KNEECAP ARTHRITIS

Catrina Community Member September 09, 2007
  • Hi ~ Does anyone else have cholandramalchia (sp?) - arthritis of the kneecap? I have Grade IV and I understand there are no treatments for it. My doctor says that an arthroscopic cleaning of debris would be of no use. I have been getting Suparz injections every six months which seem to help a bit and sometimes I get an anesthetic injection directly into my knees. I have constant burning in the knees and use Lidoderm patches and take Lyrica but sometimes the burning is so bad that only ice will help. I am very active and can't seem to take the time to stop and ice them. Just wondering if anyone out there has any experiences to share. Also, I only see a Pain Management Specialist for all of my many arthritis issues - what would a Rheaumatologist do for me that is different? My PM specialist makes referrals when necessary to PT and surgeons, etc. and otherwise seems to have a comprehensive handle on my care.
28 Comments
  • Anonymous
    Marie Kaye
    Aug. 24, 2009

    Hello....I have had osteoarthritis of both knees with problems beginning in high school.  I had no idea what was happening....I just had swollen knees periodically and increased pain with exercise.  Through the years, I was told that I had patello-femoral syndrome and would need total knee replacements someday.  I continued to gradually worsen,...

    RHMLucky777

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    Hello....I have had osteoarthritis of both knees with problems beginning in high school.  I had no idea what was happening....I just had swollen knees periodically and increased pain with exercise.  Through the years, I was told that I had patello-femoral syndrome and would need total knee replacements someday.  I continued to gradually worsen, stairs and squatting down and getting up being harder and harder.  An MRI showed total loss of cartilage of both knee caps.  I researched partial knee replacements for patello/femoral, and found that they were done with success.  I researched my insurance versus physicians in my area who did that procedure.  Two of them didn't do them, nor think them much value.  I am 55 and active with 3 kids 18 to 22 and work fulltime.  I did not want to wait until I needed a total knee.....years from now, my main joints are fine.  I am currently 9 1/2 weeks post-op and don't have the same knee-cap pain.  Just new adjustment pain....my quads were shot, so building them up through therapy has been a big job!!  But am finally feeling stronger!!  My surgeon told me to anticipate not feeling my best until a year out.  I expect to have some discomfort and lack of strength for 6 months.  It was a very good move for me!!!

    • annie U
      Nov. 11, 2010

      I just got my diagnosis yesterday, after having an MRI, on my right knee.  The doctor said I also have arthritis under my knee caps,(the right is worse than the left).  I am 51 yrs old, and not overweight, so I think I inherited this from my father, besides falling on my knees a lot when I was a kid.  My doctor mentioned surgery to straighten...

      RHMLucky777

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      I just got my diagnosis yesterday, after having an MRI, on my right knee.  The doctor said I also have arthritis under my knee caps,(the right is worse than the left).  I am 51 yrs old, and not overweight, so I think I inherited this from my father, besides falling on my knees a lot when I was a kid.  My doctor mentioned surgery to straighten my knee caps, because they seem to go out to the sides instead of being where they're suppose to be.  I have had knee pain for many years, and it sometimes shoots up to my hips, and also down my legs.  I can also feel that horrible grinding when I put my hand on my knees and bend my legs.  I live on the second floor of my apt. building, and have to carry my laundry to the basement to do it.  This is a chore I have learned to put off, to avoid the pain I will experience when climbing the stairs, and even worse, the next day.  I am taking a mild narcotic, which my new doctor believes is unnecessary, and is weaning me off slowly, against my feelings.  I am afraid of what I'll be living with (pain) when I'm completely drug free, but also anxious to get off my pain meds after many years on them. So far I don't know what grade I have, I didn't even know there are grades for this condition.  Is anyone else on narcotics for this condition?  Is my doctor right, that narcotics are unnessisary? I was first prescribed pain meds because of the tendonitis I kept getting, and was lossing too many days of work. I also have had a lot of cortisone shots, which helped for a few days.  If anyone has an experience to share, I'd love to hear it, especially about the pain pills. Seeing my old doctor isn't an option, considering she left her practice and seems to have disapeared.

