain with balance issues and  chronic fatigue. I use a walker outside my home and a rollator inside,I have a wheelchair that I use only when I am at my worst. I take Neurontin (Gabapentin>generic form) for pain and it seems to work for me.

 

Good Luck and remember you are not alone with this disease.Smile

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thomas maloney, Community Member
1/22/11 9:47pm

hi, my name is tom. i have md,diagnosed in 04,i was putting up with pain(high tolerance for pain),but it became too much,asked neurologist what i could do? was walking with pain like cripple. could not get comfortable in bed till i found the right position where leg did not hurt. dr prescribed acordia and i took my first pill yesterday at 4 pm and when i awoke this morn at 5am-no pain. my wife said it's too premature to claim it is the pill,but, i am hopefull. it is 10mg twice a day,i didn't want any more meds,but this sure helped. drove for about 3 hrs today and normally left leg at ankle would be extremely painful. podiatrist diagnosed it as mid foot arthritis,i am 59. did not know arthritis would be that painful. now i am not sure if it's the ms or arthritis. leaning toward ms pain,hope this info helps and gives new hope to pain sufferers.

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thomas maloney, Community Member
1/22/11 10:24pm

i am tom,who posted just recently. a typo was that i have md,should have been MS. also the medicine was ampyra.

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Lisa, Community Member
1/26/11 12:50pm

My doctor put me on time released Cymbalta as well as tazanadine (muscle relaxer). Cymbalta does help the leg pain some. But not at night.

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Joyce Augustin, Community Member
3/12/11 3:50pm

I have asked the question please answer for I do not know the answer

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ShayShay, Community Member
4/26/11 11:52pm

Does it ever!! Dont listen to neuros say otherwise or pain doctors diagnosing you with Fibro ect.. like me cause they beleive MS does not create bad pain. I hate this disease more for the bias it creates. My leg pain started as spasms in my left calf and 2 years ago then it went away only to come back with a vengence and up my thigh and now in my right leg and now MS hugs...BUT I need to be tested for other stuff to "make sure" drives me nuts. The pain is so knawing and burning..like really bad growing pains. My husband sits on my legs and it gives me relief..really! painful legs and a 200lb man sits on them full weight and  my eyes roll back in my head and it gives me some relief. Sort of like pressing your finger against your cheek for a tooth ache..sweet agony. I take 25mcg of fentanyl, 450 lyrica, 150 amitriptiline, 2x 1 mg of clonazapan and today got the go ahead to add another patch for now 50mcg of fentanyl and I slept for 4 hours straight. Still pain but took the edge off. My arms and hands are bad too. I am going to a new MS clinic in Toronto - Sunnybrook. I am no longer going to MS clinic in St. Michaels..archaeic. The MD, Dr. Gray confirmed MS only to have me do another test to "see more" and his young radiologist said NO but comments on my cat scan that I had unremarkable gobladder...I have NO gobladder..it was taken out at their hospital. So I have some lesions but not enough?? half say yes, half say no..what is it about MRI?? It is not the only thing used. I have lesions on my spine why did they not check that and make me suffer?? Horrible clinic to treat people that way...aww you have some lesions but not enough.

 

Anyway..off topic. I have horrible pain and have internal spasms..everything else ruled out so spasticity is what it is..since lesions on my spine my legs and arms suffer badly. Pain is my top one along with cognitive and memory..forget what I am saying ect and fatigue. If I miss even ONE dose I suffer for days. Hope some of this helps. I look forward to a good sleep hopefully tonite that is when the pain is the worse in my legs and arms....anyone know why?? thanks so much

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msmissy, Community Member
10/26/11 1:59pm

Yes I do! I have ms and was diagnosed 3 years ago. I am 49 and the last 2 days I have been in soo much pain. Both legs from the hip down to my ankles ache so bad, and vicodin just gets the edge off. I was wondering as well if this was ms related.

