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Wonderful News with your tx of SC
Pam Flores
Sunday, July 05, 2009 at 09:03 PMre: Wonderful News with your tx of SC
BoneLady
Monday, July 13, 2009 at 05:43 PMHi, I would like to share my experience with strontium citrate. I've been taking this treatment now for two years, and my latest DXA scan results showed a remarkable improvement over my baseline results. I would like to invite you all to visit my non-commercial, ad-free blog to learn about my experiences with this product. Please check out http://www.strontiumforbones.blogspot.com. I'm not selling anything!
re: re: Wonderful News with your tx of SC
phyllis
Monday, July 13, 2009 at 11:13 PMHi BoneLady...congratulation on your gains. It's a good feeling to know that what we are doing is making in difference not only in our lives, but in the lives we touch along the way. I've been reading you blog for some time now and would like to thank you for all the good info you have provided to so many of us "out of the box" bone builders. I'm hoping with the FDA trials of strontium malonate that we'll soon be able to get accurate DEXA scores. My dr. had me stop strontium for 30 days prior to the scan..did you do that? I've had all 3 of my scans on the same machine. Once again thanks and take care...phyllis
re: re: re: Wonderful News with your tx of SC
BoneLady
Tuesday, July 14, 2009 at 01:08 PMHi! Phyllis, I'm glad you've been reading my blog. I hope you will comment on my latest post. I like to get feedback. I did not stop taking strontium before my DXA scan. Some people stop taking strontium for various time periods before a scan, while others do not. Strontium stays in the bones for years; that's one of its benefits.
BoneLady
re: Wonderful News with your tx of SC
cm81256
Thursday, September 03, 2009 at 10:37 AMHi Phyllis. What great news about your Dexa scan. I asked my endo about stronium ane he said absolutly not under any circumstances. He said people see an increase in the Dexa scans but it is not a true reading. Something about stornium being heavier and making appear to have more bone. I don't really understand why he would not give me the go ahead. He just said Do not. I am tempted to go out online and start taking it anyway I have heard nothing but good reports about it....
re: re: Wonderful News with your tx of SC
phyllis
Thursday, September 03, 2009 at 05:09 PMHI CM...Your dr. is right, taking strotnium does give an overestimated score, since it's a heavier that calcium and shows up differently on the scan. I've read that it can be up to 50% in some articles and less in others. Its not an exact science and won't be until our FDA approves its and regulates the testing. DEXA machines need tobe calabrated differently for stromtium and not many are willing to do that for a few people. With that said when i had my DEXA in June it showed when compared with previous scans to be 14% gain over 3 years..even if its really only 7%, that is a still a gain that i got without side effects or introducing potentially harmful chemicals into my body. Your dr. is like most..since it not FDA approved it can't possible good, effective or safe. If you are interested in strontium do your own research and come to to your own conclusions. take care..phyllis
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thanks for strontium news
nathji
Tuesday, July 07, 2009 at 04:08 AMDear Phyllis,
I must say I am deeply interested and inspired by your wonderful experience with strontium! Here is something that will surprise you -- people in India havent even heard of strontium as a therapy for osteoporosis, far less for anything else. Therefore your experience will be very valuable here in India and the Eastern Countries where everyone is given to understand by the doctors that biophosphonates are a "must" for osteoporosis.
I knew nothing about strontium and thought that it referred to strontium 90 a radioactive product that gets into the bones after a nuclear explosion! It interested me because I was a nuclear physicist!!
I am going to the net to study on strontium and osteoporosis, at first I had seen a website that gave dreadful side effects like heart troube etc. but other sites dont speak of these side effects. Since you have taken it for so long without any problems I feel maybe these side effects were stray instances. But all the same do go into them, before socninuing strontium for years.
You may also see the following experiences, which were described as one of the best yet seen on the web on strontium:
Thank you so much for your wonderful encouraging description, most people give dubious results of their experiences with any medication, but yours is very lucid and inspiring and convincing.
I shall try to find out from New Delhi the capitol of India whether any doctors there have heard of strontium. If not, then I will tell them of your experiences.
Yours,
nathji
re: thanks for strontium news
phyllis
Tuesday, July 07, 2009 at 10:33 AMHi Nathji, thank you for your kind words. I have done quite a bit of reading on strontium and luckily have had none of the side effects that can happen. It is not perfect for everyone, but for many there've been no side effects at. It's a shame that more people aren't aware of this supplement since so many have problems with the current crop of drugs.