  • Anonymous
    Kate
    Aug. 25, 2008

    Hi, I am 20 years old and I have what you guys have in both knees and have had it since I was 12.  Basically it sucks, it hurts, but its something we have to live with.  You can't cure arthritis, but you can lose weight, build muscle, and do exercises that will help.  Also if you get the unbearable aching at night that keeps you awake for hours,...

    RHMLucky777

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    Hi, I am 20 years old and I have what you guys have in both knees and have had it since I was 12.  Basically it sucks, it hurts, but its something we have to live with.  You can't cure arthritis, but you can lose weight, build muscle, and do exercises that will help.  Also if you get the unbearable aching at night that keeps you awake for hours, ice your knees before you go to bed.  I also find that my diet affects it aswell.  So eat healthy.

    • Anonymous
      Kent Aaron
      May. 15, 2010

      Hello Kate, My name is Kent and i am 20 years old. I also have what all these people have, a misaligned knee cap w/ beginnings of arthritis, only on the right knee, but i am a lot younger and havent even finished college yet. The problems with my right knee started because of a soccer accident in 2007. I have had two surgeries since then to reshape the meniscus....

      RHMLucky777

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      Hello Kate, My name is Kent and i am 20 years old. I also have what all these people have, a misaligned knee cap w/ beginnings of arthritis, only on the right knee, but i am a lot younger and havent even finished college yet. The problems with my right knee started because of a soccer accident in 2007. I have had two surgeries since then to reshape the meniscus.

      It wasn't until March 2010 that the knee cap started hurting to the point that i tried to avoid walking and taking the elevators instead of the steps. It has been a trigger of major depression seeing how other people go about their lifes carelessly running, dancing, jumping and so on. Life isn't the same with this knee pain.

      So i want to hear from you what has helped you deal with your knee problems. Have you felt down because of it? Is there any special diet that you follow? I hope you get to read this message and answer me because you wrote your comment back in 2008, two years ago.

    • Kate23
      May. 16, 2010

      Hey Kent!  I'm sorry to hear that you have that aswell.  Basically arthritis SUCKS!  I got on with my life though.  I'm now a Police Officer and I don't let it affect me at all.  I had to face a lot of facts but I don't let it ruin my life.  I no longer play softball, which I played for 10 years from the age of 6-16 but when I...

      RHMLucky777

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      Hey Kent!  I'm sorry to hear that you have that aswell.  Basically arthritis SUCKS!  I got on with my life though.  I'm now a Police Officer and I don't let it affect me at all.  I had to face a lot of facts but I don't let it ruin my life.  I no longer play softball, which I played for 10 years from the age of 6-16 but when I did a training session early last year, I couldn't even get out of the car!  So I had to just face facts and realise that I couldn't do what I used to.

       

      Losing weight helps.  If you don't have weight to lose then I guess that one's out for you.  The other thing is definately diet.  This hasn't been proven but I find that when I eat junk food, my knees really suffer.  So I cut out all junk and eat a high protein diet making sure I'm eating every couple of hours.  You can still eat bad foods but not a lot of it I guess.  Give that a go.  But in my experience there's no food that helps, just foods that make it worse, so all your foods like chocolate, chips, McDonald's, ice cream etc.  The thing that my chiro told me was that years ago people used to eat meat literally off the bone and would chew on the bone a bit, but we don't do it these days which is why more and more people are suffering arthritis, because we don't get the same vitamins.  Also, try acupuncture.  I did one session and my knees were perfect, went back for the second session and it sent my knees back to square one, it's hit and miss but give it a go.