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Nan, Community Member
12/29/11 11:02am
Yes, I have chronic pain in my left leg, tiredness in my legs and a content twitching of the calf muscles in my keg leg. Nighttime is awful due to the increase in the level of pain from the legs spasms and I noticed that lying on my back increases the pain the runs up my back. I find releif when I elevate my knees for am period of time. I am experiencing neck pain recently and don't know why. Does anyone else have this situation? have you fou d a way to relieve the symptoms? Reply
gallahan42, Community Member
1/23/12 8:09am

Try Maripex for the twitching in the legs.  It's folr restless leg syndrome,  but it really stops the twitching.  If I don't take, I am up for sure.  I have been taking for over a year now (2/.25mg) at night and another 2 during the day.  Don't wait til it's too late.  If you do, then you suffer for at least an hour before twitching subsides.  I know it will help.

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gallahan42, Community Member
1/23/12 8:11am

I am also experiencing leg pain, severe. I have a Baclofen pump which does not help (I think it has come disconnected). Besides experiencing pain, my feet are always cold and big toes are constantly get infected with toe nails becoming very dry and britte. The doctors say that I am getting enough blood flow to the legs, but why are my feet so cold and why do my toes get infected and very red. They (the doctors) attribute this to MS.

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Mike Lapetina, Community Member
3/16/12 1:03pm

Hi  everybody  im  74 going on 18 I wish,  I  have  had  MS  FOR  37  years  along

with  cancer, spinal  stanosis, and  broke  my  Hip amd  Femer  4  years  ago

when I tripped  over  my  walker,  When I was in  the  service  I  was  sprayed  with  Agent Orange  in  Vietnam which now  the VA  is  comming  out  with  all  sorts  of  problems  if  in  contact  with  AO,  ( not  one  of  them is MS OR  leg pain )  I  am  having  a  blood  test  to  check  for  addison  disease,  which  could  couse  leg  and  hip  pain because my last  blood  test  showed  that  my cortisol

level  was  low and along  with  leg pain and other pain  could  be  Addison  disease

so  back  to  the  Hosp  for  the  blood  test ( To  all  the  people  who  have  MS 

HANG  IN  THERE,

Mike     

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living wih MS, Community Member
4/16/12 9:38am

Heck ya are you seeing a pain Dr?  Char

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MPS, Community Member
7/22/12 4:21pm

Yes - I have MS and have had considerable pain in both legs going right down to my ankles and across the top of my feet. It is like being right in front of a burning fire.

I have started taking Gabapentin tablets daily, and have been given doses by my doctor of 3 tablets a day. I went to see my doctor because I felt that although the tablets were a great help in reducing the pain, they also interfered with my thinking, but just as important they also reduced considerably my ability to control the movement of both my arms and my legs.

I am aware that this could possibly be my worsening MS, BUT having completely eliminated any use of Gabapentin before - it had helped my memory and thinking processes BUT increased the pain.

 

My doctor told me to persevere for a little more time until my body had got used to the drug, which I have now done, and the pain has definitely reduced in my upper legs though it still remains in my feet and ankles. So it would seem that the nerves flying down are not now attacking my upper legs.

HOWEVER I know well that it is having an effect on my thought processes (which are still positive but can be very muddled and mixed with some frustration).

 

I have decided to take the full dose very soon, and will continue to research the effects it is having on my brain function, which if it continues to have effects I will eliminate any further taking of tablets and will find other possible sources of help whilst knowing that the pain will continue to effect me (right down my legs) which I probably will put up with, though take standard pain reducing tablets when needed.

 

 

 

 

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marcia, Community Member
12/25/13 5:36pm

yes

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luis arizona, Community Member
12/29/13 1:44am

im 22 and i think i have ms.  i have terrible leg pain. mostly my knees down but not my ankles.  i cant sleep at night because of the pain.  i sleep next the the heater can it be the heater or ms cuasing the problem?  i read that elevated tempertures makes ms worse?  anyone? 

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We hope you find this general health information helpful. Please note however, that this Q&A is meant to support not replace the professional medical advice you receive from your doctor. No information in the Answers above is intended to diagnose or treat any condition. The views expressed in the Answers above belong to the individuals who posted them and do not necessarily reflect the views of Remedy Health Media. Remedy Health Media does not review or edit content posted by our community members, but reserves the right to remove any material it deems inappropriate.

By jefj, Community Member— Last Modified: 05/22/14, First Published: 12/13/08