Osteoporosis Advocacy Training and You: Strong Voices for Strong Bones

Pam Flores @phflores Health Guide
  • If you are reading this article then you are in the midst of advocating for yourself or someone in your life that has osteopenia or osteoporosis; or you're someone who wants to educate themselves before they reach the stage of normal age-related bone loss. 


    Many of you who come to this site, OsteoporosisConnection.com, either have osteopenia or osteoporosis, or have a friend or family member with this disease, and are desperately looking for answers to questions about diagnosis, treatment, and fracture risk.  Some are terrified that this diagnosis will greatly impact their quality of life, and rightfully so, but what can you do about the lack of knowledge, fear and loneliness?  Starting a support group with the help of education, may be the avenue you can use to begin your advocacy, to find the answers to these questions that we all have.

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    Advocacy is a term that we use to describe the active support of an idea or cause.  


    With advocacy training you can help to change the awareness in your community and get support for the effective treatment of this disorder, by learning about research and prevention.


    When I was diagnosed with osteoporosis, I didn't know much about it, nor could I find a support group in my area.  I asked my Doctor about possible groups, and she wasn't aware of any either.  Even though there wasn't a local group I decided to look for the nearest one to me.  I found out that the closest group was over 60 miles away and because I live in a somewhat remote location, I knew this wasn't going to work.  With a bit of digging, I found out that anyone could start a group and if you needed help, and who wouldn't, you could get most all of it from the National Osteoporosis Foundation.


    The National Osteoporosis Foundation has all the information you need, if you want to start a group in your area, or if you just want to learn to advocate for yourself, friend or loved one.  If you start with your great ideas and then add what the NOF will provide on current treatment, research, legislation and advocacy, your well on your way to a great group for yourself and others who desperately need the help.


    In December the NOF will be having a meeting of The Strong Voices for Strong Bones Advocacy Training and it's open to all who have an interest in promoting bone health, and learning how to raise the awareness of osteoporosis for the 34 million Americans that are now at risk of being diagnosed with this bone disorder.  If we make osteoporosis a priority in our lives, think of all the people you will be able to touch with your education, mentoring, empowerment and advocacy.


    Advocacy empowers, educates, and gives that helping hand to those who are looking for someone to talk to, and to ease their fears.  It's always helpful to meet with others who are going through the same thing, and experiencing the same problems, so you don't feel so alone.


    If you would like to start a group in your area, and need a little help, one place to start would be to contact the NOF.  For information, check this NOF support group link.


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    To start, you could attend the Strong Voices for Strong Bones Advocacy Training meeting at the Sheraton Park Hotel at the Anaheim Resort, in Anaheim California on December 12, 2008.  The day long meeting, from 8:30 a.m. to 3:45 p.m., is open to all interested in osteoporosis treatment, research, legislation and advocacy.  The meeting will start with a continental breakfast and continue with lectures from leaders in the field of osteoporosis treatment.  The day long event is free, but registration is required and seating is limited, so register now.



    California Meeting:


    National Osteoporosis Foundations

    Strong Voices for Strong Bones

    Advocacy Training Meeting

    Friday, December 12, 2008

    8:30 a.m. to 3:45 p.m.

    Sheraton Park Hotel at the Anaheim Resort

    1855 South Harbor Blvd.

    Anaheim, CA 92802


    Register online at:



    Call to register: (800) 231-4222 (Deadline for Anaheim registration: December 3, 2008)

    Fax registration form: (202) 223-9655

    For Questions:  Contact Bea Duque Long at bea@nof.org



    New Mexico Meeting:


    New Mexico Healthy Aging Collaborative in partnership with the National Osteoporosis Foundation is bringing:


    Strong Voices for Strong Bones

    Advocacy Training Meeting

    Friday, January 16, 2009

    8:30 a.m. to 3:45 p.m.

    Jewish Community Center of Greater Albuquerque

    5520 Wyoming Blvd NE

    Albuquerque, NM 87109

    (505) 332-0565


    Register online at:



    Call to register: (800) 231-4222 (Deadline for Albuquerque registration: January 7, 2009)

    Fax registration form: (202) 223-9655


    Upcoming Strong Voices for Strong Bones Advocacy Training Meetings, near you in 2009.


    Hopefully these meetings will be the springboard for you or someone you know, to start a support group in your area.  If you are unable to start a group, you will still obtain a wealth of critical knowledge on the issues facing us with osteoporosis advocacy.


    All meeting information and links provided by: The National Osteoporosis Foundation (NOF) 2008/2009.


Published On: November 27, 2008