       

      Also I learnt to just grit my teeth and bear it and my knees eventually got used to it.  For example, I love doing Body Attack classes at the gym which are absolute hell on the knees, but after a while I found they got stronger and got used to the movements.  In the beginning I could only do low impact moves, but now I'm jumping round like the rest of them.  My knees just became conditioned to it.  Running helps.  Start off small, so maybe a km or 2 (2000m) and warm down with a walk for 5 minutes.  Later that night, you will be in unbelieveable pain, so use ice.  But 2 or 3 days later, try it again, just add some more metres on the end so maybe 2.5km.  Rest for a couple of days, then try again.  Running is one of the best things for it.  You just have to recondition your knees.  Running on the treadmill isn't the best thing but there are no potholes or uneven surfaces which means there is no risk of falling or putting a foot wrong and hurting it even worse.  Also put the incline on 0.5 or 1 and that will mean you are running on a flat road where running on the treadmill on an incline of 0 is the same as running downhill which isn't great for your knees.  Figure out which one is better for you.

       

      I also went to the Podiatrist, spent $200 on shoe inserts, and $200 on new shoes.  They will look at your alingment and sort out something to support your feet which really helps your knees.  Trust me, it's worth spending the money. 

       

      Get a personal trainer or someone who can help you design some leg weights, it's all about strengthening certain muscles and making other muscles less strong.  You just really have to build up the muscles around your knee and into your thigh so they are taking some more of the load. 

       

      If you still want to play Soccer, give it a break for a bit while you get your knees a bit stronger and used to running and jumping, then slowly but surely start introducing some Soccer moves.  Only a couple at a time, you don't want to overdo it.

       

      I'd love to talk to you some more about this!!!  Add me on hotmail chucker01@hotmail.com and leave me a msg so I don't reject you.  Or look for me on Facebook.  Good luck.

  • Anonymous
    Annamarie
    Apr. 10, 2008

    Catrina:

     

    I have experienced arthritis flare-ups in both knees.  Thankfully, only 1-knee at a time.

     What seems to have worked for me in managing and even eliminaing pain is the supplement Glucosamine w/Chondroitin and Acupuncture. I do not think either of these treatments are supported by the Mecial Community/Western Medicine as an effective treatment...

    RHMLucky777

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    Catrina:

     

    I have experienced arthritis flare-ups in both knees.  Thankfully, only 1-knee at a time.

     What seems to have worked for me in managing and even eliminaing pain is the supplement Glucosamine w/Chondroitin and Acupuncture. I do not think either of these treatments are supported by the Mecial Community/Western Medicine as an effective treatment for Arthirtis.

     

    When I was first diagnosed with early arthritis in my right knee (approx. 6-yrs. ago), my orthopaedic surgeon, although he did not prescribe it,  mentioned that he had patients who reported success with the supplement.  I began taking Glucosamine at a slightly lesser dose that is usually recommmended 1000 mg/day, and believe that it was instrumental in ultimately reducing and eliminating the the pain in my riight knee.  Since I began taking Glucosamine I have never really had any subsequent flareups in the right knee.

     

    However, I did experience a major flare-up in my left knee (approx. 18-months ago)which was much more painful than the right knee.  The pain was so great that I started to look into Acupuncture.  After just 1-acupuncture session I experienced relief. I followed up with 2-more visits, over a 2-week period with much success.

     

    I began being very careful in taking my Glucosamine.  It is a maintenance supplement which needs to be taken daily. It also helpful to do knee specific excercises, daily, which strenghten the muscles which support the knee joint.

     

    However, recently, last few weeks,  I was not consistent w/my Glucosamine, and believe it might have triggered the current flare-up of my left knee.  I have started accupuncture treatment, 3-sessions within this last week and am happy to report that the pain has subsided tremendously, less stiffness and increased range of motion.  I am considering 1-2 more accupuncture treatments.

     

    Going forward I believe I must be more vigilant w/my Glucosamine.

     

    Please note that I am very active, and through all of my painfull flare-ups have not stopped walking or dancing (approx. 3-4 hrs. per wk). ( Dancing with a support of course.)

     

    Perhaps, Accupuncture can work for you.  After just 1-session, swelling at the front of the joint was reduced, and range of motion increased, definitely less pain.

