Not long after a diagnosis, patients with relapsing-remitting multiple sclerosis (RRMS) learn to speak the language of symptoms, relapses, exacerbations, flare-ups, steroids, disease-modifying therapies, remissions, and more. It becomes quite the whirlwind. Part of the learning curve of a newly-diagnosed patient is recognizing when it... Read more
Do you use Pinterest? This is something like a billboard made up of images of interests and hobbies. It can be fun, and maybe educational, too. Living with MS is easier when we take breaks, and Pinterest is one good way to take a fun break.
I recently started my own billboards on Vicki,s Pinterest site. I have billboards for my favorite... Read more
Hi Lisa, It has been a long while since I have posted anything. That does not mean you guys gave not been on my mind. I am on the new drug. When I went to th doctor the other day the nurse asked me how was it going with the new drug, I told her that if I had the new drug probably about nine years ago I probably would be able to... Read more
While we take stock (vegetarian stock for me!) in all that we appreciate... consider recognizing those who make our lives with MS a little easier. (in a digital sorta way) Click this link and checkout all the awards that you... yes you.. can nominate someone for. (or is it "for which you can nominate someone" I always forget! I'll google it)... Read more
So, I have had four party invitations sent to me in the past few weeks all with a start time of 8 p.m. or later. As we head into this season of parties, I imagine we'll all see more like these. The truth is that because my MS is so unpredictable with fatigue levels, I can only 'tentatively' commit to such activities. I always feel bad for not... Read more