Tuesday, May 05, 2009 Roe asks

Q: Is it common in ms to have a numb lower torso and upper thighs

I had a numb spot on my lower left side of my abdomen after a hysterectomy four years ago. This spot has 'grown' to include my entire front of my lower abdomen, lower back, saddle region and upper middle parts of my thighs. My calfs and feet go numb (come and go). I have extreme spastic calfs and my upper body is as weak as my lower. I have all kinds of neurological issues and the docs cannot figure out why. I have spoken with other women who have ms and they too had very similiar stories to mine. My question is, "Can a person have ongoing ms symptoms with numbness beginning in the torso and spreading into the legs without it showing up in an mri?" I have had every test (week at Mayo) and the tests showed only minor abnormalities. The spinal test revealed a very high normal level (66 I think)  (can't remember the name for this) but no extra bands. Any suggestions for where to go next for answers would be greatly appreciated.

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Answers (2)
Lisa Emrich, Health Guide
5/ 6/09 2:01pm

Hi Roe,

 

Numbness is very common in MS, but it is not unique to MS.  What did the Mayo doctors say was the cause of your symptoms or what was their final diagnosis?  I would tend to think that you received top-of-line medical attention while being at the Mayo Clinic. 

 

I'm not a doctor so can't tell you whether this might be or might not be MS.  But here is a post which summarizes what it takes to be diagnosed with MS. Read "Beginner's Guide to MS: Do I have MS? What does it take to get diagnosed with MS?"

 

I'm sorry that I don't have a better answer for you.  If/when you develop a new major neurological deficiency, then perhaps the testing would provide more evidence for a diagnosis.  

 

Hang in there.  Many of us have been held in the phase of the unknowns for a long time.  You're not along in your experience.

 

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5/ 7/09 11:10am

I experienced same thing after my hysterectomy, but got MS DX a week before, so...LOL  I agree w/Lisa, could be lots of reasons, any vision problems? If the numbness goes away, well, my surgery numbness never really went away, anyway, Dr.s look for a relapsing/remitting and visual problems, strange sensations in strange areas, loss of balance, slurred speech; they need to see several areas of your brain affected. Start a diary of your symptoms. What, if anything affects them? Heat? The diary will help you AND any Dr. you see.

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By Roe— Last Modified: 12/24/10, First Published: 05/05/09