    The type of acupuncture treatment (approximately 25-minutes) which I refer to also included use of electrical impulses to the acupuncture points.  Insertion of needles was not painful, electrical impulses can be a bit painful or uncomfortable. Proper breathing and focus help make it manageable and definitely worth the discomfort.   

     

    Although the acupuncturist might recommend a series of approx. 8-visits,  I have had results in less visits.

     

    Blessings and Cheers of Best Wishes, be hopeful.

     

      

    • Catrina
      Apr. 10, 2008

      Annamarie ~

       

      Thank you for your generous reply & good wishes.  I have tried glucosamine/chondroitin because one of my doctors said it "can't hurt" but it did not agree with my stomach. I gave it a two week trial but, in the end, I had to stop.  For the same reason,  I cannot take any NSAIDS.

       

      I'm glad acupuncture...

      RHMLucky777

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      Annamarie ~

       

      Thank you for your generous reply & good wishes.  I have tried glucosamine/chondroitin because one of my doctors said it "can't hurt" but it did not agree with my stomach. I gave it a two week trial but, in the end, I had to stop.  For the same reason,  I cannot take any NSAIDS.

       

      I'm glad acupuncture is working for you.  Other people have recommended it, but I haven't tried it yet.  I'm doing pretty well with the Supartz injections, which last about five months.  I can tell when I'm due (like right now!) but my insurance will only pay for these every six months so I have to wait until May.

       

      Again, thank you for your comments and I wish you all the best for a pain-free future!

       

      ~Catrina 

    • Anonymous
      Annamarie
      Apr. 11, 2008

      Catrina:

       

      I know that Glucosamine is not for everyone.  Sorry to hear that you are unable to take advantage of its' benefits.  It is good to know that you have a course of treatment which provides some relief.

       

      If you are ever stuck for other options, I do believe that Acupuncture might also work for you.  It is also probably less...

      RHMLucky777

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      Catrina:

       

      I know that Glucosamine is not for everyone.  Sorry to hear that you are unable to take advantage of its' benefits.  It is good to know that you have a course of treatment which provides some relief.

       

      If you are ever stuck for other options, I do believe that Acupuncture might also work for you.  It is also probably less expensive than traditional western medicine.

       

      Blessing and Best Wishes

      Annamarie

       

       

  • Anonymous
    KELLY B.
    Dec. 15, 2007

    STINGS AND ALL, BUT ITS WORTH IT ..TODAY IS MY 3RD DAY. I WORK ON TANK BARGES , SO I POUND THE DECK ALL DAY CANT WAIT FOR THS SECOND AND THIRD. WISH ME LUCK.......TTFN  

  • aemastello
    Sep. 27, 2007
    I have been diagnosed with a Grade 3 chrondromalacia in both knees and the doctor wants to do Hyalgan injections before the pain gets really bad.  I am trying to learn about this new treatment or cushion that is injected into the knee.  I am also afraid of it!  Everything I hear is positive. 
    • Catrina
      Oct. 04, 2007

      Hi, sorry for the delay in responding to you.  I have the Suparz injections every six months and they seem to help by 'cushioning' the kneecap.  Suparz is probably the same as the Hylagen ~ thery're made from rooster combs or something.

      Please be prepared the first time you have them because the injection may hurt.  I was not prepared...

      RHMLucky777

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      Hi, sorry for the delay in responding to you.  I have the Suparz injections every six months and they seem to help by 'cushioning' the kneecap.  Suparz is probably the same as the Hylagen ~ thery're made from rooster combs or something.

      Please be prepared the first time you have them because the injection may hurt.  I was not prepared the first time and it was quite a shock even though the area was sprayed with Lidocaine.  I am so used to them now but sometimes they go in easy and sometimes not.  I've been having them for two years now and I start the next series this Friday.  I get both knees done at the same time and there is a feeling of fullness afterwards.  It's a little uncomfortable for awhile but you can ice them if you want.

