Literally Born for Osteoporosis.... Warning Long Post

Hello, Victoria. Thanks for writing. I'm glad you found us.

 

Your bone health history is certainly extensive and challenging. Your situation, as you know, seems quite concerning.

 

To help, I'd like to offer a few resources:

 

People Who Are Living With Osteoporosis

http://www.healthcentral.com/osteoporosis/c/role/1/

Here you'll find posts from people who can relate to some of the same issues you're facing

 

Why Your Bone Density Might Not Improve, Even If You're Taking an Osteoporosis Drug

http://www.healthcentral.com/osteoporosis/c/73/12196/lack-bone/

Expert physician Dr. Neil Gonter offers advice about realistic expectations of bone-building drugs

 

After a Fracture: The First 48 Hours

http://www.healthcentral.com/osteoporosis/c/9487/9957/48-hours/

Expert Caregiver Lila de Tantillo talks about important aspects of follow-up care after you experience a fracture

 

Calcium Supplements: To Take or Not To Take?

http://www.healthcentral.com/osteoporosis/c/73/2496/calcium-to/

Again here, Dr. Gonter addresses a common question for people with osteoporosis

 

I hope this information is helpful to you. I can help you find more if you need it. Just let me know.

 

Keep us posted on your progress, Victoria. We look forward to hearing from you again soon.

 

Best to you,

Maria

 

Maria Gifford

Community Moderator

OsteoporosisConnection.com

 

 

 

 

 

Dear Victoria, I am so sorry to hear about all you have endured -- but I am so amazed by your strong and persistent spirit. I truly admire your courage and tenacity and wish you the best as you deal with these complex health issues. You and your daughter are in my thoughts. Warmest regards, Lila

Hi Victoria,  I am a 36 year old mother of 3 year old twins. My battle began after I gave birth. I complained of muscle pain in my thighs so I was checked for MS by having an unneeded muscle biopsy. I complained during my pregnancy and was told my pain was from my siatic nerve being pinched due to carrying twins. My twins sucked out all my D and calcium. I couldn't breast feed because I was so vitamin deficiant that I barely produced any milk. I could go on and on but to sum all of this up I finally saw a wonderful arthritis doctor. She x-rayed my hips and found severe osteoarthritis in both hips. I had my first hip replacement in Nov. 2005 and the 2nd in Nov. 2006. I also have fractured discs in my upper and lower back and i'm on a daily Forteo shot. With the first hip replacement I got MRSA and almost died. I had an emergancy surgery that day. The MRSA had tunneled to my butt bone in 2 places. I went home a week later with a pick line for my Vancomycin treatments. I had a 3rd surgery in Dec. 2005 by a plastic surgeon. He used my own skin to do a muscle flap to cover the holes left in my rear end. With the second hip replacement I developed a DVT (blood clot) in my left calf so back to the hospital I went. I went home 3 days later with Lovenox shots and Coumidin. I just recently had a vein study and the clot in gone. I truely understand how you feel. I feel like a human guinea pig because ever since i've been of Forteo i've gained weight that I can't afford to gain. I had gastric Bypass almost 7 years ago and I refuse to have to go through that again or the pain of being fat and feeling constantly judged by society. I could tell you so much more....but i'm thinking about just writing a book, i'm sure you understand what I mean!  So write me back!!!! By the way, I live in Virginia.

Dearest Victoria...

 I have no answers, as I am a non-medical person.  Your story is horrendous and, as my own mother was also less than sensitive to my needs, I feel so badly for you. There, but for the grace of God, go I.  I can only wish you the best medical care and eventual

healing. And I can and will pray for you.