Monday, February 13, 2012
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What to Ask Your Osteoporosis Doctor

Often one is told they have decreased bone mineralization (osteoporosis or osteopenia) on their bone density (DXA) and are told to come into the office to discuss the results. Here are some important points to go through with your physician to make sure to get the most out of your visit.• The fi...
Anonymous
L X Villar
1/23/07 10:45am
Thanks for the article. It came just in time since my gastroenterologist was going to put me on 2 Nexium a day!!! and with the knowledge that I have a severe osteoporosis and pain in my left hip! Doctors do not communicate between them,the hardly listen to us even though we are getting a little ahead of them just because they do not have time to search the internet as we, patients, do. Many thanks again. L X Villar 34205
Anonymous
Anonymous
3/13/07 11:00pm
The latest research indicates that gluten intolerance is often undiagnosed and is one of the causes of osteoporosis.
3/16/07 5:21pm
I am a 47 yr old (young) woman and have been on forteo for 9 months. Because of the difficult side effects have stopped taking the hormone. How long before it is out of my system?
Anonymous
pwf
12/28/08 1:56pm

Before accepting any of  the usual prescriptions (fosamax, boneva or forteo) ask your doctor if he checked your vitamin D level.  This is the blood test for 25(OH)D.  Chances are he/she didn't.  Generally you should strive for 150 nmols/L, not the 75 nmols/L which is the bottom end of "adequate" according to much of the popular literature.  After taking vitamin D-3 (cholecalciferol), 4,000 IU per day for two years my wife's DXA show a 22% improvement in the lumbar spine from the last DXA.  She was not taking a calcium supplement during this ermonthtime. Cost for vitamin D was about $3.00 per month. No side effects!  Remember there is no "correct" amount of daily supplement vitamin D that is right for everyone.  The effect on blood levels of a specific daily dose can vary from individiual to individual by a factor of 2 or 3.  Find a doctor that has bothered to keep up on vitamin D research.  They are rare but there are more all the time. My congratulations to the Aurora Medical group in eastern Wisconsin.  They are on the cutting edge in recognizing the importance of adequate vitamin D.

Anonymous
millie123
8/30/09 9:29am

Just want to say this.  In 2008, my DEXA scan revealed a -4.14 T score in my hips, a -3.6 in the spine.  My gynecologist attempted to put me on once-a-month Boniva.  I refused because of a life-long problem with gastro issues, including surgery. She sent me to an endocrinologist, who also wanted me on one of the osteo drugs.  I refused and insisted that he run a complete blood panel and vitamin D testing on me. He put me on 50,000 units of Vitamin D weekly for 4 months and checked again. That is all I did differently during the entire year.  My 2009 DEXA showed an increase in BMD.  My T scores in both hips and spine are now -3. Still osteoporosis, but the only change I made was in vitamin D supplementation. Interestingly enough, my original D levels were not that low (37).  The endocrinologist wanted to see them in the high 40s.  The supplementation raised them to 81, after which I was taken off the megadoses.  I only get the 800 units daily contained in my calcium supplements.  My last test revealed D levels of 39.  I suspect that I need to up those levels by daily supplementation. I will follow through with my doctors.  The point I am attempting to make here is that perhaps, with some of us at least, there is no need for osteo drugs with dangerous side effects. Insist that your doctor test for and treat underlying causes.

Anonymous
pwf
8/30/09 10:37am

I'm guessing you were giving you numbers in ngr/ml.  This is typical in the US.  Other countries use nmol/L.  To convert ngr/ml to nmols/L multiply by 2.5.  I have found that most older people need at least 4,000 IU per day of D-3,(cholecalciferol) to get to about 50 ngr/ml (50 to 60 ngr/ml is a good target).  This can be a very individule thing and ususally more is needed if the individual is heavier.  If the individual looses weight after correcting a vitamin D deficiency less supplementation will usually suffice.  One word of caution,  do not increase your calcium/vit D combination in order to get more vitamin D.  Too much calcium can interfere with phospherous uptake which is bad for the bones.  A leading calcium expert recently wrote on this and I concluded from her comments that 800 gr per day of calcium should be plenty.  She also emphasised the need to have adequate vitamin D for calcium uptake. My personal conclusion is that if the vitamin D deficiency is corrected calcium supplementation may not be necessary for most people on a resonable diet.  pwf

Anonymous
millie123
8/30/09 3:49pm

You are correct.  I am in the US.  The numbers are in ng.

Anonymous
pwf
8/30/09 10:15pm

To all.  I just reread my original post.  Be assured my typing skills are (hopefully) no reflection of my  knowledge of vitamin D .

3/24/10 7:57pm

I've been diagnosed 1.6 osteopenia. I'm 65, female. Doctor put me on Citrical 1,000/day. Says no drug can reverse it. Says if, when it gets to osteoporosis then will put me on osteoporosis drug. Told me to walk.

(I would like more aggressive treatment and something that would reverse it. I blame the osteopenia on sodas which leach minerals out of bones. I stopped drinking sodas. I can't believe I have osteopenia. I've always been a milk drinker and a sun worshipper, no sunscreen! Before injuries, I did weight bearing exercises. But for the past 15 years, I have not exercised. Is that why my bones grew weak? I've got a lot of questions. The only drug I take daily is Singulair for past 2 years, also Hydroclorothiazide. Could either of those cause it? I feel weaker and I am weaker obviously.)

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