      I wish you luck ! It seems to be worth it for me and is the only treatment available for what we have.

    • aemastello
      Oct. 06, 2007
      After the injections, are you laid up for awhile, no exercise, etc?  Thanks for the reply and I wonder, was your pain pretty bad when you started these shots?  My pain is not bad if I do not overdo, but I want to exercise, even walking the way I used to and can not.  I do not want to start putting on weight either.  Mine are a grade 3. ...
      RHMLucky777
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      After the injections, are you laid up for awhile, no exercise, etc?  Thanks for the reply and I wonder, was your pain pretty bad when you started these shots?  My pain is not bad if I do not overdo, but I want to exercise, even walking the way I used to and can not.  I do not want to start putting on weight either.  Mine are a grade 3.  Do you know what yours are and has it saved the wear on your knees..can they tell?
    • Catrina
      Oct. 06, 2007

      No, I am not laid up at all - I go to work, but avoid the gym, just to take it easy.  I'm so used to them now, they really don't bother me much. 

      My left knee has always been the worst and is Grade IV.  I fell pretty bad when my knee gave out in Oct 04, and then I was first diagnosed w/ OA all over.  I started the shots in Feb 05...

      RHMLucky777

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      No, I am not laid up at all - I go to work, but avoid the gym, just to take it easy.  I'm so used to them now, they really don't bother me much. 

      My left knee has always been the worst and is Grade IV.  I fell pretty bad when my knee gave out in Oct 04, and then I was first diagnosed w/ OA all over.  I started the shots in Feb 05 and the pain was pretty bad  (and still is!).  Around that time studies came out that arthroscopic surgery did nothing for knee chondromalachia.  My doctor said I had no choice but to have these shots.  I never had an MRI of my right knee but these shots seem to have stalled the progression in that knee.  I also use Lidoderm patches  which seems to numb them.  I have a real problem with radiating nerve pain.  Heat really bothers my knees - they burn!!!

      For the most part it's a daily struggle and I've learned to try to ignore the pain.  I belong to a gym and am able to go 12-13 miles on a recumbent bike, but that took about a year to build up to!  I avoid the treadmill and the elliptical but do weights.  I have a lot going on with cervical & lumbar OA so I don't do much walking.  Another issue I have is I can't take and antiinflamatory meds but take other pain meds for breakthrough flare ups.  I can't see your total message as I'm replying, so I don't know if I've answered all of your questions.  I've blabbed on enough but feel free to post  and ask again.  Good luck to you.  When are you scheduled for your shot?  Are your knees your only problem? 

    • aemastello
      Oct. 07, 2007
      I can't take the anti-inflammory meds either.  I use Wobenzym-N for the pain and it does help.  Also, I use Ashwagandha every day with my vitamins.  Both have anti-inflammatory effects without the stomach problems.  I have continual stomach bleeding from AVMs, but not severe at this moment. Interesting, we have some similarities for...
      RHMLucky777
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      I can't take the anti-inflammory meds either.  I use Wobenzym-N for the pain and it does help.  Also, I use Ashwagandha every day with my vitamins.  Both have anti-inflammatory effects without the stomach problems.  I have continual stomach bleeding from AVMs, but not severe at this moment. Interesting, we have some similarities for sure.  I am riding the recumbant bike also, not as far as you are, but working up to it.  My husband and I will be talking to the dr. tomorrow about the knees.  I am just about to finish taking Forteo injections for osteoporosis.  No one has told me of other places that are bad on me, and I am not sure I want to know right now.  Sounds like you are doing a good job staying in shape in spite of the difficulties.  I need to continue to do that also.
    • Catrina
      Oct. 08, 2007

      Let me know what you decide after your MD's appt.  What is AVMs?  I will try the Wobenzym-N and the Ashwagandha.  Thanks for the tip.  I never heard of them before.  Did your doctor suggest them?  What type of doctor do you go to?  I see a Pain Management specialist who will refer to other specialists, surgeons, PT, etc. ...

