Living with pain

Dear Tom,

Thanks for joining our community and submitting a SharePost.

This is great advice! I know that many of our community members are looking for suggestions from people who've 'been through it', so this will be a big help.

I hope you enjoy our site and find it useful.

Best,

Katherine  

I have similar symptoms....It's a lot to adjust to. I'm very concerned about my recent neurological and rapid skeletal changes. I do not have medical support( a lot of experts who cannot diagnose or treat the problem)its just been almost a year and a half of testing...I had other symptoms( lungs, gastro)which have subsided, now this. I think I have an inflammatory component. The nerve thing is the worse but there is outside hope they can be regenerated, but as for the skeletal morphing, I guess not, it just gets progressively worse.

I am not handling this well.