There is prescription form of strontium citrate called Protelos, is made by the French company Servier. You can go to their site and read about their studies and results. It's being used in 72 countried around the world, but the USA is not one of them. I buy strontium citrate online.
If it would help you i could post the complete DEXA report i was given by my dr. It is basically what i posted, but an offical report may help when talking to dr. in your area.
Have a wonderful day..take care..phyllis
re: re: thanks for strontium news
nathji
Tuesday, July 07, 2009 at 12:52 PMDear Phyllis,
Many thanks for your kind reply. Yes, it would be very nice if you could post the complete Dexa results and how things improved. It would be a definitive proof of the working of the medicine for many people who are relying entirely on Dexa reports. I will copy and save it along with the rest of your post.
You are doing a wonderdul service to humanity by putting out these share posts -- which I am reading here,-- high up in the Himalayan mountains of Northern India!
One could never have imagined such sharing of ideas before the advent of the internet, which has brought us all so much closer across the oceans and continents!Yours,
Priya
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phyllis
Tuesday, July 07, 2009 at 01:48 PMHello Pryia, once again you are being to kind. When i decided to take strontium it was me doing what i felt best for myself. Little did know how far that decision would travel and the interest it would generate. The world is indeed getting much smaller, it never ceases to amaze me that i can talk to people all over the world and learn so much from each. I've lived my whole life the midwest and can only imagine what it must be like to walk the Himilayas daily. I have seen the Rocky Mountains, they took my breath away. On your next walk think of me walking the flat country roads surrounded corn and soybean fields of Illinois. Take care...phyllis
<!-- / icon and title --> <!-- message -->This is a comparision to the scans done on 6/14/07/ and the original in 5/06. There were no adjustments made for the strontium. I recieved a call from my dr. telling me the t-score of the lumbar spine, it is now -1.9, in 2006 it was -2.9. No new scores were given for the left femoral head.
Bone mineral density is 0.833 g/cm2. There has been an increase in the amount of bone density since the baseline was taken 5/9/06 of 14%. 10% of this increase has been since the previous scan on 5/14/07. This is still in the mild osteopenia range with mild increased risk of fracture.
The bone mineral density of the left hip is 0.811 g/cm2. T score -1.1 (t-score in '06 -1.9and a Z score in the mild osteopenia range. There has been a 13.6% increase in the bone mineral density since the 5/06 study.
Conclusion...mild osteopenia in the lumbar spine and left hip. There has been moderate increase in the amount of bone mineral density since the previous exams.re: re: re: re: thanks for strontium news
nathji
Tuesday, July 07, 2009 at 02:35 PMDear Phyllis,
Thank you for so painstakingly typing out the Dexa scans during your treatment with Strontium! This is invaluable information! Yes, I shall certainly be thinking of you in the aloofness of the Himalayan mountains! If a click at the mouse can carry across one's feelings in words, then the feelings of the heart can surely reach out directly over the oceans and continents. Every time a person in pain finds relief from Strontium, his heart and mine, shall certainly reach out to you in gratitude and love. I will keep in touch! I am ever so grateful to Pam Flores for getting me to know you.
Yours,
Priya
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nathji
Wednesday, July 08, 2009 at 03:19 AMDear Phyllis,
A worrisome thought has struck me about strontium -- would you happen to know whether it has any deleterious effects on the kidney, which would show up only after a long time and surreptiously creep up as the drug accummulates in the kidneys?
Would a creatinine clearance test be required for the kidney function before and during the treatment with strontium?
Is it recommended for people with impaired kidney function?
Is the strontium excreted through the kidneys or does it follow the liver cycle and go out through the stools?
When we say we experienced no side effects -- would that also include symptomless side effects, like silent damage to kidney function?
Thank you so much,
Yours,
Priya
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phyllis
Wednesday, July 08, 2009 at 07:14 AMGood morning Priya, you ask very questions, but i do not know the answers. This is a link to a very good article that tells about strontium. It mentions the kidneys. If the link doesn't work try the copy and paste method or go to the site and look for it there. Sometimes my links work and sometimes they don't. Have a great day and enjoy the beauty that surrounds you. take care..phyllis
http://www.rheumatology.org.au/community/documents/strontium130508.pdf
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nathji
Wednesday, July 08, 2009 at 02:30 PMDear Phyllis,
Thank you for your prompt reply. I was sorry to bother you so soon after you had answered so many questions already in such detail with dexa scans etc. However it concerned me that this might be of some importance even to you--have you had your kidney function tested before and during treatment with Strontium? Have you got a creatinine and urea blood test done?