      RHMLucky777

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      Let me know what you decide after your MD's appt.  What is AVMs?  I will try the Wobenzym-N and the Ashwagandha.  Thanks for the tip.  I never heard of them before.  Did your doctor suggest them?  What type of doctor do you go to?  I see a Pain Management specialist who will refer to other specialists, surgeons, PT, etc.  I often wonder what a rheumatologist would do for me that the PMS doesn't.  I take Actonel more as a preventive measure, since my bones are in very good shape, but I am losing 10% and 5% after my last two scans.  I am 59 years old and feel like I am 39, except for the pain.

      All best to you. 

    • aemastello
      Oct. 08, 2007
      I will definitely let you know what we learn.  This dr. is my orthopedic surgeon.  Not sure he can answer much.  I see an Endocrinologist in Dallas in Dec.for the osteoporosis.  I wonder if there is a link between the two.  I am thin and have a bad case of osteoporsis, and like you, I am young in my mind.  I do a lot of research...
      RHMLucky777
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      I will definitely let you know what we learn.  This dr. is my orthopedic surgeon.  Not sure he can answer much.  I see an Endocrinologist in Dallas in Dec.for the osteoporosis.  I wonder if there is a link between the two.  I am thin and have a bad case of osteoporsis, and like you, I am young in my mind.  I do a lot of research on my own, but a great Gastroenterologist in NE told me about the Wobenzym-N and Ashwagandha.  I am concerned about keeping my weight in line with the upcoming pain.  I am trying to go longer on the recumbant bike at a sitting and increasing my resistantance.  Thanks for the inspiration.
    • aemastello
      Oct. 09, 2007
      Have you heard about this?  Saw it on the news last night...I copied the article for you-

      Kris received a new implant called the gender solutions high-flex knee. It was recently approved by the FDA and is made specifically for women. Unlike older implants -- designed more with a man's anatomy in mind -- these implants are narrow and thin. They also...

      RHMLucky777

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      Have you heard about this?  Saw it on the news last night...I copied the article for you-

      Kris received a new implant called the gender solutions high-flex knee. It was recently approved by the FDA and is made specifically for women. Unlike older implants -- designed more with a man's anatomy in mind -- these implants are narrow and thin. They also allow for a woman's wider pelvis.

      "It's just a step that allows us to fit the woman patient better. It's like wearing a pair of pants that fit you well as opposed to one that you sort of have to adjust yourself to because they don't really fit in the right places," says Dr. Aaron Rosenberg, an Orthopaedic Surgeon at Rush University Medical Center in Chicago.

      Rosenberg is one of 13 doctors who developed the implant. It's put in place during a simple surgical procedure -- with a small incision. Dr. Rosenberg says a better fit means greater flexibility, less pain, and a quicker recovery.

      Four weeks after surgery, kris is ready to reclaim her active lifestyle.

    • aemastello
      Oct. 09, 2007
      Slap in the face reality at the dr.  He said I have 1-5 years before both knees have to be replaced and the pain will be so bad that I will be begging him.  He says we can try to buy time before it gets unbearable by doing the Hyalgan injections.  He said it is all about quality of life.  This way or the rocking chair. I was devasted! I...
      RHMLucky777
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      Slap in the face reality at the dr.  He said I have 1-5 years before both knees have to be replaced and the pain will be so bad that I will be begging him.  He says we can try to buy time before it gets unbearable by doing the Hyalgan injections.  He said it is all about quality of life.  This way or the rocking chair. I was devasted! I start Oct 30, 1 knee then a few days later the 2nd knee for the 3 wks(so basically 2/wk for 3 wks)
    • Catrina
      Oct. 09, 2007

      Wow!  I feel for you.  At least you KNOW  what's in store for you, which is a good thing.  Now you can make lifestlye decisions based on what you know.  Do you have any other diagnoses for your knees other than chondromalacia?  If your Grade III, and I'm Grade IV I wonder what's in store for me?!  Hang in there,...

      RHMLucky777

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      Wow!  I feel for you.  At least you KNOW  what's in store for you, which is a good thing.  Now you can make lifestlye decisions based on what you know.  Do you have any other diagnoses for your knees other than chondromalacia?  If your Grade III, and I'm Grade IV I wonder what's in store for me?!  Hang in there, at least you got the truth.  Knee replacements are so successful that you won't believe how you put it off for so long after you get it done.  (I've been reading up about them...)  I hope the injections help with your pain.  You may want to try the Lidoderm patches as well (they are very expensive, so unless you have insurance or can pay for them-forget it).

      All I can say is I wish my doctor  told  ME what to expect.  I know nothing what the future holds....just "we have to keep you going as long as we can."  and I have asked, point-blank.  The Dr said my cartilage is still pretty good, so I don't know if knee replacement is in the near future and he wouldn't say.

      I wish I knew.  I did retire last year, just so I can enjoy doing things that I might not be able to in the future.  Best decision I ever made, although I do work P/T.

      I wish you all the best and don't feel depressed, it's good that you are informed.

    • aemastello
      Oct. 10, 2007
      I am glad my dr. is truthful and blunt but it hurts.  I am not sure how my husband is taking this.  He and I both just feel sick to our stomachs.  I will talk more with him tonight.  I know I am in the "not dealing with it" mode.  Your dr. is not doing you a favor by not telling you.  They will give me a novicane shot...
      RHMLucky777
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      I am glad my dr. is truthful and blunt but it hurts.  I am not sure how my husband is taking this.  He and I both just feel sick to our stomachs.  I will talk more with him tonight.  I know I am in the "not dealing with it" mode.  Your dr. is not doing you a favor by not telling you.  They will give me a novicane shot before the big one.  I guess it will hurt anyway.  Anticipation is hard.  I react so much to anything in my body, I am afraid of what is in the stuff.  I react to salt also, and I know it is in there.  All info from you is so appreciated.  How is your pain level now?  Are you about to go back for another set of shots?
    • aemastello
      Oct. 10, 2007

      You said you work P/T, is that for your knees or are you the P/T person?  Chrondomalacia (sp) is what I have, the osteoarthritis.  That is all, and it has the old patella messed up pretty bad. 

       

      I wish your Dr. was more honest about you.  Did he say why he keeps putting off the surgery?  Is he like mine, wanting it to last until...

      RHMLucky777

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      You said you work P/T, is that for your knees or are you the P/T person?  Chrondomalacia (sp) is what I have, the osteoarthritis.  That is all, and it has the old patella messed up pretty bad. 

       

      I wish your Dr. was more honest about you.  Did he say why he keeps putting off the surgery?  Is he like mine, wanting it to last until we are too old to care, if that is possible.  I hope this new knee for women gets going so we can get one!

    • Catrina
      Oct. 09, 2007
      Yes, I had heard about them.  It's about time that someone thought about that!  Duh.  Apparently, you need to find a surgeon that will use them. All best to you.
    • aemastello
      Oct. 10, 2007

      I am just trying to deal with it. Strange how some times of the day, you are not bad, and other times, you are hurting really bad. Makes it a puzzle to me. Makes me question everything one moment, that maybe I can do OK and then the next, ouch! Pain....I want to talk to Al tonight as I fear how he is dealing with this. It is not the end of our lives, but constricting...

      RHMLucky777

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      I am just trying to deal with it. Strange how some times of the day, you are not bad, and other times, you are hurting really bad. Makes it a puzzle to me. Makes me question everything one moment, that maybe I can do OK and then the next, ouch! Pain....I want to talk to Al tonight as I fear how he is dealing with this. It is not the end of our lives, but constricting and limiting, which I know Al says he feels the upset stomach over this all and just not well, as I do. I keep running erands and not dealing with it, and I need to stop! I have to deal with it.

    • Catrina
      Oct. 13, 2007
       

       

      Hi ~  you need to hang in there ~ things good be SO much worse!!  For instance, you  could have rheumatoid arthritis, where the bone disintegrates or you could have arthritis in your hands, feet, neck, back, shoulders and  hips, like me.