I am now going to the site you have suggested and will get back to you if anything "sinister" presents itself, --I hope not. I would be such a spoilsport to such good news about strontium as you presented! But I am grateful to you for taking the trouble to locate the website and to send it to me. Thanking you again from the Himalayan Mountains.
Yours,
Priya
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nathji
Wednesday, July 08, 2009 at 02:50 PMDear Phyllis,
Thank you again for your kind information. I have downloaded the Strontium information -- and it does say that people with severe kidney disease should not take Strontium.
That is a bit discouraging, because many people dont know they have kidney disease since it is a silent disease with no symptoms until the kidney function falls much below 50%, and then there is water accumulation in the body, swelling etc., and low urine quantity. Somehow the word kidney disease always frightens me since my mother died from it without knowing she had it until it was too late.
But I suppose most medications, including biophosphonates, would not be allowed in impaired kidney function. For this reason I have always felt more comfortable with medicines excreted through the stools. But then one cant have everything in life. I was a bit worried for your sake lest you may have forgotten to get your kidney function tested, but you probably have and I do hope things are all right!!
I am still thrilled at your writing to me here in the Himalayas where medical aid is still as rare as a pink elephant. Can you imagine the only X Ray machine in the city is out of order most of the time? So if we break any bones we must travel miles down to a larger town with better facilities! And here I am talking about dexa scans!!
Please take care, and thank you again!
Yours,
Priya
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Strontium citrate
Jan
Tuesday, July 14, 2009 at 07:36 PMMy readings are not good concerning the osteoporosis....they want me to have the IV and I am afraid of side affects. They tell me you will feel bad for one day and I think.......well this is in my body for one year.....so what happens if I have side affects, then what? I wish I knew Strontium would really help build bone for me. I cannot exercise much with bad knees and back, but I try to walk when I can. I appreciated reading your input....thanks, Jan
re: Strontium citrate
phyllis
Wednesday, July 15, 2009 at 06:39 AMHI Jan....I don't know much about the IV therapy and as for side effects its seems some people have them and some don't to varing degrees. Its not an easy decision to make when you've read the info and heard the stories. I did have good luck with strontium and so have a few others i know, but we are all different and will have different results. What to do with our bodies is a personal decision and finding the one we can live happily with is even harder. Do some reading on strontium and make an informed decison as to what you want to do for your bones. Have you talked to a physical therapist to find exercises that will be kind to your knees and back but, still benefit the bones? take care...phyllis
re: re: Strontium citrate
Jan
Wednesday, July 15, 2009 at 09:02 AMDear Phyliss,
Thankyou for writing back to me. I so appreciated what you had to say. I am to get synvisc shots in my knees and now they are saying my medicare won't pay for them. My Dr. wants to give me cortisone.....another drug I wish not to have in my body but not sure what to do anymore for the pain. I take no pain meds.....I take tylenol very, very infrequently. I had physical therapy a long time ago for my knees and ended up with a back problem. I have fibromyalgia and arthritis in my hip also......feel like I am in such a quandry regarding what to do and where to go.......I had cancer and almost 5 years clean so far.......it sure did a job on my immune system, my bones, and my stomach. I do not mean to go on but it is nice to have someone to talk to regarding all of this.......I asked the nurse to give me my results of the scan........Lumbar neg. 2.8
Left Hip.3.2 negative...........Femur 3.6....... I have been taking Ezorb calcium replacement and was told in two years my scans would be better. I have seen no improvement but has not gotten worse either. I am going to concentrate on finding out more about strontium and will get back to you. My Dr. said the IV would only bother me for one or two days.....but then I read all the other side affects from people who have had it and it is scary to say the least. Again, thanks so much for writing and for listening to me bend your ear........Jan
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Hi Phyllis, as you know I've been so proud of you for thinking out of the box and taking a route for treatment that you feel is best for you. Keep up the good work, and I wouldn't be surprised if your scores go to normal on the next dxa.
Your positive attitude, I believe has a lot to do with the results, plus your diligent exercise, diet, and overall outlook.
Whenever we can find the thing that works for us we've made great strides, so thanks so much for sharing your story for those on the fence about this supplement. We all might not get the great scores as you, but it's entirely possibly it could happen.
Congrats on your wonderful advocacy for yourself on osteopenia and osteoporosis. We can all learn a lot from you with your down to earth decisions, once you realized you couldn't take a bisphosphonate.
Again this news is FANTASTIC NEWS! We all have a lot to learn from each other on the road to our personal advocacy.
Your friend and supporter of your decisions for treatment.
Pam