       

       As you said it's not the end of your lives!  I know you must be going...

      RHMLucky777

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      Hi ~  you need to hang in there ~ things good be SO much worse!!  For instance, you  could have rheumatoid arthritis, where the bone disintegrates or you could have arthritis in your hands, feet, neck, back, shoulders and  hips, like me.

       

       As you said it's not the end of your lives!  I know you must be going through a lot of second-guessing, but at least there is an alternative to living a life of constant pain.  The women's knee -check out: www.genderknee.com - is already available!

      The reason I asked if you had any other diagnoses of your knees is because I thought the cartilage needs to be affected before they do a total knee replacement.  My cartilage is still in pretty good shape, so I don't have bone -on-bone issues - it's just the patella that is affected, like you.  My doctor has just not said anything about knee replacement  and if he does, I would be referred to a surgeon so I would, in effect, have a second opnion.  My pain level is managed at a 2-3 with medication and the patches.  It can go up to a 5-6 sometimes.  I just live with it and try to ignore it and go about my business.

      I started another series of shots last week and had my second one  this past Wed and am already feeling better.  The stuff in the shots contains saline and hyaluronic acid, which is already in your body.

      I said I work part-time (P/T) not meaning physical therapy, although I've had that, too.  Retiring was the best decision I made and I work at the same job that I retired from.

      Well, I hope your husband understands that it's not the end of the world.  Take care, and good luck with your shots!

       

       

       

       

    • aemastello
      Oct. 13, 2007
      My patella is definitely Grade III and I think, don't know yet, it is misaligned also.  I do not have enough knowledge about my carliage.  I have a lot more questions for the doctor when I start my shots.  I did pretty well yesterday with the pain, then we went to Sam's and I thought I would die trying to get through the store. ...
      RHMLucky777
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      My patella is definitely Grade III and I think, don't know yet, it is misaligned also.  I do not have enough knowledge about my carliage.  I have a lot more questions for the doctor when I start my shots.  I did pretty well yesterday with the pain, then we went to Sam's and I thought I would die trying to get through the store.  I cried when I got home and was ready to start the shots!  I rested and it got better.  I wonder if my elliptical machine aggravates it.  I am working on finding a balance.  My husband is being very supportive so that all is going well.  I want to make sure I do not grind down what bone I have left for them to attach something to.  Also, I checked with www.zimmer.com about the knee and my doctor is on the list.  Also, the MIS, minimally ivansive surgery...that is better if we can do that one down the line.  Glad you are better with the shots and now, now, I am anxious to get going. 
    • aemastello
      Oct. 13, 2007
      I am so sorry about your pain all over. You know, I am lucky at this point in my life to have only the knees.  You are in my prayers and I applaud you for your will and you positive outlook and for helping others, i.e. "me"!
    • Anonymous
      kathyab
      Jun. 20, 2009

      Hi I just read about this...My brother has been seeing this doctor for about 10 years now...he did a hip replacement on him when he was 30 years old. This doctor is an excellent doctor! I am having trouble with my knees and had a neuro surgeon tell me that I have arthritis behind my knee caps and I just received cortisone shots 2 days ago. I was in alot of...

      RHMLucky777

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      Hi I just read about this...My brother has been seeing this doctor for about 10 years now...he did a hip replacement on him when he was 30 years old. This doctor is an excellent doctor! I am having trouble with my knees and had a neuro surgeon tell me that I have arthritis behind my knee caps and I just received cortisone shots 2 days ago. I was in alot of pain b/c my knees swelled up quite a bit...I could not bend or walk well...Now I am feeling better.

    • Anonymous
      Mara
      Sep. 11, 2012

      I have osteo behinc the kneecap too and I DO A LOT OF RESEARCH (sorry, damn caps lock), but I have read that the cortisone shots are bad.  (After about havig it done 3 times).  I would check up on that.